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Rebif shot~~~~next day

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Posted 7/2/2008 1:03 AM (GMT 0)
I take my Rebif 3 x's weekly.  Alot of time the next day (say 12 to 18 hours) later I feel crappy.  I sometimes think is this worth it? nono   I know it is worth it but, I feel nasty (healthwise, that is) sometimes. skull
Posted 7/2/2008 1:23 AM (GMT 0)
Hey 20 Years

Well i'm not sure of the side effects related to rebif, but do know that other meds, avonex for example, do give u the same sort of issues. Try to pre-med with maybe tylenol and then maybe continue to be on that thru the period of time u expect to feel bad. I'm so sorry u must deal with this, but u'r so right...it's well worth it. Check out this link for the side effects u may experience.

http://www.themcfox.com/multiple-sclerosis/ms-drugs/rebif/rebif-flu-like-symptoms.htm

Posted 7/2/2008 3:46 AM (GMT 0)
It is a balance though- quality of life now and preventing as much future disability and progression as we can. I think both are important. How long have you been on the Rebif? I switched from Betaseron (after 4 years) to Avonex. The prefilled Avonex syringe killed the next day for me, but now I'm on the kind you reconstitute and so far not too bad. Just a little tired and sore the next day. But it's just once a week instead of every other day. So maybe if it's really becoming an issue you could try switching to Avonex or Copaxone if you haven't already. Just a thought. Talk with your doc. I got an anti-inflammatory called Diclofenac to take with my injection. Can't take regular NSAIDS because they upset my stomach. This one works well. Willow
Posted 7/2/2008 6:24 PM (GMT 0)
Thanx so much you two. I really appreciate the help. I just love this place because now I'm NOT the only one feeling this way. I have been on Rebif 5 years. It is excellent to talk to all of you MS ppl because there just isn't a whole lot of people to talk to about this and I would have to travel so far to an MS group. Thanx gang with much love.
Posted 7/2/2008 6:51 PM (GMT 0)

I am so glad you are finding support here, Peg!  This is a great place for just that reason.  It was really nice chatting with you on Monday.  Keep posting??? 

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