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Posted 8/21/2008 7:00 PM (GMT 0)
turn  I'm glad to have found a place where I can discuss my issues with MS where people that don't have it won't understand.  Although this October will be 10 years since first diagnosed, I still feel like no one understands, or they don't want to understand.  If you see me walking down the street you wouldn't know unless I told you.  The problem is that, when you are around loved ones and people who know you and you tell them you are in pain, tired or just simply not feeling "right" they tend to not relate to what that means nor feels like.  Today, right now as I type, I am feeling so, so tired.  I feel like I need about 20 minutes to just lay down. 

 

Anyway, I am glad you guys are here and I in return are here for you all.

Posted 8/21/2008 9:58 PM (GMT 0)
Welcome gemini.  I think it definately helps, when you can talk about these issues with people, who also are dealing with similar problems.  I was just DX in May, but me and my nueros all agreed  ive had it since 2001, as i had ON and an attack that only lasted 3 days.  I surely know about being tired, till i recently started taking provigil for the fatigue.  Works great!  I also have this spray, that you spray under your tongue, its mostly B12 and niacin, that seems to give me a nice dose of energy.  Its sold in gas stations/wallmarts etc.  GL with everything.
Posted 8/21/2008 11:43 PM (GMT 0)

Hey thegemini,

Welcome to the board.  I am glad you found us.  I was reading today that MS fatigue is unique to MS and that it is the number one symptom that MS patients complain about.  So you are in good company if that symptom is bothering you.  So many of us here have expressed that whole "I have that too" syndrome that occurrs when you make the mistake of sharing your symptoms with someone who doesn't understand MS.  We have a live chat on Monday afternoons.  I hope you will join us.  It takes place at 4pm pacific, 5pm mountain, 6pm central and 7pm eastern times.  Just log on and click on the word "chat".  It is is the blue bar above and to the right.

Posted 8/23/2008 8:31 PM (GMT 0)

idea  Hey Gemini,  Welcome to the board.  I know exactly how you feel.  The public does not know I have MS unless told.  People do not get that I am so hot from doing nothing and I can't stand to be in the sun etc.  And, I think to myself or say you people just don't get it!  They say they are hot too but, I am SO hot.  Up until 6 years ago the heat never bothered me anywhere as much as it does now.  I was in the sun alot before.  After about 14 years with MS is when the heat problem started for me.  I"m fairly new to this board as well but, I can tell you it is a wonderful place to come and air out your thoughts, issues, and problems.  These folks here understand because they are inflicted with some of the same things we are.  I wish I had found HealingWell along time ago.  Again, "WELCOME". 

Posted 8/23/2008 10:09 PM (GMT 0)

Thank you so much for your reply.  It feels so, so good to know that there is actually a place where I can came to talk about issues that the average people would not understand.  I also wish that I would have know about this a long time ago when I was facing certain sitautions.  I made decisions based on what I felt was best for me not looking at the fact that my MS might have played a role.  However, since MS is a part of me until.....maybe I did make the right desicion?  Will never know.  I'm faced with other situations now that I still cam't get one to understand.  As long as I have you all to talk to, it should be easier for me.

Again, thanks and I look forward to many more chats.

Posted 8/23/2008 11:19 PM (GMT 0)
Sure, Gemini!!!!!

I am here.  Not all the time but, I do check in often daily unless I'm busy.  Alot of others are here to help as well.  Meds for MS were not available 20 years ago.  I started on Rebif going on 5 years I think.  LOL  Well, hope to chat with you soon.....I am hoping to be to the chat Monday night.  There is also a chat for chatting about any old thing.  It is on one of the posts.  Talk to you soon.  yeah   

Posted 8/24/2008 1:34 AM (GMT 0)
Welcome to to the board Gemini! It really makes a huge difference talking to people who know hw you feel. Glad you found us!

Lynn  wink

Posted 8/26/2008 7:11 PM (GMT 0)

rolleyes  Hi Gemini~~Where have you been?  If you need someone to talk too, me and the gang are here.  I have an email addy if you wish to have it, if you want to chat to me more often.  We can chat thru the week on the MS chat room if we leave each other x's to meet.  I'm from Pennsylvania.  Where are you from Gemini.  You and everyone are welcome to chat with me anytime as well.  I give G an email here and there when I need too.  She is the first person I met on HealingWell.  She is very awesome along with everyone here.  I just can't say that enough.  yeah

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