Does anyone experience this type of pain?

Hi Cecilia,

I know exactly what you mean. I get this too....like my other symptoms it is pretty sporradic...it comes and goes for no apparent reason, and occurs in all different places on my body.

Not sure whether it has a name, or a cure unfortunately. Mine is uncomfortable but not severe....yours?

Kas

Hi Cecilia -

I get this alot on the back of my left thigh/butt cheek, as well as on the back of my neck. It does feel like a sunburn or 'indian burn' as you describe it.

Lysha -

I get this type of burning also, like you have run a couple miles or the 'wall squats' that you had to do in gym or sport conditioning in school, but all you did was just walk up the stairs.

My neurontin takes care of both of those, I'm up to 300mg 3X's day.

Hi Cece,

 

   Yes it is a type of neuropathic pain, and the technical term is called dysesthesias if you want to look up more about it.  It's probably one of my husbands worst symptoms and he has in the arms and legs mostly.  We haven't found anything helpful medication wise, but some people do.  I see Denda finds neurontin helpful yay!  The only thing that helps at all is using a massager.  The vibration changes the burning to a numbness feeling which is more tolerable to him.  I hope you find something that works and get some relief.

 

 

Kimber

I tried to respond to this days ago, however some problem with the board kept me from logging in.

I've been experiencing all of the above- pain in my legs just from walking up stairs; pain in arms (and racing heart) just from brushing my hair; extremely sensitive skin- on my scalp, left shoulder, left buttock/thigh area; and this pain in my arm that I've always described as a "pulsing, pinching" kind of feeling, for lack of a better way to describe it. I guess it's nerve pain, but I don't know. The arm was the first thing that really hit me, that I can remember.. the rest followed sooner or later. Neurontin did nothing for me. Topamax did actually help me a lot, for a while.. then I switched to Elavil when the Topamax didn't set well with my body. The Elavil only made me really sleepy.

I've been suffering with all sorts of problems- the above, chest pains, frequent headaches, sensitivity to light, body parts going numb, and a slew of other "crud". Been seeing several different doctors since 1999- off and on, as I would eventually get frustrated and not bother with them. My neuro did two MRI's on me recently, the last one after the left side of my body went numb. However since I never showed any lesions, she would not dx me with MS. Not that I want to have it, but it would have made some sense to me, as my mom was diagnosed with it in her early-mid 20's. I'm really frustrated with my current neuro, so I've pretty much given up on her. I'm not a big fan of my regular dr, either. I did find another doctor (a Lyme specialist), so I could at least rule out Lyme. However, I was just told this last Thursday that I do in fact have it. (something I never even suspected til this March). The LLMD doesn't know if this diagnosis covers all of my health issues, but it probably does explain some. It remains to be seen where life will take me.. Just hoping to get well, ya know?