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Posted 6/15/2009 12:44 AM (GMT 0)
does anyone who has experianced the ms hug ever gotten really bad indegestion from it???
Posted 6/15/2009 2:24 AM (GMT 0)
Hey Jenn,

I am sorry, I don't have a lot of experience with the MS hug.  I have never had it.  Good luck.

Posted 6/15/2009 10:58 AM (GMT 0)
Hi, I have had the hug, now I am not diagnosed but they listed me as probable...whatever....I do get the squeezing feeling and it is painful. I have had it around my diaphram and thought I was having a heartattack. I do sort of understand the feeling of indegestion but I just associated it with the hug feeling. It goes away by itself, although sometimes can take awhile. Hang in there and smile...Beannie
Posted 6/17/2009 1:59 PM (GMT 0)
before my ms diagnosis, the gastro told me what i now know to be ms hug, was from GERD irritating various nerves running through the area.
Posted 6/19/2009 12:20 PM (GMT 0)
Oh yes, I've been hugged by MS. Not in the past year though.

One time ,before being diagnosed w/ MS about 3 years ago I was outside,just picking at gardens and got the hug and it was so bad my husband took me to the ER. We thought I was having a heart attack. I was dizzy,sweaty, sick to my stomach and had bad jaw and chest pain. I was admitted and they did a heart cath, but it was normal. I was told that I was having pectoral muscle spasums and nothing serious. I have had these hugs about 8 times over the years, and I never know now if it is hug or heart. I was told they feel much like a heart attack. Anyway, I also have GERD, but so long as I stay with a low fat diet I do fine, no meds for it.

Hope this helps. MS Hugs are horrible,I would hate to see someone just ignore them though, cause you never can be sure when it could be a heart attack, my MS doc told me that I should always get it checked out if it ever happens again. Better to be safe than sorry!~Kate
Posted 6/19/2009 12:22 PM (GMT 0)
OH....AND I always had indigestion w/ my hugs. My Doctor said the intercostal muscles contract when I am being hugged so,perhaps that is why?
Posted 6/20/2009 1:17 AM (GMT 0)
whatever i have is not as bad, somehow it coincides with the leg cramps, they tend to be bad at the same time. For about 3 or 4 days i got the bad pain--like someone was squeezing my ribs and really bad heartburn and acid reflex, it came in waves (no i am not pregnant...LOL). I never get heartburn, let alone this bad a case, it was there all day and night, despite not eating anything, and nothing seemed to help, its better now, but i still get a cramp here and there about every day :(
Posted 6/24/2009 6:42 AM (GMT 0)
Hi there. Just quick as it's late. I have an MS hug that comes and goes... often feeling it... but never intense or painful. Just feel like I always have something around my stomach. The way I relate it to other people is that it's like I've had a life jacket on, and when you take it off, you still feel like it's there. But nothing painful or indigestion feeling. lol... guess this is not what you asked? :-)
Posted 6/24/2009 7:51 AM (GMT 0)
Hey there,

Though I never have had that nasty sounding MS hug I have had intensely painful spasms in the leg & up the spine. I could not sleep, sit, stand or walk without these spasms. Since I got a baclofen pump last year I have no more spasms and no more pain. Its bliss! But it got me thinking. I wondered if any of you who have experienced the MS hug take baclofen? Maybe oral baclofen would prevent it?

Remember if it gets too bad there is always the pump I am sure that thanks to its control of the spasticity I should (hopefully) never experience that nasty hug.
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