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Multiple Sclerosis
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Posted 4/4/2008 6:29 AM (GMT 0)
Hello everyone,

I registered here several months ago when I was looking into possible causes symptoms I was having. Thanks for welcoming me back then. Since then, life has been hectic for many reasons but I finally am able to post again.

I had an MRI at the end of February and today I went in to the neuro for the results. His feeling is a probable case of MS based on clinical symptoms and findings in the MRI. I have several lesions on the brain and upper spinal cord. He is referring me to another neurologist in Vancouver who specializes in MS so I can discuss it further with her.

He is so very supportive and I feel very blessed to have been referred to him. He told me to make sure I call if anything new comes up that I want to discuss. He also told me that I should not be too quick to opt for the medication and that the other neuro would discuss that further with me. So now I will wait for the new appt and meanwhile just carry on as normal.

I look forward to being a regular contributor to this forum.

All the best :)

 

Posted 4/4/2008 1:39 PM (GMT 0)

Hey Calicorosie,

I am glad you have an answer but unhappy that it is probable MS.  I am also glad you felt he was supportive.  I am only concerned with one thing.  Why on earth would he recommend not starting a med therapy right away??!!  All current reserch says otherwise.  We MSers are told over and over again to get on a therapy and to stay on one. 

I see an MS specialist with the UCLA MS center and she got me on copaxone as soon as possible.  Just my thoughts though.  

I look forward to you posting!!!  You are always very welcome here.  Good luck and keep us posted!!

Love and prayers,

Posted 4/4/2008 2:50 PM (GMT 0)
Hey Calicorose

I'm so sorry to hear of u'r probable ms dx, but truely glad u are getting some answers. I know how hard limbo can be and sometimes i wonder if having any answer wouldn't be somehow better...tho ms is no walk in the park and i'd wish it on no one. I agree with Gretchen...why are u being told to not start on any of the meds?? I'm sure there must be some thinking behind his comments, but that seems a bit reckless for u. Maybe he wants u to wait because it 'probable ms'? I'd certainly be discussing this with the new neuro and in the meantime be doing some research on the meds on my own.

It's so good to see u back here friend and i hope to see much more of u. Hang in there and do just as u said...continue on as normal. Take good care.
Posted 4/4/2008 3:29 PM (GMT 0)
Thanks so much for your replies :)

I am trying to get my head around it all right now. There is so much for me to think about and to learn. I am definitely going to be talking to the new neuro about meds. I think that possibly, the neuro I have seen already was just trying to let me know that meds 'may' not be necessary at this point. If anyone can give me some names of usually prescribed drugs for MS that I can read about I would really appreciate that :)

Well, time to get the youngest off to school.

Take care and thanks :)
Posted 4/4/2008 4:40 PM (GMT 0)

Hi Calicorosie,

 

I’m sorry to hear about your possible dx. Hang in there, and give yourself some time to adjust. Here is a link to info on the MS meds:

 

http://www.nationalmssociety.org/treatments

 

Please feel free to ask any questions and let us support you in this stressful time, and we will try and help you out as much as possible.

 

Sunny

Post Edited By Moderator (rhondab) : 4/4/2008 11:33:09 AM (GMT-6)

Posted 4/4/2008 9:32 PM (GMT 0)
Thanks for that link, Sunny.

Calicorosie,

I can't imagine why a doctor would say that meds may not be necessary. Again, that is not what the research is saying. Please know that I am not saying this to be confrontational. I just want you to know what researchers are saying. I want you to be able to have the best chance possible at keeping your abilities and that ususally means a med therapy to slow down progression.

Make sure you discuss this point at your neuro appointment. If, after doing some research on your own, you are interested in a med. therapy, make sure you express that. This is your body and you have the right to manage it how YOU see fit.

Again, the best of luck to you!!! Keep us posted.

Love and prayers,
Posted 4/4/2008 9:43 PM (GMT 0)
Thanks everyone for your concern re: the meds.

I will definitely be doing research and discussing it with the other neuro. I am the kind of person who will take meds if it could possibly help.  You know, the way my brain works lately, I could have totally misunderstood what he was saying to me too LOL I was just back from a trip to Los Angeles with our youngest son and was really tired when I went for the appt so that didn't help at all :) I didn't get the impression he was trying to discourage me, I think he just wanted to make sure I made the right decisions for 'me' if that makes sense ?

I didn't think you were being confrontational Gretchen, I appreciate your concern very much :)

 

Posted 4/4/2008 9:44 PM (GMT 0)
Also, thanks so much Sunny for the link. I will read it this evening when I have some quiet time.
Posted 4/4/2008 11:22 PM (GMT 0)
Oh man!!!!  You were in Los Angeles???? That is only an hour from me!!!!!  We could have done lunch!!!!

Love and prayers,

Posted 4/5/2008 9:07 AM (GMT 0)
Yes we were there for a few days but actually in Studio City. It seemed easier to just say LA LOL
It was a wonderful visit. I'll let you know if we will be back again :)

Take care
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