DAILY AURA FOR 2 YEARS! CONSTANT DAILY VISUAL DISTURBANCE - Chronic daily migraine

Hello everyone
My name is Stefka and I am from Bulgaria. Unfortunately my English is not as good as I wish to write all my toughts clear enough. I hope I'm gonna do it well. I also have the same problem as the author and the most of you. I could't find noone with this problem when I wrote in internet on my language. I was happy when I found you. But I regretfully found that you don't have a solution of the problem too. Last year and eight months while I was carrying my baby I dedicated myself to find a solution. Now I'm tasting everything I could find and I think I'm a bit better but it needs far much time after all.
So, I really hope I can help you.
1. This kind of migraines (and the magraines at all) very often can be caused by allergy reaction, in paticular a food intolerance (there is a difference between them). It was pretty interesting for me to find a condition called histamine intolerance. It includes lots of awful symptoms that I have: the migraine, anxiety, panic attacks, fatigue, confusion, nose and throat problems and heart racing. (There are a lot more symptoms you can learn about if you read about the histamine intolerance in the internet). The food diet which I have to be on is pretty hard for me, but I think I feel better. Of course this is just one suggestion. You can think about another allergy reactions you might have and try to avoid the allegens.
2. Speaking about the food, the raw food diet is the best thing for us to make a miracle with our bodies even if we try it for a period of time. I love the raw food and I include it in may daily menu but to be only raw is a really tough diet. We all know the migraine is a neurological condition and I will show you a movie about how this kind of diet helps a girl to beat a bipolar depression (which is a very serious problem). https://www.youtube.com/watch?v=TCcD_dM9TiE
3. Stomach digestion is a very importaint thing to work our bodies effectively so check your enzyme levels. (For example the histamine intolerance is caused by the law level of a special enzyme in our organism).
4. My be you know this but I will tell it again: test the levels of vitamine A and magnesium levels.
5. My neurologist told me that the migraines very often are related with the neck problems and pain. He told me that the migraine will return into a negligible problem if we solve my neck problems. Actually I felt pretty good for a month after he did those kind of thing with my head on left and then on right, you know what I mean In my country is quite expensive to make this when I need (every 1-2 months), so I did it only 2 times but I definitely like it.
This post has took me a plenty of time (because is difficult for me to write correctly), so if I remember of enything else I will write again.
I think the allergy problems are the main causer of this kind of migraine. You can find the full information of my points in the internet.
Please, tell me if you decide to try something and let we will follow the situation.
I hope it was helpful for you. Good luck

YES YES YES ME ME ME
I WAS SO RELIEVED TO READ YOUR POST I SUFFER WITH EXACTLY THE SAME ASS YOU. IM TIRED OF GOING TO THE DOCTORS THEY DONT HAVE A CLUE WHAT LIFE IS LIKE.
MY VISION FLUTUATES UP AND DOWN ALL DAY EVERYDAY ONE MINUTE I CAN SEE CLEARLY THE NEXT I CANT SEE AT ALL.
I CANT FILL IN FORMS AS I GET THEM WRONG AS THAT EVEN SEEMS TO EFFECT THE VISUAL FIELDS. WHEN I GO SUPERMARKET SHOPPING PEOPLE THINK IM HAVING A STROKE. MY DAILY LIFE IS SO COMPRIMISED DAILY FROM ONE MINUTE TO THE NEXT . LIKE YOU I HAVE M.E AND FIBROMYALGIA BBPV AND I ALSO HAVE FLUTUATING MOBILITY PROBLEMS WITH BALANCE AND PAIN ISSUES IN MY ENTIRE BODY.
I DID AN EYE TEST AT THE DIABETIC CLINIC LAST WEEK AND WHEN SHE SAID TO READ OUT THE LETTERS THE LEFT EYE WAS FINE BUT THE RIGHT EYE READ THE LETTERS BUT THE LETTER O HAD A SQUARE AND CROSS THROUGH IT THE LETTER T HAD HORNS AND THE CENTER OF THE LETTER WAS WHITE NOT BLACK HOW IT SHOULD BE. ALL THE LETTER WERE READABLE BUT WITH EXTRA BITS THAT SHOULD NOT BE THERE.
I CAN HAVE A FEW DAYS WHERE MY HEAD DOES NOT FEEL SO MUDDLED AND MY VISION FEELS GOOD MOST OF THE DAY BUT THEN I GO FOR WEEKS FEELING TERRIBLE AND ALL I SAY IS I CANT SEE PEOPLE DONT UNDERSTAND YOU ANSWER YOUR MOBILE AND TEXT FINE ONE MINUTE THEN 10 MINUTES LATER YOU CANT EVEN SEE THE BUTTONS OR READ A TEXT.
IF ANYONE ELSE HAS DAILY AURA MIGRAINE WITH THE EXTRA AND HAS FOUND OUT WHAT IT IS PLEASE PLEASE POST AT MY WITS END WITH DOCTORS FOR OVER 5 YEARS !!!

I just thought I'd add that I have had a fair bit of headaches over the past year too, some with visual aura or spots.

HAVE YOU HAD YOUR HORMONES CHECKED!?

For me, it turns out after months of testing, I have low testosterone and low Vitamin D. I have begun testosterone replacement therapy and heavy Vit D replacement...and my headaches and occasional visual migraines have tapered back. I hope they go away entirely when I get my levels back to normal.

Keep in mind that too much Magnesium will depletes calcium, as too much calcium will lodge in the brain and initiates migraines attacks. Daily intakes of these two minerals must be kept from 1:1 to 1:2 Magnesium:Calcium, preferably around 1:1.5. For example, 350 mg magnesium allows no more than 525 mg calcium. The calcium intake depends on magnesium intake and not vice versa.

Women are often advised to take larger amounts of calcium, and are literally being killed by doing this. The differences in daily intake values recommendations between USA and the rest of the world must be of big interest to anyone who seeks to solve a disease that is built around these two mineral cellular values. See MIGRAINE in the symptoms lists of high-calcium intake:
http://healyourselfathome.com/HOW/NEWSTARTS/1_NUTRITION/MINERALS/MAGNESIUM/MAGNESIUM_FUNCTIONS/mg_calcium_regulation_prevents_calcification.aspx
And read this:
http://deliciousliving.com/blog/time-ditch-21-calcium-magnesium-ratio

OR look it up anywhere else.

Wdtony, well done! I don't know how to contact you?

Hi all. I've had big problems with my vision the last couple of years, I've been to see 4 eye doctors, 2 neurologists, took lots of tablets for migraines with aura - lamotrigine, amytril, propranolol, and others. Tried acupuncture, eye physio and more.

Recently I stopped taking Lamotrigine (2 x 50mg a day) and am currently not taking anything.

Lately my vision has somehow got even worse. I have light sensitivity but the biggest problem seems to be repeating of objects / words and flashing around everything. It used to be bad when I used computers but lately it's starting to happen with everything. For example, it's got so bad that today even when looking at a normal paper folder, when looking away I could still the the text heading from it. When I see a shirt or anything with a pattern on, I look away and can still see flashes of it ( like when you look into the sun and look away). I often get throbbing like a pulsating heartbeat by my temples accompanied with it. I get flashing around everything and it's making it so hard to concentrate or do anything! Every plain - especially white, and blue sky flashes severely. It's very hard to describe what I mean but I hope someone understands!

Does anyone have any idea what could be the cause of this and i'm especially interested as to what the name of a condition is that makes u see text/patterns after looking away from it so often.

Thanks for any help!

Hello Keren, I have started with the magnesium. I was ok about 3 months, but the doctors said that it has been stopped for a while (at least for a month). I had stopped it for a week. Then I have started again but yesterday...Bummmm! A blind spot! Now I am afraid again. I am back at the begining... Please tell me have you made some rests between the periods of taking magnesium? And have you made some changing in the dosage? Have you taken calcium? Please tell us your system of taking these minerals!

I had infrequent migraines for several years without aura especially when driving long distances in automobile. Visual aura mostly flashing techopsia/floaters (small to large) often followed by H/A pain from late 2006 to 2013. May 2013 I had umbilical hernia repair surgery and July 2013 underwent surgery for acute chord rupture of posterior flap of mitral valve (heart). From the moment I woke up after my surgery in July 2013 I began having daily visual disturbances and occasionally my tongue would go numb. I went through cardiac rehab and would mostly experience either flashing floaters or double vision with head pain on top left of my head (was taking med lopressor which was d/c'd about Dec. 2013). I continued to exercise at Gym after being d/c'd from Rehab. Fainted on a trip early January 2014 and noticed increasing blurry vision. By May 2014 my face was becoming numb, my legs mildly "wobbly," fatigue, in addition to other visual symptoms of which double vision was the most annoying. I am a physician so I knew what was going on, but the face numbness was very alarming and I went for an MRI (neg), went to Ophthalmologist (eyes healthy). I was able to work, but the visual and neurological symptoms were quite annoying (some days my mouth/teeth can remain numb all day). Eventually early 2015 I went to see a Neurologist (also a migraine sufferer). I was put on Amiloride (diuretic) 5 mg. Neurologist said there was some research that showed amiloride effectiveness for Aura without pain and the cortical wave of depression. I didn't think it helped and didn't like the long term effects on kidneys and electrolytes (potassium) so I stopped taking it. Neuro was fine with this and we agreed I would continue with Feverfew herb and other whole food supplements I was taking (I don't take baby aspirin either). Butterbur is another good herb and vitamin B2 and mineral magnesium. We discussed how allergies might be a trigger in addition to other triggers but no rhyme or reason as to when symptoms appear. By the way, Neurologist said my MRI was consistent with migraines. I moved to the beach in Florida, alas, symptoms still around. Some days and weeks are better than others, but I rarely go through a day without some visual disturbance. I exercise regularly which seems to help but if I overdue it I can have a few bad days. I have considered a variety of causes from the physiological effects of having my heart repaired to the anesthesia and meds I was on after my surgery. No doc believes my heart is related to my migraine aura symptoms, and none will comment on the effects of the anesthesia or meds post surgery. One of my former patients is a Orthopedic surg./Rehab asst (also a migraine sufferer) who is convinced that these symptoms are made worse by anesthesia. I realize this is a "brain" neurological condition, but it was just too coincidental that my symptoms became so dramatically worse after these two surgeries especially the heart surgery (no stroke, no AFib, no TIA). My mom suffered from migraines so this all can be inherited :-( I don't wish this on anyone, but feel somewhat comforted to know I am not alone. Please keep in touch y'all.

Post Edited (DrMikeyCares4U) : 1/22/2016 4:18:07 PM (GMT-7)

I am also getting daily auras. Not painful, just visual disturbances. I went to the eye doc a year ago and was told all is okay. I called to make another appt this year and was told it happens and that I should contact primary for follow up if I want. Here are a few things I have to wonder about. I have constant neck pain. Is there a pinched nerve? I spend too much time on the computer. I have stress. I do get outside daily and walk. I am afraid to drive anywhere because there is no warning that it's about it happen. It just starts as fuzzy blurred vision and goes into the jagged auro. The last two days it was only about 15 minutes each day. Some have lasted for 1/2 hour or longer. What is going on! I do not like the idea of meds. Maybe I will minimize my computer usage and see if that helps.

Hello everyone,
How refreshing to know I'm not alone. I've had migraine with aura and visual disturbances since aged 16. I'm now 43 and not sure how I've got through work over the years, looking back. My mind never tires of panicking, thinking I'm having a migraine when in fact it's just the visual disturbance thing pulling my leg. I panic about having migraine away from home as I lose my speech and it's so embarrassing. It's super hard to do my job with this as my eyes as so sensitive to the light and the migraines just come on without warning. That's without even going onto the constant aura I have which makes reading things really hard and I'm in constant panic it's a migraine attack as it's the same symptom but milder.
I have had stretches of years without constant aura, just the migraines, not sure why or if I did anything differently. Today I'm just getting over my 3rd migraine in 24 hours and my eyes are very bad now and will be for a few weeks then they'll subside to mild aura again on a constant. I'm feeling so down about this and victimised but reading this, you're all absolute troopers and if you can fight through it I can too. I'm single, been single most my life and wish I had a living husband to pull me through times like this.
I started Accupuncture 7 sessions ago and have been going through what's called healing crisis for the last 2 months where my emotions are off the rails etc. Basically I'm worse than I started but my accupunturist says it's because we're trying to ask the body to take another route when it's walked down the wrong path for 30 years. So I need to be patient. I'll let you know if it helps.
I am giving each and everyone of you a huge huge hug, to say to you, I'm with you, I'm riding this awful thing with you and don't let it beat you. Xx

Hello My Lovely, I know it has been almost 5 years since this thread began. But I had to write you since you're so enthusiastic in trying to find others with the same thing.

In 2014 I started to get aura with temple pain. I was suffering about 1 or 2 aura attacks with migraine every week. It was an incredibly hard year for me. I almost didn't make it through. I was very seriously trying to weigh the balances between life and death. Everyday was a struggle just to get out of bed knowing that any chance of achieving happiness was bleak. So I saw a neurologist. She gave me the same spiel any doctor would give and wrote a persciption for Topiramate which did nothing other then dampen my cognitive abilities. So I threw the pills in the trash. This lasted all year up until Dec 3rd of 2014.

On Dec 3 of 2014 I decided to make some life changes. Eliminated a great portion of salt, and I made sure to exercise. Despite the migraine pain, I decided to push myself. I biked 30 miles. To my surprise, I realized I haven't had a single attack for an entire week. So I continued this exercise regiment. From that day, I went 6 months without a single attack!

My next attack was May 25th of 2015. It was short lived thankfully. But this was probably due to me becoming lazy. So I continued to exercise and was successfully able to fend off other attacks up until Octobor. In Octobor I had 2 attacks back to back with a 24 hour period between them.

I have stopped exercising for the period up until this very day. On March 29th I was hit hard! I suffered the typical blindness hallucination and flicking tasle effect. The aura lasted for 20 minutes. Proceeding it, my tounge, mouth left hand and left testie went numb. So I decided to rush to the ER to make sure I wasn't suffering a stroke. I received X-rays which showed no abnormalities. Blood work which showed low K values. Essentially I was deficient in potassium. I was hypokalemic.

Since March 29th I have been suffering blindness hallucinations almost everyday and I feel like it's getting worse. I have to get out there and exercise again! I hope at one point you see this and we can connect. Meeting like minded people is very difficult. We are a different breed of people! I have a group on Facebook "Official Migraine Support Group" If anyone is reading this, feel free to join. I love all of you who suffer!

Post Edited (Mikeyfear) : 4/13/2016 6:34:22 AM (GMT-6)

I too have have unexplained visual distortion and dizziness related on migraine for 11 years in episodes. Once lasting 2 years straight and since then jn 3 month or sometimes less blocks. It's usually triggered by me being ill . For instance I've just had terrible blu and now I'm in another episode
. It's a complete and utter nightmare.. All the symptoms ypu describe are the sa me. Even the things like bright sunlight making it more bearable and dull light making it worse. I struggle yo find sunglasses or even plain glasses to make looking at anything bearable.it's easy to hide away but ive found the only way to get through without losing your mind is to carry on with your normal.life...don't get me wrong it is a nightmarand i plunge into despair a lot when on my own . You will feel demented whole you try to act normal BUT EVENTUALLY it fades out and you're free of it again. I've seen so.many neurologists the last diagnoses is persistent migraine aura ...who knows..stay off daily drugs and your brain will correct. Stay as well as you can because bad health always throws be back into it.