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NEED ADVICE ON MIGRAINES PLEASE HELP

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Migraine Headache
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Posted 4/8/2006 12:20 AM (GMT 0)
 I HAVE BEEN DIANOSED WITH MIGRAINES SINCE I WAS 16. I AM NOW 28 AND I HAVE THEM MORE INTENSE THEN EVER. 

I HAVE BEEN ON IMITREX SHOTS, AND PILLS,MIDRIN,TYLENOL 3,FROVA,MAXALT,NUROTIN,INDERNAL, REPLAX TOPAMAX AND COUNTLESS OTHERS. NOTHING HAS WORKED EXCEPT FOR THE TOPAMAX. THE PROBLEM IS TOPAMAX IS MAKING ME HAVE VERY INTENSE PINS AND NEEDLES FEELING IN MY FEET. CANT GET A GOOD NIGHT SLEEP, MAKES ME VERY FORGETFUL, AND I STARTED TO SLUR MY WORDS. I STILL GET THE MIGRAINES BUT, I DONT HAVE THEM AS OFTEN BUT STILL GET THEM ATLEAST TWICE A WEEK. MY LAST MIGRAINE LASTED 6 DAYS. I ASKED THE NEURO COULD I TRY SOMTHING ELSE SHE SAID SHE HAS TRIED EVERYTING WITH ME.SHE JUST KEEPS UPING MY DOSE OF TOPOMAX 100 MOURNING 100 NIGHT NOW. I ASKED HER TO GIVE ME SOMTHING TO TAKE AWAY THE PAIN WHEN I HAVE THEM INTENSE. SHE SAID SHE HAS TRIED EVERYTHING WITH ME IN THAT REGARDS ALSO. PEROCET DOES WORK BUT I DONT LIKE TO TAKE IT THAT OFTEN AND SHE WILL NOT GIVE IT TO ME ANYWAYS. I AM A WIFE OF A SOLDIER WHO IS DEPLOYED IN IRAQ AND I HAVE A 5YR OLD BOY I NEED TO TAKE CARE OF. PLEASE ANYONE WITH ADVICE HELP ME!!!!!!!!!!!!1 I REALLY NEED HELP WITH THSES MIGRAINES........

Posted 4/8/2006 7:44 AM (GMT 0)
Hi Tracy, sorry you are having life rather tough just now. Have you seen a Neurologist who is a Headache Specialist? I have seen 3 different Neuros so far - one of which said he suffered with Migraine but he seemed to know less than the others about it!!!!

Unfortunately we are not able to give you Medical advice as we are not qualified but we will support you as best we can.

Bringing up children is tough when Mum and Dad are together all the time but when one parent is absent (through no fault of his own) raising kids is that much tougher and then when you add in Migraine I know from my own experience that life can be gruelling!! My son's father left us when my son was 2 years old - my son is now 17!!! It doesn't help I am sure that your husband is where he is.

From my own experience any drug with codeine in it is a possible problem for headache sufferers because codeine is a narcotic and is addictive, I believe Percocet is very strong codeine! I battled with daily headache for years before I realised that the codeine was a problem, I still have 2 or 3 atttacks per week last week I had 5 attacks, but in between times when the Migraine is not there I feel much better than I used to!

I am waiting to see a Neuro who is a Headache Specialist with the hope that he can help me find a little more relief than I have now. Have you identified what triggers your attacks ? - this can be quite a challenge!! Do you have friends or family that can help out with your son when you have an attack?

I am sorry that I cannot be of any more help than this but I will pray for you, sometimes it has just helped me to know that there is someone else out there who fully understands what I am going through, take care Ann.
Posted 4/8/2006 8:41 AM (GMT 0)
Tracy, I to have long suffered from migraines. I have tried all of the meds listed and with no help. I am on disability due to them. Have you tried botox injections?
Posted 4/9/2006 3:07 AM (GMT 0)
Tracy I'm so sorry to hear about your pain. I used to suffer from migraines or so I though. I was diagnosed as having "severe migraines" and my dr.s also gave me several of the meds you have listed. I suffered from them for years (vomiting, blinding and terrible pain) only to learn that they weren't really migraines. I had a problem with my neck that my chiropractor has fixed. I still go and see him every once in a while to have him straighten things out but it has changed my life! I know that everyone is different, but if your meds aren't working then maybe a trip to the chiropractor couldn't hurt. Good Luck, I'll be thinking about you!
Posted 4/9/2006 4:24 AM (GMT 0)
tracey- i feel for you. wish i had a magic wand. i listed the things that help me deal with migraine in an earlier thread. i will not repeat here because i don't want to sound like a broken record! if it's any comfort, my son used to try to take care of me when he was your son's age! i used to feel so guilty when i'd be down with one that i'd kill myself to make up for it on the good days! i'd cram so much into those good days that i probably brought on new attacks! anyway- my son is 15- and very sensitive and compassionate to other people. so maybe they help make our children more empathetic! my 6 yr old girl is the same way.

i know how hard it is being on your own. my kid's are pretty independent, too. they will fix cereal/peanut butter and watch a movie very quietly if i am sick.

i will pray for you and your little guy- and the big one for good measure. 5 is my favorite age- i'd help yopu if i could. hang in there and read thru these- i have gotten great ideas on here from the migraine society!
Posted 4/9/2006 11:08 PM (GMT 0)
TRACY!!!!

If you are not feeling better and your doctor is not suggesting anything that can help you......FIRE HIM OR HER.....you pay your doctor to help you and they are not doing that!!!! END OF STORY.

I had a doctor doing the EXACT SAME THING...there are more medications than the ones you listed and they can combine any number of medications to offer you a solution.

Secondly, I know this is not going to come across very pleasant....but you need to help yourself a bit dear, EDUCATE YOURSELF...so when you go into the doctor's office and they say something ignorant like "we've tried everything" you can say "no ma'am" or "no sir" and then promptly name a few other medications that they forgot....I call this ammo... Carry your medical records with you, also have handy a headache journal with the dates, times, symptoms of your headaches along with a list of your triggers and sleep patters....you need to arm yourself with as much info as you possibly can. These doctors need to take you seriously. you need to appear as strong as you can, so they know they are not going to push you around and get away with it! (I say this with all the love in my heart- I had to do the same thing) tongue

Take someone with you to your doctor's appts-someone who sees your suffering (mom, aunt, sister, brother ...a big burly man they definitely won't be tempted to push around)

ok....well, that is about the extent of my suggests regarding the doctor who was of no use to you....good luck and let me know who it goes!

Sara

Posted 4/11/2006 1:07 AM (GMT 0)
Hello all, Thanks for the advice all of it is greatly appreciated. With my husband being in the military I am not around my family members but, I will ask a friend to come along next month for my visit. Maybe that will help. I have been searching the internet on meds for migraines and will continue too. Thanks again to you all, and I will let you know how my next visit goes. I wish you all well.
Tracy
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