I have been feeling very discouraged lately. I have been off rebif for 19 days due to elevated liver enzymes and at first felt much better. As time goes by, some things are much improved like the shakiness and vibration feeling and less burn (neuropathic pain) in my feet. Some of this is 60% better. However some days feel like I never went off rebif. I feel like every day is a struggle, then I will have a couple of days where I feel better and just as my spirits lift...BAM....this darned disease tells me..."sorry but I am still here". I have tried everything from working with less patients at the chiropractors office to rearranging my private practice schedule when I feel worse. I have tried doing everything when I feel good or bad or doing nothing. The only time I feel I make some head way is when I don't have any stress to work or be anywhere and can take all the time I need to do whatever I need to do. Then if I feel bad I just stop. I also know that I will probably be starting back up on some form of DMD soon. Now that I have gone on and on my question is how did some of you feel and what finally made you decide to apply for disability? Anyone that has any input, I would really appreciate it. Thanks so much for the support. I hope everyone had a good new years.
Cindy