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Sleep Study has been scheduled

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Multiple Sclerosis
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Posted 2/7/2008 1:32 PM (GMT 0)
I called my neuro and my psych. Haven't heard back from neuro but psych's nurse said that he'd be glad to send me. The place he plans to send me happens to be close afterall but tests for many many things, including seizures, narcolepsy, apnea and so many that she finally quit reading them all. I will spend the night and then the next day taking naps while they watch. They did wish to know how long the dryness in my mouth had been going on and to the best of my knowlege a year or a little more. Id use dry mouth gum and it seemed to help some.

I'm so glad i didn't wait any longer to post this. I'm equally as happy that you all responded supportively.

Yesterday an eye doctor called and wanted me to come in, once i explained my sleep study coming up they redecided we should wait (as i plan on doing with all driving opportunities).

You really dont realize how much you drive even if its small distances.

There is one thing i find odd though. It wouldn't happen without any warning with one exception...if i got in my car. My eyes would begin to bounce (nystagmus type) and then the drowsy would hit. Makes me wonder if this isnt a bit of what they are talking about when they mention seizures being brought on by blinking lights. A bit different for sure but still odd that it was so  on schedule with driving. The evokeds did show that i see things about 1/2 of a second after the normal person would. That in itself could be a problem with driving. But was never empahsized when I was told that.

I know alot of things we discuss such as the one i just mentioned are not MS related. However, it does make me think like my eye doc when he says "maybe ms brings things that are dormant to the surface in alot of persons". I find that alot of what was to be hereditary or dormant does get a slight kick with attacks.

Anyway I will be at the sleep study the first monday of march. Please pray for me and  honestly I'm not near as scared. Id rather know than to feel that coma ( i know its not a coma) feeling.  Id rather it be called anything than to be another limbo thing. We've all had enough limbo's.

thanks

kiera

Posted 2/7/2008 2:15 PM (GMT 0)
Hey Kiera

I"m really glad to see that u've scheduled the sleep study. U really do have a lot going on and this needs to be addressed. I can't help but wonder how much this is impacting all the other things...maybe even leading to them. On the driving /eye bouncing...do u notice any issue with lines on the road or such as that?? I'm wondering if there is some sort of issue with that makng it difficult to 'track' or follow and maybe it lends itself to the other issues. I know this doesn't answer the question of drowsiness. I think the sleep study is going to be u'r best next step on that.

I'm following u'r threads and anxious to hear what u'r study will reveal. Do be careful and continue u'r non driving plans until u'r doc has given u the go ahead on that. Be careful! Take care and let us all know how u'r getting on.
Posted 2/7/2008 2:34 PM (GMT 0)
Thanks Rhonda,

Yes i too have to wonder, as it happens every single time i drive. It maybe that my eyes are seeing things too slowly to make proper turns or ajustments. I also agree that the sleep study will answer alot and then I think i'll be able to see where the driving then leads to. The drowsiness is there when driving but that also makes me feel that they latent eyes trying to keep up may become over tired themselves.

I'll keep you posted and I'll just be relieved to finally find out why i conk out like this!!!! There was about 1 month that it eased but there was no change in meds or of anything that i could attribute to it at all.

I'll update you as soon as i know

Thanks for your concern

kiera
Posted 2/8/2008 2:28 PM (GMT 0)

Oh, dear, I missed this...I'm so glad you're getting the sleep study done!  It sounds like thorough tests have been scheduled, too, so that they'll maybe find out what's going on with you.  And it's so good that you're being smart about not driving until all this is checked out and maybe resolved, or at least treated.

I'm glad they'll keep you long enough, too, to really figure out what's happening.  I'm sure you'll keep us informed.  Take care!

Posted 2/8/2008 4:29 PM (GMT 0)
I'm very glad as well and extremely glad that they are doing the "nap" part the following day as I've read this is important for ruling out narcolepsy. As one site put it..it does little good to rule in apnea which can prevent a cardiac event if you overlook narc. and they then crash into a tree. So yes, its a very very extensive test. The nusre was surprised as she began reading it and finally said, theres much more but you get the idea, that they are looking ate everything!

I'll def let everyone know what the results are and I'm hopeful that its treatable at least!


thanks,

kiera
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