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Telling the folks

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Multiple Sclerosis
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Posted 7/24/2007 7:51 PM (GMT 0)
So, after having been diagnosed for several months now, I have yet to tell my parents. We are geographically separated (which I recommend to everyone) and I am going back to the shire in a few weeks for the first time in nearly a year. My parents can be horribly pessimistic and I believe the only MS patient they know has a very aggressive case and was in a wheelchair within a couple years after diagnosis.

So I have a challenge, let them know about my condition, but leave them with an optimistic though fair prognosis for what so far appears to be a mild/moderate case of ms.

I'm following my first inclination to tell them in person, so they can see that I am still mobile and as fit as ever; any other suggestions?

thanks (this is an awesome forum!)

Posted 7/25/2007 1:49 AM (GMT 0)
My parents live only four hours away but my mother worries about me like she lives in another country. She has been worried about me all year since i left my husband and live alone with my two young daughters. I, however, did not hesitate to tell my parents since I knew I would need them. They were at the hospital the very next day and cared for my daughters since their father decided it was okay to still go ahead with his cruise. Not bitter. lol. But, anyway, I say this to say tell your parents and how they decide to handle it is their burden, not yours. If they don't handle it well then keep your distance because you don't need the stress. I have only been dealing with MS since May but I have already decided that I have H.O.P.E. which for me means having only positive energy and that includes the people you decide to surround yourself with. However and whenever you tell your parents it should be in a way that allows you to be completely at ease and not stressed.
Posted 7/25/2007 2:57 AM (GMT 0)
Hi

I told my mom at a quiet dinner. I gave her a booklet from the MS society to read so she would have some information. I think the book helped.

She was a little shocked and a bit too protective at first but after about 6 months or so she did calm down quite a bit.


Good luck in telling your parents.
Posted 7/25/2007 2:56 PM (GMT 0)
Thanks, I like that...h.o.p.e. Some information would be good to give them, too.
Posted 7/26/2007 1:23 AM (GMT 0)
I told my sister who is a nurse. She told my folks. They live in another state. The first thing my mother said was "Tell her to get tested for sugar (diabetes). Then she suggest that maybe I had restless leg syndrome. Argh. Now when I talk to her we compare symptoms. Maybe compare isn't the right word. Match may be better LOL.
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