Relapse???

Yes, sounds like you are in the beginnings of another flare. It could be a continuation of the previous one. Steroids don't always work for everyone, nor do they work every time. Your doctor will be able to help you sort that out. Let us know how your visit goes!

  Hi all,

   went to the neurologist today and he says that I am having an active attack. My vision is really blurry and right eye is drooping really bad and it is as if i am looking threw a film. Dr says my vision in the right eye went from 20/20 to 20/70. He believes that i am forming new active lesions around my optic nerves so I have to have an MRI in the morning and then he will decided what treatment is the best option. Probably back into the hospital for the steroid treatment again.   Bottom line is I have to do what is going to make me better for my daughter. I just hate being away from her for more then a day...so depressing. I am hoping for the best news and maybe i won't have to go in, but won't know anything until the MRI is done. Just wanted to let you know and thanks again for listening to me vent on here. Only been on site for a few days and it really helps.

 

lindsay

Hi, i've been reading everyone's post for a couple weeks now and decided to say hello today and chime in on the vision topic because this was my first sign of MS (I actually had numbness and tingling in my legs a few months before but ignored it because it went away after a few weeks) I was officially diagnosed in July 05.  I spent 4 days in the hospital taking various test and on steriod IV.  I started Rebif in August.  My vision improved tremenously after a couple of months.  I understand the fear completely especially when you have young children (mine are 13 & 3) I had a second bout of ON exacltly one year ago (this time the left eye) so I was really frightened because now my vision is sometimes VERY blurry since i've had an onset in both eyes.  This second time I had IV steriods at home which had it's pros and cons.  I was glad to be home with my family but I have a very weak stomach so I would have preferred to have a nurse here everyday to start the next dose.  I had a nurse come in to start the IV and show me how to administer the next dose but I had a hard time flushing the IV and ultimately removing it after my third day (I don't handle seeing blood well).  The vision in my left eye didnt come back as well as it did in the right and I think that's because I didn't get the steriod treatment until about 8 days after the onset.  Two suggestions ... don't stop taking your meds (I stopped my rebif a couple months before this second relapse because I felt so good.  If it were not for the shots I wouldn't have thought I had MS) also try wearing shades they work well in keeping the light out of your eyes so you can see a little clearer.  I'm so glad I stumbled across this forum because it's nice to be able to relate to folks like you.  I don't know anyone who has MS so there's no one to really talk to who knows what it's like.

Dear Lindsay,

I am sorry you are flaring!!  That stinks.  I am sorry you have to go back to the hospital for that.  I was allowed to stay home with my steroid infusion.  I had a home health care nurse show up once a day for five days and it was all done at home.  The nurse just put in a port on the first day and then hooked me up each day.  She stayed with me for about an hour and a half then off she went.  I wonder if you could ask for that.  It seems like it would be much less expensive than a hospital stay.  Good luck and I hope the steroids work for you.

Mamaoftwo,

Welcome to the board.  I felt just like you; I was so relieved to "talk" to others who knew exactly what I was going through.  It is amazing how much better I felt when I knew I was not alone in this.  Again, welcome.

Love and prayers,

Lindsay,

Thinking of you, hope the vision problem gets resovled soon.I agree about the in home infusions,thats what i did for my son,I wasn't any good at flushing the IV.The nurse stayed for an hour or so.,,Some insurance companys would rather do that,that have you stay..Maybe you could ask.