please read, thanks fam

I have an appt. tomorrow with my PCP, and I need to spill my heart and soul to him.

One-SOMETHING is wrong with me. What 22 y/o basically has something Dx.ly wrong with her every week?? Right now my potassium is low, so low I couldn't leave the hospital yesterday. I get fatigued, joint pain, stomach problems, prone to illness, unexplained weight gain that I can't lose, depression/anxiety, and whole book of complex stuff.

TWO- My migraines, are killing me. Maybe not litterally, but I can't handle it anymore. The neruo's I can see, won't see me saying there is nothing more they can do. I've tried EVERY preventative, abortive, etc. They last at least 12 hours, of pain, nausea, you know the whole deal. Usually, a shot is the only thing that will rid it. (which I only go to get when phenergan,imitrex, toradol, etc doesn't work.)

I CANNOT go to the walk-in clinic's/hospitals anymore for my migraines. They are just not wanting to treat it either. So my PCP is ALL i have left.

WHAT DO I DO?

question?- if narcotics work, and I make myself take them responsibly (even giving them to my mom so we know i don't take enough for rebound) is it bad to rely on that for home rescue treatment so I don't have to go anywhere??? I know this sounds crazy for a 22 y/o but I've read a lot of using oral Fentyl (Atiq) for rescue of severe migraine.

If I did do this, i would ask for like, 6 a month, and give them to my mom, and only use it in a crisis, "OMG i can't take it "headache.

Also, I've heard of docs. prescribing Nubain INJ. to use at home(which is what I get if I go somewhere for a shot). This again, I would have my mom moderate.

-should I just go to a pain doctor? would this make my PCP more comfortable you think?

Please hear me, I do not want to be on narcotics long term or regularly, but sometimes thats my only option, and i just don't have any doctors willing to help my anymore.

I start counciling on wednesday, have topamax to try again(but I'm scared to start it b/c of the horrible cognitive effects it had on me last time).

I'm taking a vitamin(barley green), basically I'm doing all I know to do, but don't know what else to do.

I can't live this way. I just got a new job. I have to be there everyday, and I want to be, and I like it, but I don't want to dissapoint them, or let them down. My Mother, bless her heart, is about to have a nervous breakdown(she is my caregiver when I'm down and sick) and she doesn't know what to do either. It kills me to see her hurting and tired.

Ok, maybe this is just a huge vent, but I need advice.

I think i may just print this out and read it to my doctor tomorrow....humm.

Thank you, you are the ones who really do understand this horrible disease, and the pain, not just physical, that comes with it.

God bless you and keep you,

Ang

My neurologist prescribes me a regimine of meds to take for when I feel a migraine starting or if I know the weather is changing.  If I do what he says, I stay out of the ER, stay out of bed with the lights off and my head in a bucket and live my life beautifully.  I don't feel drugged.  I can function great.  So, you ask, what is the problem?  Well, when I have to call the neurologist's office for refills, his assistants act like I am horrible. The doctor has never told me that I am taking too many meds or even how many too take.  I never take more than the directions on the bottle say (ex:  take 1-2 ever 4-6 hours). I also rarely call for refills in between office visits; however, this time, because I have been doing so well, he scheduled my next appointment for 6 months.  I need a refiill on several of the abortive meds and I am scared to call. 

Any suggestions out of anyone?  What is the answer?  Should we try to avoid meds unless the pain is absolutely severe and then probably end up in the ER or take the meds early (as prescribed) and avoid the ER?  How do you handle the people that treat you like you are a drug seeker?

I am open to any and all advice.  I feel at my wit's end.  Sounds like I am not the only one.  I have three children who keep me running constantly and I cannot afford to be in bed with a headache for days on end every week.  PLEASE HELP!