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Posted 10/4/2005 12:54 PM (GMT 0)
Hello everyone!

I´m new to this forum and just wanted to say thanks for your comments! I love them all. It´s like finally coming home. I know I shouldn´t be pleased that there are so many people suffering like me but I can´t help feeling comforted.

If you realise my strange English it´s because I´m German and not really used to practice my very few English skills. And so it´s been a long way untill I finally found this side. I really feel better now just by reading your posts. tongue

Now it´s four years that I suffer from migraine. The headaches were constant daily ones right from the beginning so they are quite similar to the tension type headache. But as they were worsening with physical exertion (do you know what I mean? not sure about the word...) it was clear it´s migraine. At the beginning I was prescribed amitripyline which helped little, I had to quit university (medicine- ironic, isn´t it?) untill finally a year later another doc tried me on metoprolol (don´t know the market name in US, sorry, but it´s a beta-blocker) and it helped so well I could go on with my studies for another year. Now I´m again back in bed since two years now and it´s really hard to cope with. I´ve had much more preventives, some of them work better some less. But all in all the headache gets worse day by day and I´m really on a loss what to do. I won´t stress your patience any longer just want to add that I´ve tried any therapy and method I could think of and all in all the result is very poor.

Sorry for venting(learned this new word here!) on like this. I really admire the way you all find ways to live with the pain and even have the stregth to comfort others on this side.

Thanks again!

Jana

Posted 10/4/2005 3:56 PM (GMT 0)

Welcome Jana,

I'm very impressed with your English skills.

Unfortunately you're not alone in your suffering. I have found the same thing, comfort in knowing I'm not alone. Never apologize for venting, that's what we're for. Sharing what you're going through can help make the process easier.

I admire all of the things you have tried as well. Unfortunately, it's trial and error, educating yourself and working with your doctor and neurologist. Have you tried identifying the foods, environmental and other triggers that cause your headaches? If you can identify things that trigger your headaches sometimes you can reduce them.

You mentioned that physical exertion made them worse, I have the same challenge. I have found that a little bit of exercise every day - just short walks to start - helps me overcome the effects of physical exertion on my headaches.

Are you seeing a family doctor and a neurologist? Sometimes a psychologist can help you deal with the pain as well.

Stick with it, you will figure it out and keep checking in. We're here to listen.

Posted 10/4/2005 7:29 PM (GMT 0)

Hi Jana-

Welcome Home!!! I think coming here and being around other people that truly understand what we are going through is the best things. My family and friends have no concept of what it is like to deal with migraines and what all that comes with on a daily basis...so I come here and enjoy being with my second family.

Come and visit with us and post often. We are also going to be starting a chat on Thursday nights Eastern Time...

Check out some of our resources, read about treatment options, headache diaries and their importance to us and our doctors, forms that are vital to headache sufferers and migraineurs and share stories here!

Please email me if you have any questions...

Sara

Posted 10/5/2005 11:28 AM (GMT 0)
Hello Nicky, hi Sara,

Thanks for your welcome.

Nicky: Yes, I´ve tried to find out, which triggers may be involved. I wasn´t able to find any correlation between special food like chocolate, milk, carbonates in general etc and my migraine. Only if I miss a meal the headache worsens. And I don´t drink alcohol anymore for it´s sure to produce a real bad one. I have heard of people who are actually able to controle their migraine by a special diet. Unfortunately this doesn´t work with me.

During the first year of my headaches I was much more able to influence them by preventing any stress than I am now. And I could do some jogging and found this had a preventive effect on the pain. Then there was a time during which I still could do short walks. Now it´s even hard to sit for most of the time. So there is an increase in the pain intensity, I am less able to influence it and even the medicine does not work as good and long as it used to. Has anyone of you made any similar experience?

And to your second question, yes, I have a family doctor (I really like her a lot), a neurologist and a psychologist. They all helped a lot and after some bad experiences with other docs I do feel grateful!

Sara: That chat on Thursday nights sounds great! I will try to be there tomorow!

I have a headache diary already. But for further information I am happy to consult your side!
I did not mean to make this such a long post. So thanks again for listening and caring!

Jana
Posted 10/7/2005 4:31 AM (GMT 0)

Well Jana, it sounds like you're on the right track. Educating yourself, talking to your doctor, neurologist and psychologist and then be patient are the tools I have found work to find a solution. Unfortunately I have also learned that a solution with migraines often means learning to live with migraines to a certain degree.

Keep going you'll figure it out.

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