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can you all please tell me your migraine story

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Migraine Headache
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Posted 3/14/2007 5:05 AM (GMT 0)
I need some of you to please tell me your migraine journey story. Basically so my parent don't think that I'm the only one with migraines about once a week, and that nothing helps, and that we occationaly need pain meds to relieve the pain.

I want to print the stories off, and give them some other people who are experienceing the Hell we are going through.

Anything would be helpful.

Thanks

AngMichelle

Posted 3/14/2007 5:06 AM (GMT 0)
ps: My email is in my profile if that would be better for you
Posted 3/16/2007 2:58 AM (GMT 0)
I also had severe migraines, often several times a week, but at least 4 for 5 times a month and they can sometimes last for days at a time.  In addition, I have horrible headeaches and pain in the back of my head and neck.  This has become so bad that I literally have a headache ALL of the time.  I have tried too many medications to list and am yet to find one that works.  I do have to take pain medication as well as naseau medication to combat the symptons of the headaches.  I just had pressure point injections put in the back of my neck to try and get some relief.  My headaches are so severe that they have become debilitating.  My doctor had to take me out of work because almost any type of movement makes the migraines/headaches worse.  I was also recently hospitalized for 5 days because my pain was so severe.  All of this is not easy to handle as the single mother of an active 4 year old little boy.  I continue to hold out hope that my neurologist and I will find some sort of treatment that works.

Good luck with your parents!  Hope this helps!

Posted 3/29/2007 3:58 AM (GMT 0)
I have had migraine headaches for as long as I can remember now. I am 19 now. I have had them ever since I was a baby and I have suffered from seziures untill about 8 years ago. Lately my migraines have been uncontrollable and very severe where two weeks ago I had to go to the hospital two nights in a row to get treatment. I have tried numberous types of medication but nothing has seemed to relieve my pain. I have had two MRIs one when I had my last seziure and the second this past year. Both times nothing has been shown from them. I often feel week and useless. I am currently a college student, so my migraines have affected everything from work, to school, to my personal life. I was on a no estrogen birth control but too can no longer take that as it triggered some of the worst migraines i have ever experienced. I am in the search for new doctors and specialists because none of the doctors i have have seemed to listen to be or be able to help. To me my migraines dont occur in one spot like most people and they come without any warning. It feels like my brain is expanding and there is no where else for it to go. Often my migraines originate in my temples and move down to my neck. I have migraines almost all the time and they lasts for months. I recently had a strange migraine that started with a long lasting aura and basically parilized my face. I could not move my eyes and then it took over my mouth also. It then began to move down my neck, through my spin and then to my toes. It lasted for a couple of hours and all I could do was lay there doing nothing. I was in so much pain and extremely scared. I never heard of anything like that happening before during a migraine. If anyone has experienced something similar to what I just described please respond to this. I hope you can find something that will help you....as for me I will stay in pain until a specialist can figure something that will help me. I

Best of luck
Posted 3/30/2007 3:29 PM (GMT 0)
Hi tmoyes,

Welcome to Healing Well. Sorry to hear you are suffering in this way. You refer to a specialist in your post, are you seeing a Headache Specialist? The best person to diagnose what you are going through is a Neurologist who is a Headache Specialist!

Hang in there, take care

Ann
Posted 3/30/2007 6:29 PM (GMT 0)

Hi Michelle,

I'm 42 years old and have suffered from migraines my entire life, although I wasn't formally diagnosed until my mid-twenties. I never go longer than a week without getting one. I think I've tried just about every migraine med out there, both preventative and abortive. The problems with the preventative meds is that they either haven't worked at all, or they worked for awhile and then my body seemed to build up a tolerance to them. I also tend to be very sensative to the side effects associated with these drugs, especially anti-seizure meds. I've tried all the triptans out there for the pain, but they alway make the migraine worse for some reason. I'd be interested in hearing if anyone else has had this experience with them. The only thing that works for me is narcotics ( I currently take Percocet, 20 mgs of Oxycontin, and Demerol, never at the same time of course). I'm aware of how careful you have to be taking these drugs, because of both the rebound headache effect, and also the risk for dependency. Unfortunately they're the only things that work. For preventatives I take 50 mgs of Elavil and 20 mgs of Singulair. I am fortunate in that I've got a wonderful support system from my friends, co-workers and my husband. They all realize how painful my migraines get. One site that I've found incredibly informative over the years is MAGNUM (www.migraines.org). They have all the latest medical news, trial info, etc... Good Luck.

Kim

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