Any help would be appreciated

I would suggest going to a major hospital in your area or even traveling and seeing about getting an appointment with a neurologic diagnositic specialist.

Peace
Trina

I just passed my 5 year anniversary with Daily Chronic Migraine.
I've been thru all the protocols with all the side effects and dismal results. I was on amiltriptylin for 3 years and propranolol for 5. Both have horrible side effects. And none of the migraine meds ever helped me.

I had some luck with the different types of botox. The first treatment worked fairly well but was much less effective on the second treatment and nothing on the third. There are 3 types of botox and we tried all of them. That's over 9000.00 just in the shots. Geez..

I had great control with the narcotic pain patch, Butrans, until the patches started excoriating my skin but it was wonderful for about 18 months. Kept me about a 3.

The last resort was the alzheimer med Namenda. I started that and at about the same time I went on the elimination diet, all whole organic unprocessed foods, nothing artificial. That was this past February. My pain level went from a pretty consistent 5/6 to 2/3. I'm not sure if it was the med or the change in diet that helped but I'm not about to stop either one. I also stopped chewing sugar free gum.

I've been totally sedentary the past 5 years because of the pounding headache that any exertion caused. All the florescent lights were removed from my office and my computer monitors almost at the lowest setting. Lucky to have a great boss.

I started playing pickle ball a couple weeks ago. Had to take lots of breaks and I wore my sunglasses in the gym while playing. Not that much fun, really hard to see the ball with sunglasses on.

Then I ordered some glasses from Theraspecs. Amazing. They are expensive but I swear by them after only a week of use. They come in indoor and outdoor
and several styles. I pretty much live in the outdoor pair. I wear the indoor pair to pickleball in the gym and it's amazing. They are made for the flickering of the lights and computer monitors so I'm sure they would help with the TV. Now I need to get my Dad and my son a pair. Both have light sensitivities.

I've since started fermenting vegetables and making my own water kefir. I'm now doing a primal/keto diet which consists of organic veggies out of my garden and organic, grass fed/finished beef, pastured eggs, poultry and pork, Kerry gold butter and cheese, nuts and seeds. I seldom eat out and feel awful when I do.

This is the best its been in over 5 years. I'm 57 now and actually finding some enjoyment in life. My depression has improved and I finally have a little energy. I've even lost some weight.

I had about given up on finding anything to help and my neurologist told me there wasn't really anything else to try. He even suggested medical marijuana.
I still have to work so that's not a viable option.

Keep plugging away and trying everything you can. Something will help if you just keep looking. I really recommend the glasses. There are at least 2 companies that make them.

Chin up!

Leda

OK, well, I suggest you tried to change eating habits. See the migriane diet link in our resource thread at the top of the forum.

Eliminate, red and yellow food dyes, artifical sweetners

I am on topomax 100mg am 125mg pm; propananol 120mg XR pm this keeps my pain level down to a 3-4 most days.

Yes, can only do about 1 hours of TV, crowds kill me, movies are out. I find bowse head phones help some times.

I take mag. and zinc for the buzzing and lound squeeling in my ears.

Peace
Trina

Merry,
I saw that you said your neuro mentioned about trying medical marijuana but it wasn't an option. Have you tried marinol? It is synthetic THC in a capsule form. It is FDA approved so you should be able to get it in any state. My neuro is having me start to take it starting on nights and weekends to get used to the 'high feeling'. My biggest issue that I get with my migraines is nausea, dizziness and tunnel vision. My biggest trigger is being in the car and the projector during meetings at work. The nausea is pretty much daily while the dizziness and tunnel vision is not as often. I do sometimes get headaches that are rather painful, but not to the point of interrupting my life. She did say not to take it more than 2-3 times a week because it can cause rebound migraines.

Birdmacg,
What kind of tv is causing you issues? Dlp tvs and older lcd screens have always bothered me, even before I started having migraine issues. Back to what I said about the projectors at work, they are dlp business type projectors. I have an lcd one made for watching movies and it does not have the same effect on me. Due to how dlp works, I can see that as been a major problem for people who are sensitive to flicker.

Don't know if this info will be helpful but hopefully it is.

I wasn't very clear in my post. The low quality lcd screens never gave me migraines. Only the dlp projectors at work do. The low quality lcd screens just hurt my eyes after prolonged use. I was just throwing the information out there about the lcd screen just in case one person eye strain might be another perssons migraine.