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elevated liver enzymes

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Posted 12/23/2008 2:54 AM (GMT 0)
I thought I would be stopping Rebif temporarily or I would be trying another interferon but my neuro called today and told me my liver enzymes were way up.  She wants to see me in 2 weeks and discuss other options.  She also said I would probably not be able to take any of the interferon drugs.  I have felt so bad at times and the last 2 weeks all the time that I am not sure if I am happy or sad.  Not too many options left.  I would like to hear from anyone out there with relapsing remitting that is not on anything due to drug allergy/intolerance.  What do you do?  Guess I will know more in a couple of weeks.  It is always hurry up and wait.

Cindy

Posted 12/23/2008 3:57 AM (GMT 0)

Cindy,

We have a couple out there.  Some don't take the meds due to insurance and cost as well.  Sunny? Mystery Reader?  Many people just work on living healthy.  Diet and exercise and supplements can do much for your symptoms and progression.  I really think you ought to consider that copaxone as well.....I know you are not real comfortable with the IPIRs, but revisit that as well when you see the doctor.  Others will be along soon to give advice.

Posted 12/23/2008 12:26 PM (GMT 0)

Thanks Gretchen.

I am trying not to freak out about the whole thing.  I really felt terrible on the rebif but at least I knew it was helping.  Thanks again.

Cindy

Posted 12/25/2008 1:39 PM (GMT 0)
hi, cindy. i have been on ivig drips for a couple of years now with no adverse reactions other than a little drowsiness on the day of treatment. the last films showed no new lesions and one hot spot was gone. this is not a cure, but seems to be holding my r/r ms in check. ivig is used to control autoimmune conditions. it is very expensive, so be sure to check with your insurance. i did have to get a port installed because my veins were giving out. i get a 2-hour 3-hour drip twice a month. the nat'l ms site has info on ivig and a search on ivig turns up much info. good luck.

linda
Posted 12/25/2008 1:41 PM (GMT 0)
ooops! meant a 2-day, 3-hour drip of ivig twice a month! linda
Posted 12/25/2008 2:55 PM (GMT 0)
Good post Linda, thanks!!!  I had forgotten about your IVIG.  I am so glad it is working for you.

Posted 12/25/2008 7:48 PM (GMT 0)

Thanks Linda,

I will look up the info on that.  Happy Holidays!

Cindy

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