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Posted 5/8/2007 12:03 AM (GMT 0)

Hello to you all

 

Just want to get your opinion on my latest visit to the neuro doc

and she said she thinks I have neuropathy.  I have looked this up but i guess

i still don’t really understand, is this then my diagnosis or still wait and see.

Is this something that gets cured or goes away or is part of another illness.

 

Don’t you have neuropathy with MS ?

She said that 50% of the time people with neuropathy have diabetes but i have had all the tests and don’t have that.

 

Thanks guys

 

Barbie

 

Posted 5/8/2007 12:16 AM (GMT 0)

Neuropathy is basically nerve pain, cause unknown...or sometimes, cause known but not cureable. This is sort of a first step. The next step is to try to figure out what is CAUSING the nerve pain. If not diabetes, then what?

Probably a "wait and see" diagnosis...but the meds to treat neuropathy do exist, and work well for at least some folks. So you should ask about them if you're really uncomfortable.

Posted 5/8/2007 2:39 AM (GMT 0)
Neuropathy is common with autoimmune malfunctions.
Posted 5/8/2007 8:31 AM (GMT 0)
Thanks uppity and mmmnavy

That makes sense.
so I guess I will still be hanging around in limbo here for a while.

Barbie
Posted 5/8/2007 10:59 AM (GMT 0)
Yeah, you probably will be. :( My regular doctor told me after about one visit that I had neuropathy. But after some testing- blood work, EMG/NCV tests, a check for diabetes, visit with a PT- she sent me to a neurologist. I really don't think I'm any closer to figuring out what's wrong with me. I've been tested for most of the nasty stuff- Lupus, MS, cancer, etc.. They *can* seem to tell me (only after my second MRI) that I have some degeneration in my c-spine.. and a mass in my thyroid.. but that's about it. Not even an episode where the left side of my body went numb, has brought them any closer to a diagnosis. They've got me written as having something called "Polymyalgia Rheumatica", but that is typically diagnosed in people over the age of 50. I'm only 32. tongue My next step is to see an allergist tomorrow, and then Thursday I go see a Lyme doctor in PA, to rule out chronic lyme. If all this fails, I'm probably headed to a rheumatologist. redface

Been in a rush this morning and forgot to add that I hope you do find out what's going on much quicker than most do. Maybe it's possible to just have "neuropathy" and that's that. However, I tend to think dr's really need to look deeper. WHY do you have the issues you're having? They need to rule other things out first, IMO.
Posted 5/14/2007 5:27 PM (GMT 0)
Sylvie74,
Popped on here to see 'the form' and your post is - ME! I've been there and done that and still nowhere near any answers.
I too have periferal neuropathy and so does my identical twin. She has PD and I tested pos for that but they dont think I have PD.
I have crohns which is an autoimmune disease too.
I didnt think neuropathy meant 'nerve pain' it actually means lack of sensation, I think.
Funnily my left leg and right arm have both gone numb on several occassions but not in quite a few months and I donno why!
I have cysts in my thyroid which is also small and Ihave hypothyroidism.
This is all 'nightmare' stuff. Isnt it?
My walking is GRIM. I judge 'progress' by how far I can walk on my wheelie frame. I now can do about half a mile and thats only since I was put an PD drugs. Its like dragging rocks.
The sinomet has dont nothing for the jigs and jerks and shaking and the insomnia.
Oh, I passed my driving test last week - first time at age 54! Only been driving 18mths, not bad eh? Beat my young nephew who took 4 goes before he got his.
xx to all here, keep going, humour is the best medicine, for sure!
Ann
Posted 5/14/2007 9:47 PM (GMT 0)
Hi Barbie,
Sorry you are having a bad time. I found the following site easy to read and very infomative. Also it is updated frequently. Hope it helps. Dale

http://www.nlm.nih.gov/medlineplus/ency/article/000593.htm

(Just made u'r link active.)

Post Edited By Moderator (rhondab) : 5/14/2007 4:03:57 PM (GMT-6)

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