Posted 5/10/2012 4:52 PM (GMT 0)
Hi everyone:
I usually post in the Crohn's group, but thought I would post in the MS group. I have severe Crohn's Colitis. Long story short, I have exhausted all meds and I am scheduled for my first Tysabri infusion on Tuesday. I did take the PML blood test and it came back negative. I am still terrified to try this drug due to the PML. Does anyone in this group use it for MS? Nobody in the Crohn's or Ulcerative Colitis groups seem to use it ... too scared. Or at least it is never mentioned there. I just wanted to get your perspective on Tysabri because I know it is heavily used for MS.
Thanks for your input and good luck to everyone! Thanks, Debbie