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New ms dx & getting annoyed with blurred vision

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Posted 3/29/2008 5:14 AM (GMT 0)

Hi everyone!  I was just diagnosed on March 19th with MS as a result of optic neuritis.  I lost the vision in my left eye completely on the 17th and had high dose steroid infusion for 5 days (with 5 pokes later -- deep veins and they get even deeper at the first sign of a needle).  My vision is back about 85% but my eyes feel like they're fighting with each other to get focussed.  I feel like I've had way too much to drink because my mind is cloudy and my balance is off a bit (who needs alcohol when I have the effects without the next day hangover??).  I'm getting tired/annoyed of the blurred vision and I'm not sure what to do.  Any suggestions would be greatly appreciated?  -- Melaney

Posted 3/29/2008 6:08 AM (GMT 0)

Hey Melaney,

Welcome to the board.  I am sorry to hear of your recent diagnosis.  Hang in there, that eye stuff usually gets better.  I have had terrible vertigo in the passed and it has gotten better over time.  I deal with it still but it is at a real managable level. 

I am certainly not an expert, but I have heard that the optic nerve can be quite good at remyelinating.  Are you considering any disease modifying drugs???

Again, welcome to the board and I hope you feel comfortable asking questions.

Posted 3/29/2008 10:25 AM (GMT 0)

Hi, Melaney,

I'm so sorry about your diagnosis..but glad you're reaching out, and hope you find help and support here!  Optic neuritis often takes awhile to clear up, even after the steroid treatment. Over time the blurriness will usually fade away but there really isn't much you can do to hurry it along.  I'm sorry!

Posted 4/9/2008 5:01 AM (GMT 0)

MJB,

I also am new to the forum.  My end of the year and new years was spent in the hospital outpatient getting IV therapy treatment for my vision problems.  Only one poke, as they wrapped the IV port thing so I would not have to be poked each day.  I was then put on oral steroids for two weeks (my skin looked SO good), then two more weeks.

 

It’s been months and my vision has not returned 100% either.  I still have problems with darkness, haziness, and peripherally (sometimes pain if trying to look out the corner of my eye). eyes  

 

I try to lessen issues by not reading as much and increasing the font whenever possible. 

Here’s hoping that our vision improves SOON! yeah

Posted 4/9/2008 3:06 PM (GMT 0)
four years ago, that was my first symptom, that went away after a month. I had double vision in one eye, and walked around for a month with one eye closed. Silly and annoying.. When I went to the eye specialist, he said I had experienced nerve damage, and that it would heal on its own.

This is the part that has always bugged me. Nerve damage- how, and would that not be a major clue to someone in that field of expertise, that something might be going on?

After that of course were other things that were happening, to the tingles to the numbness, etc - and again, and I am only guessing, but when you combine all of these things together, does it not begin to spell out something that needs to be investigated - other than "you have lots of anxiety"  I did not know that anxiety could cause nerve damage to the eye...

Sorry, just ranting here, but over the last couple of months I have been really thinking alot of the events that took place, all the clues that were on the table, and still, no one seemed to take the bull by the horns and say...mmmmmm this looks like lupus, or lyme disease, or MS..... I personally just don't get it!

Sorry for the rant,

Gary

Posted 4/9/2008 4:31 PM (GMT 0)
Optic Neuritis was one of the first symptoms that I had in January 2006. I did find it very annoying. It seemed to clear up by itself after a month or so. At the time I hadn't realized that the vertigo I had in the summer of 2005 was probably my very first sign. I had ON again in recent months but this time it didn't last as long.I feel like my vision is pretty good now but I doubt it is 100%. There is something about not being able to see properly that is just extremely stressful and tiring. Hang in there. Best wishes.
Posted 4/14/2008 1:13 AM (GMT 0)

It's been a very busy couple of weeks so that's why I haven't posted any replies.....my husband and I are in the process of adopting my 2 great-nephews!!  Thanks for all your wishes and letting me know that I'm not alone and that my vision should be straightening itself out soon!!

Gretchen!, I'm currently not on any meds yet.  I have a meeting with the medication specialist this Wednesday to figure out which one fits my lifestyle.......the husband is coming with me because he's going to have to learn how to give me the injections until I get brave enough to do it myself......sure can't wait until oral meds come out!!

Hope every one is doing well!!!  My thoughts are with you all!

Melaney

Posted 4/14/2008 3:20 AM (GMT 0)

Wow you are adopting your g-nephews!!!!  How exciting!!!

Good luck with the med specialist.  The shots are not that bad, really.  It does take some getting used to it but you will find that you are stronger and braver than you give yourself credit for.  It is great that your husband is so supportive.  Mine goes to all my appointments.  Let us know how that all goes for you.

Love and prayers,

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