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start of 3rd year of tysbari

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Posted 6/11/2012 10:19 PM (GMT 0)
today started my 3rd year on tysabri...had an mri last week and everything looked good so tysabri is working for me...not even thinking about pml right now....after having 3 accute exacerbations it is a relief to finally have things under control...still waitin for a new oral to get fda approved but not sure if my insurance will cover that....since i have been stable for 3 years no ms worries right now thank goodness....so to have rambled just needed to share....barb 
Posted 6/13/2012 11:32 PM (GMT 0)
Barb! I can't believe it's been 3 years already! I am so glad you are doing so well! Keep up the great work!
Posted 6/14/2012 12:22 PM (GMT 0)
The new MS pill has been on the market for about 2 years now. It's called Gilenya. Is that what you are talking about? congrats on Tysabri!!!!!
Posted 6/14/2012 10:28 PM (GMT 0)
I think Barb is talking about BG-12. It's the oral med that is probably next to be approved. There are several other oral meds in trial as well. BG-12 touts fewer dangerous side effects that are identified with Gilenya.
Posted 6/16/2012 11:14 AM (GMT 0)
good to know! I didn't know of any other oral medicine, thanks! My Neuro. never told me
Posted 6/18/2012 1:12 PM (GMT 0)
yes gretchen bg-12 is the one...it could be approved by march 2013...then we take it from there to see about the insurance.the 3 years really did fly by.....an oral would be much better to take but either way i am enjoying no flare ups..barb
Posted 7/2/2012 4:38 PM (GMT 0)
gimp79- can I ask...where you on disease modifers that didn't work and that's why the put you on Tysabri? I can't convince Doc to put me on it. Copaxone works well,however, I now have Crohn's Disease and can't go on diease modifers for that b/c of MS....Thought Tysabri would kill two birds with one stone so to speak
Thanks and Congrats!!!!!
Posted 7/2/2012 8:05 PM (GMT 0)
Hey there, Nurse. Barb was on other treatments......but I can't remember which one. Copaxone perhaps?? She doesn't post often. I hope she pops in and sees this. I think doctors are concerned with the risk of PML. That risk seems to increase after a couple of years. Tysabri is a miracle drug for many and a death sentence for a few. The problem is no one can predict who will do what! Tysabri seems like it would be a reasonable option for you!
Posted 7/7/2012 8:46 PM (GMT 0)
Yes I think they will probably pull it from the market b/c of the PML. MS is stable the Crohns is bad. Knowing my luck, I would end up with PML or JC antibodies (people have ended up with them too.) Thanks Gretchen1 Ive had MS since 1999
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