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Symptoms and MRI ... Does this sound like MS to you?

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Multiple Sclerosis
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Posted 7/8/2012 3:28 AM (GMT 0)
I have been having lots of parasthesia (I do have type 2 diabetes as well) but this has been horrible for weeks now!  I also get severe sharp pains in my head, face, and even in my eyes at times!  I have a stiff neck which cracks and pops often and balance / walking issues.  I haven't fallen yet but I have come very close!  Yesterday while eating lunch, I abruptly dropped my fork because my hand suddenly went numb!  Also, on the way out of the restaurant, I lost my balance and almost fell as I was reaching for the door to go outside.  I also experienced a weird buzzing / vibration type feeling in my right ankle and heel of my right foot.  I have weakness in my hips and legs and often times feel like my entire body is pulling towards the left! I am also constantly having to stop and think for the words I want to say, or I stutter to get a word said or I use wrong words without even thinking about them. 

I am seeing a neurologist and had an MRI done on my brain and spine last week.  I called the office for a preliminary check to see the results and all they could tell me what that I have white matter spots on my brain and also a mild bulging disk in my spine.  The rest and details, I will have to wait to get from my neuro at my appointment which is this Tuesday (10th).

I am a 47 (48 next week) year old white female.

Thanks!

 

Posted 7/18/2012 3:47 PM (GMT 0)
Catmommy,

What did you find out at your neuro appointment? Hope things are better
Posted 7/18/2012 4:51 PM (GMT 0)
Thank you for asking!

The neurologist said that the spots were in the frontal lobe, not the central area and also did not look like active lesions.  She wants to do another MRI in about six months so she will have something to compare.  I had never had a brain MRI done before, so there was no way of truly knowing how long the spots have been there!

My walking was worse again at this appointment so she did get to witness that!  She said she still has not ruled out MS but cannot diagnose it at this time since she only has the one MRI and it wasn't really conclusive for MS.  She also gave me a prescription for Topomax for migraines but I have not taken any of it yet.  I'm not convinced that my headaches are migraines because they are not always on the same side of my head or even in the same area of one side!

The most conclusive results I got was that my Vitamin D is SEVERELY low!!!  Low is considered from like 25 to 50 or so and mine was only 8!!!  So, I am taking a RX for Vitamin D that you only take once per week.  Don't know if it is coincidence or not but I have felt so much better just after the first few days of having the 1st pill in me!!!   Coincidence you think or truly an effect of getting more Vitamin D?  Whatever the case, I know that from now on I am going to keep a check on my levels!!!

So, basically don't know a lot more as far as what is causing my symptoms but I"m thankful to be feeling quite a bit better these past few days and walking MUCH better again!

Posted 7/18/2012 10:17 PM (GMT 0)
I'm glad to hear that you are on your way to answers and I'm especially happy to hear that you're feeling better with D3 supplements. D3 is the only supplement that I can actually feel. I can tell when I have gotten lazy and haven't taken it. Apparently D3 is very important for neuro transmission.
Posted 7/18/2012 10:43 PM (GMT 0)
hey,im 38 and iv had blood work done and everything came back fine.my body hurt to touch.iv been having these shakes and sometimes a cold chill will come with it,and sometimes not.i have a funny feeling in my head as well somethimes.i will have one and then another will follow sometimes. i went to the moves and in 3hrs i had alomst 20 of them.it doesnt matter where im at i could be in line at walmart or sitting at home.im not cold when i have them at all
Posted 7/18/2012 11:30 PM (GMT 0)
Gretchen ... thank you!  How long had you been having symptoms before you were diagnosed with MS and what type of symptoms were you having?


Thank you for any information you can share!

Kim

Posted 7/19/2012 4:09 AM (GMT 0)
Hi Kim,

I was diagnosed very quickly. My presenting symptom was severe vertigo. Over the course of 3 weeks it worsened until I was wall walking. I was hospitalized for a few days. That got me started. I received brain and spine MRIs, a lumbar puncture, evoked potentials, blood work and multiple neurological exams. It took about 5 weeks to get an initial diagnosis. I was then sent to an MS clinic for a second opinion which also concluded MS.
Posted 7/19/2012 2:02 PM (GMT 0)
So, Gretchen, I assume then that they saw active lesions on your MRI? My issue is that I had a bite on my belly 2 years ago and within a few weeks became very symptomatic. I was treated for Lyme Disease and stayed on antibiotics for about 5 months until I just got enough of taking them! After that I was pretty good except for a few random muscle twitches off an on but basically felt FINE for 2 years. Then a few months ago (at the beginning of Spring) I got another tick bite ... this one I saw on me ... and became symptomatic again ... exact same symptoms. My Lyme doctor tested me again and I was negative and also the tick was negative so he was puzzled by my symptoms. I know that Lyme and MS can have very similar symptoms but I was left feeling "doctor-less" and scared by the balance problems and issues with my walking, so I began seeing a Neurologist. Of course, the very first visit, she laughed at the suggestion that it could still be Lyme (as Lyme people had warned she would) so I shut up about it. I am so stuck with not knowing what I have and who to believe! :(
Posted 7/19/2012 7:20 PM (GMT 0)
Oh yeah, you are stuck between and rock and a hard place. A neurologist may say MS and a Lyme doctor is going to say Lyme. You may have to decide which you think should be treated and go by results.
Posted 7/19/2012 8:12 PM (GMT 0)
Exactly! I do know that my Vitamin D was EXTREMELY low at only 8, and since I started my RX of Vitamin D ... I have felt SOO much better! My balance / walking is basically normal again and my pains are nearly gone as well! I guess I will make sure to keep on the Vitamin D and just

hope and pray that nothing else happens or gets worse again. *sigh*
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