HealingWell
Search Close Search
☰

Been a while-getting worse

Support Forums
>
Multiple Sclerosis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/21/2007 1:03 AM (GMT 0)
Its been a while since I posted here.  Everything is still the same except now I have been getting razor burn feelings all over my body.  Oh yeah, and itchy, prickly feelings everywhere also.  I posted on a MS website about everything that has been going on with me, and the neuro there said that it would be very unlikely for me to have MS type symptoms for 7-8 years, being on no therapy, to have a normal brain MRI.  Maybe they just aren't showing, is that possible?

It is awful living everyday with these feelings.  Can't wear some of my favorite jeans or shirts because it makes the feelings worse.

I'm ready to SCREAM!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

So, could this still be MS?  Lyme?  Anxiety?  Perimenopause even though I'm only 36?  Thyroid even though it was normal also?  I'm at loss here!!

Jen sad

Posted 8/21/2007 1:18 AM (GMT 0)
Have you seen a rheumatologist to check for things like thyroid problems, and/or lupus? Lyme could be a possibility. And yes, perimenopause, which can occur anytime in the mid-late 30's and beyond. Your neuro is correct -- a clear MRI after 7-8 years of symptoms would indicate it's not MS.
Posted 8/21/2007 1:36 AM (GMT 0)

Uppity,

Nice to hear from you.  Yes, been to an endo, tested for Lupus, Thyroid, and Lyme, and many more.  They all say I'm normal.  My FSH for peri is normal also.  I just don't know what is going on in my body.  I get frustrated some times. 

Thanks again, Jen

Posted 8/22/2007 12:20 AM (GMT 0)

Jenny R. said...

Uppity,

Nice to hear from you.  Yes, been to an endo, tested for Lupus, Thyroid, and Lyme, and many more.  They all say I'm normal.  My FSH for peri is normal also.  I just don't know what is going on in my body.  I get frustrated some times. 

Thanks again, Jen


Not that I'm suggesting it is perimenopause...but I started having symptoms long before anything showed up in the normal blood tests.  Since I already had MS, the doc said they were all related to the MS. Once I finally got through menopause and "out the other end", they all went away.
Posted 8/23/2007 6:46 PM (GMT 0)
have you had to take any antibiotics for anything latley?  where were you tested for lyme? 

Posted 8/24/2007 2:28 AM (GMT 0)

 Zoe Butterfly,

Yes I have taken antibiotics, both times that I had my brain MRIs done, Spring of 06, and 07, nothing showed as far as lesions but for sinus thickening.  There was no difference in my symptoms, as far as "herxing."  I took 3000 mg of amoxicillin, for 14 days both times.  I have been tested for Lyme, actually twice through the ELISA, which I heard is useless.  Can docs order a Western Blot Lyme test?  Or is this only through IGENEX?  Thanks!!

Jennifer sad

Posted 8/24/2007 11:25 AM (GMT 0)

the elisa is useless-- and you can ask for a western blot-- i paid for the igenex test myself 190-- insurance doesn't cover it-- they don't even take insurance but it came back with very significant postive bands of lyme and some ind's not negative not psotive so overall it was negative but i am seeing an llmd to make sure-- if you have any infection viral or bacteria-- if it is imbedded for so long you really won't test postive -- i know this for a fact on soemthing alse but i don't want to say what-- too embarassing

it won't hurt to really cover the bases on lyme-- lyme treatment won't hurt ms but some ms treatments will deteriorate you if you have chronic or neuro lyme-- so check it out-- i currently have ms with possible lyme

keep me posted

Posted 8/28/2007 12:17 AM (GMT 0)
Did they do a mri of your spine? That is where I have my lesion.
Posted 8/28/2007 1:10 AM (GMT 0)

Slinia,

Yes, had spinal MRI and 2 brain MRI.  I do have a bulging disk at C-3, no cord impingement.  Do you have the same symptoms also?

✚ New Topic ✚ Reply