tgr4lfe said...
Hello everyone, I am new on here as well, but already feel encouraged. I am in the "limbo" stage and have been since 2003. I have suffered chronic headaches which started the ball rolling. after 3 MRIs 2 lumbar puncutres and 3 Neuros they still aren't sure. I go for and OCT exam next week and an EPT exam the week after. The only definitve answer is that there are over 40 liasions. I have started seeing light flares after the shower and having trouble thinking, concentrating, and articulating my words. I have suffered some temporary blindness in my right eye lasting for 8 hours. But still nothing definitive on a diagnosis. I feel completely frustrated! I just want to know "yes" or "no" so that I can confornt it and move forward. Thanks for the encouraging words and the openess of eveyone sharing your stories it gives me hope that eventually they will decide.
I started a new thread for you so you would be seen by everyone. Welcome to the board. 40 lesions is impressive!!! I hope you get some answers soon. How are your 3 neuros explaining all of this?? I am glad you found us. You will find everyone here to be very supportive. Please feel free to post and ask questions.
Love and prayers,