treatment/cytoxan

Hi everybody,

 

My first IV infusion of cytoxan is this Thursday.  I started my prednisone and antibiotic yesterday.  The antibiotic is to ward off a common type of pneumonia during the treatment and hopefully I can wean off the prednisone quickly.  It is hard to find info on vasculitis, Sunny was very helpful.  I also went on another message board and looked for messages on cytoxan under immune conditions.

 

I learned to pack what some refer to as a chemo bag - a small makeup bag with sugarfree mints, biotene mouthwash, purell, advil and tylenol, chapstick, a digital thermometer.  It is suggested to have that bag handy when you go to treatment or out of the house in case anything is needed.

 

What I haven't found out yet, other than the suggestion of bland foods, is what foods help with the naseaus feeling.  I have zonfran to take, but as a single mom, I am trying to have everything here.

 

I don't know if many on this board have gone for any chemo treatments, but maybe they have family that has.  Everyone here has always been so helpful.  I have bonded with some wonderful angels.  thanks for all your support and encouragement.

 

Debbie

Debbie, I know that there is some type of injection that you can receive if you are on ongoing chemo. I am not sure if it would relate to your situation. Have ginger ale and soda crackers stocked at home.
good luck!

hI everybody,

 

quick update, then I am going to bed.  The first treatment is over.  A little nauseas, and gained this great metal taste in my mouth. Yuck!! They say from past patient experiences the first three days after treatment are the worst.  I'll try to keep everyone posted, so far, not too bad.  Let's hope it stays like this.

 

Thank you for all the thoughts and prayers.

Debbie

Hey Deb,

I thought of you all day yesterday.  I was so glad to see your post.  Hang in there and know we are praying for you.

Much love,

Hi all,

 

It helps to feel the love and support of all of you.  thank you for being here for me.

 

It has been a tough day.  I woke at 5am with a headache so bad my teeth hurt and my stomach keeps cramping.  I think it is complaining about the poisens in there.  Becca has been an angel.  I'd be lost without her.

 

When reality hits, it hits hard.  the nurse was so covered up with a waterproof gown, gloves, googles, and put the same on me.  I said to her it seems strange being so cautious yet that stuff is going in my vein.  I just hope it calms things down.  She gave me paperwork explaining all the possible side effects, and even gave me a great paper explaining what micropolyangiitis is in laymans terms.

 

Going back to bed.  I'll update as I can.  the nurse said the first three days are the hardest.

 

Love,

Debbie

Hi all,

 

Just an update.  I'm back on my feet.  still a little drained, but feeling much better.  Hoping to get on chat tonight.

 

Debbie

Debbie, or whoever can answer this for me,
I am going to start on Cytoxan Treatments real soon and I was wondering how long the treatments will take and if I have to be off of work how long will that also be? Any answers for me? Thanks.