disembarkment or mal de debarkment syndrome S.O.S.?

You can visit the foundation site or yahoo support group MdDs, google MDDs foundation or go to Yahoo Support group.

There is no reliable cure other than time and rehab but there are reseachers from UCLA that have discovered it is a nerurological disorder.

It has to do with deep parts of the brain that are Hypermetabolic the Amygldala and another part this is brand new to all of us. I always knew it made people get ANXIETY i was not an anxious person when I got this disease.

It is a really terrible thing to have but a lot is casued by Anxiety and the terror of rocking and swaying.

If your relative recently took a Cruise or Flight or Train is the ususal onset.

It typically goes away in 6 weeks if you're lucky but has lasted as long as 2 -3 years for me I have had several episodes of it. I now get Headaches and Auras and Vertigo and heat intolerance and these are pretty common symptoms of it as well esp. when you have it for a long time.

Your relative must do Vestibular exercise ASAP its critical.Benzodiazapm drugs work well like Xanax Valium and Clorazapam

K

Post Edited (disssy) : 5/3/2012 3:12:48 PM (GMT-6)

There is a relation with Migranes to MdDs.

Lately the Migranes are really bad since i had a major surgery.

I linked a few things to Complex Migrane is what I have and yes MdDs is strongly linked to Migranes in almost all of us who have it.

They say Effexor is best SNRI to take there is a link I will post from another forum about MAV with Q&A from top researchers. Vertigo I get as well and it is all so similar but different when MdDs is set off by motion there is a difference all the experts agree.

It is bascially still more or less a mystery but Dr Cha UCLA is using TMS Magnetic treatment and this is solving a lot of the problems with all kinds of brain issues and curing?? MDDS. Alzheimers, Parkinsons .Depression you name it many doctors researchers are using it on these serious issues...There is a great show on NOVA PBS google that and TMS and you will find it.Its on main page look for magenitic therapy on left..It is being practiced all over but the doctors are not mainstream doing this for all disorders yet only depression is 100% FDA approved.Some insurance may cover depending. There are 360 of these machines already in USA and at most major Universitys. Its amazing non invasive no meds etc. And it is not like Electrical shock at all. Its very expensive and if you treat a condition like MDds is deep brain the doc would need to know what they are doing and have the proper coils....When Dr Cha finishes the research I am sure this will be the tool to cure it.

Post Edited (disssy) : 5/3/2012 2:53:40 PM (GMT-6)