Really Lost right now and going blind from my MS!!

I am sorry you are having such a hard time.  I know I get very discouraged during flares- when I can barely walk across a room and the optic neuritis screws up my vision. 

Just remember that not every day will be a bad one.  Try to hang on for those good days, and in the meantime enjoy what you can: go outside and breathe the fresh air, sit quietly and listen to some uplifting music, cuddle one of your kids on your lap, or spend some time in conversation with your husband about something that doesn't involve MS.  MS will change your life, but it doesn't have to ruin your life.

I know it's hard, but the good news is that you are not alone.  There are plenty of people right here who understand exactly what you are going through.

I will pray that your next run of solumedrol is effective so you can get some relief.  I hope you have some people that can help out a little so you can get some rest during the treatment.  I had to do that treatment for five days straight last time, and the only thing I could do afterwards was collapse into my bed for the afternoon.

You are amazing!  You need to rest!  Please stop and rest.  I was home from work three weeks the last time I flared.  I did the solumedrol for five days straight, I can't imagine working! 

Now ....I am ordering you!  Go rest!

Seriously, I do hope you feel better real soon.  Vision and eye stuff is so scary.  Please keep us posted.

i remember last year during my time, i met a young man who was next to me in the day treatment unit and receiving the same IV steriods as i was for optic neuritis.  for me who'd never heard of it, or know if i would see again, it was so good to talk to him, as he'd suffered them many times over and always regained his sight.

you will regain sight and your body is fighting as hard as it can, the port sounds like a great idea, maybe some easier and direct access will have a better effect for you.  i know it took me over 2 weeks to notice any improvement in my sight, so hang in there, it will come back!!!

If you click on my name in the side bar, you will see my email address.  You may always email me.  By putting it there, it is available only to members of this site.  Leaves me a bit safer from spam ;)  I am doing a little better as well.  I am feeilng much better over-all.  I am going back to work on Tuesday with any luck.  I need to work!  I helps me so much. 

Feel free to email me if you would like.