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Brad69 - I have a Brain Tumor too!!

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Migraine Headache
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Posted 9/5/2006 10:43 PM (GMT 0)

Brad69,

I too have a brain tumor. And Migraines led me to an MRI that found the tumor. Tumors are not that common and most people with migraines do not find tumors. I have a low grade tectal glioma in my brainstem. It is in-operable and is slow growing. It is not cancer which I am very thankful for. But I have headaches/Migraines everday. I had to leave my job and we are in the process of selling our house.

Some doctors say the tumor causes the headaches/migraines and some say they don't. I have tried many different preventative medicines and nothing has worked so far. Imitrex does work to get rid of the bad migrianes but I can only take it once in a while or it stops working.

I may wake up in pain every day but I am thankful that I wake up and I can kiss my three year old son every day. Most of the brainstem tumors are fatal so I consider myself very lucky.

I want to wish you the best of luck in your surgery and let you know that my thoughts are with you and I know you will do well.

I will check back too see how you are doing.

Best wishes...

From one brain tumor to another.

Katie Lanouette

Posted 9/6/2006 12:36 AM (GMT 0)

Thanks for the concern. The past week has been a very LONG one. Having to wait is on the surgery is starting to get to me. After hearing of your story, maybe mine isn't all that badd. At least its operable, I can only imagine the pain you go through daily, and don't see any relief in site. I am trying to be optimistic on my part, and hoping and praying everything goes perfect, and I'll have some relief finally with little or no side effects. Time shall tell the story, friday morning is creeping up on me, and I must say I'm getting a little nervous. Just ready to get it over with.

Once again, I want to thank everyone for their concern, it means a LOT !

BRAD STONE

Posted 9/6/2006 4:42 AM (GMT 0)
You know, I caught myself saying a lot, I wish it was just somthing like a tumor that they could fix and then my headaches would stop. But in reading your posts, I feel how wrong that statement is. I'm so sorry for what you are having to go through. I haven't ever had anything serious like brain surgery, but I have had several sugeries, and there is no feeling like when your laying on your back, vulnerable, allowing someone to have controll of your life. My comfort was knowing that God was there with me, guiding their every move. I just say a little prayer as they push the meds in, knowing I'll wake up soon because God has a plan for me. Even if that plan includes pain and suffering along the way, He's the ultimate healer and perfection of time. God Bless you, and I look forward to updates on your recovery and life after all this.
Posted 9/6/2006 6:11 AM (GMT 0)
Katie,

Words do not seem to be enough to give to you, I don't know what order to put them in! My heart aches for you, and of course I will pray for you. You are very brave and strong. I hope they can find something to relieve your symptoms a bit better so maybe you do not wake in pain every morning!! Keep posting and let us know how you are doing, and don't forget to vent when you need to!! ((((hugs))))

Brad,

As the week is progressing, my heart is aching for you too, you are still in my prayers. I have found the verse 'I am with you always, even to the end of the age' a comfort together with Psalm 23. I am praying you will wake up much better than you fear. ((((Hugs)))) to you and your wife.

AngMichelle,

I know you are having it rough too, you are also in my thoughts and prayers. Don't forget you can email me any time!

take care all

Ann
Posted 9/6/2006 2:42 PM (GMT 0)

Hi Guys,

  I suffer with head pain also...Mine from a inoperable brain aneurysm...I've had mine for 5 and half years...I've had the pain that long too.One long headache..Mine is LMCA (left middle cerebral artery ) 1 center meter by 6.7 mm It's right behind my left eye in the middle of my brain. With every heart beat it pulses on the trigemenal nerve and that nerve is beyond repair ...Why I'm in so much daily pain....When the aneurysm started to grow 18 months ago, they attempted brain surgery and half way through it , I had a stroke, so they had to stop the surgery to save my life. I beleive the gave me TPA, to break up the clot...But they thought I was a goner then. But luckly I made it but My surgery was a failure...They put it a stent (which caused the stroke ) but was not able to put in coils..They said they need to put in another stent..It's that long..But they say I'm lucky to be alive and just be happy at that...So this coming Jan, will be 6 years...And life goes on.......And so does the pain...,.I have found out through the years, that methadone has been the best for my nerve pain with a little bit of topamax and a little morphine has done wonders for me,,,Tames that nerve down a little...I have other symptoms but pain is the biggest problem...I just wanted to let you know, you all aren't alone out there...The other thing that bothers me also is that this monster could burst at any moment...Thats been a hard thing to live with on a daily basis. Knowing that a burst at this location would kill me instantly, well I would bleed out in minutes..Is not good for my mental. But I've done pretty good so far. I've got a good support at home. I've finnaly got SSDI in March 2006 for Disabling pain related inoperable aneurysm..Fought it for 5 years.. Hugs Guys, Cindy

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