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MS symptom question

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Posted 11/27/2008 7:53 AM (GMT 0)
Hi all - I am new to this board and was wondering whether anyone could help me. I was diagosed officially 18 months ago with MS, but have probably had it for four years. I am not sure whether my symptoms I am having at the moment is another attack but thought someone might have had something similar. Currently I am experiencing "the shakes" - although it is not visible but it feels like my whole body is trembling on the inside - there are certainly no outward shakes - also extreme fatigue. Although my body feels like is very very tired, I find it hard to relax as my body feels so tense with these inward shakes. I know it sounds silly, but I don't know how to describe it. My last two attacks (this year for both of them) involved loss of sensation in my legs and loss of co-ordination in legs also. These symptoms, if they are symptoms, are new to me and was wondering if anyone else has experienced these. Thanks in advance.
Posted 11/27/2008 7:56 AM (GMT 0)
Oops, sorry, didn't mean to put an angry face, was meant to be a smiley :-)
Posted 11/27/2008 8:15 AM (GMT 0)
Hi I'm told that I don't hav MS..three neg MRI'S and other testing, But one night my insides were trembling..lasted for about 1 min or less. but I noticed it big time. Currently I'm Being tested for lupus or lyme.

My dx is fibro. which does a lot of weird things.
Posted 11/27/2008 3:06 PM (GMT 0)
Hey Warren

Welcome to the board. I"m so sorry for u'r recent dx. Yes, the inside trembling as well as outside trembling are typical symptoms of ms. Have u mentioned this to u'r doc? Please do so as soon as u'r able. There is the chance that this will come and go or that it will last awhile and then go for a long while or for good. I sincerely hope it goes. No matter they symptom, if it's new u need to let u'r neuro know. At least get it documented on u'r records, but the best case scenario is that there could be some support offered to u. Take care friend and please let us know how u are.
Posted 11/27/2008 4:21 PM (GMT 0)

Hi Warren,

It is nice to meet you.  Welcome to the board.  You are indeed having lots of MS symptoms.  I hope you are able to adjust and adapt.  That is the key to living with this disease.  I too have had horrible bouts of loss of sensation in my legs.  I have had pretty deep numbness ........but that has since settled to just numb feet. 

Talk to your doctor.  If you feel like you are flaring, then steroids are always an option.  Those can make more comfortable sooner if you tolerate them. 

Are you on a progression therapy?  Please feel free to post often.  We also have live chats every monday at 6PM central time.  I hope to see you there.

Posted 11/27/2008 4:50 PM (GMT 0)
Thanks everyone - your help is much appreciated. I have been on two courses of methylprednisone twice this year (1000mg per day for three days) which does help although they knock me around but they cut down on the severity of the attack. I have an appointment with my neurologist on 1 Dec so that is not far away so I will ask her some questions here. This board is fantastic and it is good to know there is support out there from you guys for me. Many thanks again :-)
Posted 12/2/2008 12:02 AM (GMT 0)
Warren none of our symptoms are silly unfortuanately they are real. I have had MS for 10 years now. My symptoms arent as bad as some and I know I am lucky there. At first I thought I had to hide them but if you dont tell your medics they cant help you control them.

I think you are talking about spasms. Spasms can tighten parts of you body. I got told that eventually you get used to them and they dont scare you anymore. They just pass. It is hard to relax especially when you dont know what is going to happen next. There is future in MS just a different one to the one you planned.

Do you know what type of MS you have.VIEW IMAGE

 I hope that helps

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