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PCP ordered MRI and now being sent to Neurologist?

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Multiple Sclerosis
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Posted 9/29/2009 1:17 AM (GMT 0)
Hi everyone...  I normally hang out with the Fibro Group, as I was diagnosed recently.  Today I received results that the MRI of my head needs to be evaluated by a Neuro.  It worries me, because I have begged for an MRI forever and finally received one.  My mom has MS and I just have a lot of symptoms that have me worried.  I have a funny feeling.

I know that it's silly to jump to conclusions or to even dwell on what it COULD mean, however, it's impossible for me to simply let it go.  My breast tissue was just biopsied due to a suspicious mass.  They said no cancer, so surely my luck couldn't be that good to pass two tests with flying colors.  Ok... I'm going on and on like a crazy person. 

Would I be going to a Neuro if there weren't any lessions?  Why esle would I need a Neuro for an MRI?

The ironic thing is that I'm estranged from my parents.  Not my mom so much, but I suffered abuse from my Dad for so many years that I recently cut him off.  He takes care of my mom now (if you can call it that)... he has a temper with her as well.

I'm getting off track.  I'm just afraid.  I'm a single mom of two girls.  My ex left me because of my recent wait gain and I believe he feared taking care of me later in life.  The thought of having MS really freaks me out as I'm sure you can all relate to.

Thx for any help you are willing to give.

Posted 9/29/2009 5:32 PM (GMT 0)
I am so sorry you are going through this tough time alone.  Unfortunately you will just have to hang in there until you see the neurologist.  Even if you are going because your MRI showed lesions, you will still have to go through more tests before a definitive diagnosis can be made.  Just remember, the thought of MS can be scary, but for many people it is a disease that slowly progresses over time.  That means that you still have time to raise your girls and figure things out, it's just going to take a little more effort.

I can sympathize with your situation, in fact our situations somewhat mirror each other.  I have been diagnosed with MS, and am now beeing seen by a rheumatologist who thinks that I may have fibro, and my mom also has fibro.  I am not a single mother, but my husband is in the military and travels quite a bit, leaving me with our four kids to take care of. 

This is a rough road, but you can do it.  Try to look for the positive things in your life, though they may seem few right now, and don't let yourself get discouraged by the 'what ifs.'  

P.S. This forum isn't as active as the Fibro one, so you may have to wait a day or two before receiving a response.

Posted 10/6/2009 4:02 AM (GMT 0)

I finally received the MRI report.  The impression reads as...

Several, 5 mm and less, nonenhancing abnormal signal foci within the deep white matter tracts in a fairly symmetric fashion.  This is a nonspecific finding but most commonly due to gliosis from prior ischemic events.  Other considerations include migraine sequela, demyelination, old trauma or infection, or very unlikely metastasis. 

I saw my doctor tonight and she's leaning towards MS, because of the other symptoms I have told her about (vision trouble, tingling, numbing, sluring speech, etc.) 

I'm a little more concerned after talking it out with my Doctor. 

Posted 10/7/2009 12:09 AM (GMT 0)
Hi there.  I hope your doctor's appoitment goes well.  It all sounds suspicious for MS except the symmetrical part.  Usually there is not rhyme or reason to the MS lesions.  Mine are not symmetrical at all!  I have clusters and then clean spots etc. 

It is very common for someone that has MS to have been diagnosed with fibro first.  I don't know why that is.  I am not sure if the fibro is a misdianosis or if it is just common with MS.  Let us know how you are doing.

Posted 10/7/2009 1:21 AM (GMT 0)
Thank you for the responces. I'm sure you recall this period of waiting to see a Neuro and waiting for an answer to what is wrong with you. I had to leave work today, because of a migraine I've had for days. Nothing is cutting it and I'm so sick from it.

I know there is something wrong and not to deminish Fibro, but it's not just Fibro. I believe that I have Fibro... I have every symptom, but there is more.

I always find comfort here. I am never told I'm being silly or made to feel I'm over reacting. Thank you so much!
Posted 10/7/2009 3:59 AM (GMT 0)
Tulip,

I hope you don't have to wait too long.  I was very lucky (seems odd to say) that I was diagnosed so quickly.  I was in limbo for exactly 8 days.  I was originally misdiagnosed with a small stroke.  When I had another incident of stroke like symptoms, that is when they found a second lesion and I was back to the diagnostic drawing board.  I was hospitialized twice due to the severity of symptoms and I presented very typically.  After a lumbar puncture, and with the MRI it was pretty much a done deal.  They ran evoked potentials as a confirmation.  That got me my diagnosis with a second opinion three weeks later. 

I hope you get answers as soon as possible.  Good luck and please let us know.

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