Palinopsia

To Nerogurl,

Yes I have Palinopsia....but has not (still) been positively diagnosed with MS. I have an awful lot of symptoms though and guess it only is a question of time. I have also suffered 2 seizures 13 yaers apart.....among other elictric stuff.....hang in there.....more and more professionals know about Palinopsia now a days!!!!

Feelinghelpless,

I am very sorry to hear of your daughter's problems.  I hope she is feeling better very soon.  I wanted to point out that it has been quite a long time since this thread was started (about a year and  half).  Neurogurl might not respond.  She last posted about six months ago on another board. 

Again, I just wanted to offer my support and wish you the very best of luck.  If she has had an MRI then it seems improbable that she has MS.  You are, of course, welcome to ask questions.  I am not sure anyone here can help much.  Palinopsia is not common and I am fairly sure that we don't currently have any members experiencing this.  You may want to post on the Lyme Disease board.  I seem to remember that there were members there that had discussed this before. 

 

Neurogurl said...
Hi Gretchen,


This actually was very helpful..and I thank you. I definately don't use illicit drugs haha. So for you it was only a couple on months before you get a diagnosis huh. Im curious to know if there is anyone out there who has ms but it took doctor's more than 2 years to figure it out. Do you know any cases like this or anyone out there reading this that this has happened to?

Neurogurl, writing this only to see if it helps..They (Dr.) felt I had MS, but the spinal did not work out...

I had the visual problems, the biggest was the double vision... one on top of each and the palinopsia the repeated or what I called lingering vision... it took 11 years before the dX was given by 4 different Dr.s....that I had MS...Thing would come and go, but everything was fine, as long as I did not get out in the heat, hot shower etc..Then I had a heart attack and it brought it all to head... It has been told to me that there was nothing to help me back then... so I still have it, and it has progressed to Sec. Progressive MS
I wish you well, more than the problem, is getting treatment..(but that takes diagnosis )
.

hey guys here's a link to a post outlining how I cured my palinopsia: https://www.tapatalk.com/groups/thosewithvisualsnow/pin-this-post-how-i-cured-my-palinopsia-visual-sno-t8544.html