Never been here. Need ADVICE.

Nebraskagirl

Regular Member

Joined : Apr 2009

Posts : 47

Posted 11/11/2009 12:02 AM (GMT 0)

Hey All,

Need some advice. I've been sick with what they think is chrons, been trying to get diagnosed. Very sick for 3 yrs. Went to hosp last week for it (thur.) they did ct scan with contrast where i reacted to contrast. Heart was racing, it finally calmed down. Went home. Friday, tired, sat, felt real good. Sunday. bottom fell out. Woke up dizzy, very imbalanced, legs went numb and tingly, felt heavy, had to move slow and concentrate on walking.Heart was race. Rt. eye kept felling like it was swelling. Went to dr. monday. Neruo. check, kept falling back, Orthostatic check was off, they did EKG and was tachacardic. They gave me steroid shot and something for dizzyiness. They said it could be from CT contrast from last thur. I dont believe that. My stomach pretty much wont keep anything it with possible chrons. They said if not better by thur. Do MRI fri. to look at MS.

I will tell you the last year, my left side is weaker, left hand trembles, I have noticed I have hard time thinking. I work for a Dr. also. I have a huge heat intolerance. Started last year. But thought it was from chrons. Like if im in 90 degrees for 10min I about pass out. Last night took hot shower, and had hard time stepping down out of it. The legs and heart just all started. My family has alot of auto-immune disease, including mom-Guillian Barre Syndrome, Aunt -Celiac's ect. Thyroid is normal, B-12, Normal. Any advice or help would be greatly needed.

THANK YOU SO MUCH>

nasalady

Veteran Member

Joined : Sep 2009

Posts : 1176

Posted 11/11/2009 4:14 PM (GMT 0)

Hi Nebraskagirl,

I really feel for you! I definitely understand what you're going through....and my family is rife with autoimmune diseases as well. Lupus and Hashimoto's thyroiditis are very common in my family, along with celiac disease and RA. I have all of the above, plus I'm having weird symptoms that don't go along with any of them. Neurological and visual symptoms that scare me, and make me think I'm developing MS. I'm being tested right now too, just as you are.

I don't really have advice for you other than to say "Hang in there!". I'm answering your post just so that you know you're not alone! All we can do right now is take one day at a time and roll with the punches. Unfortunately if you have one or more autoimmune diseases you are much more likely to develop more of them as time goes on, but hopefully you won't end up with anywhere near as many of them as I have!

Here's a great site about a healing diet for Crohn's disease, if you're interested:

nomorecrohns.com/default.aspx

Good luck to you! I hope you don't have MS!! I hope I don't have MS either!! :)
(((hugs)))
JoAnn

Beau2006

Regular Member

Joined : Apr 2006

Posts : 398

Posted 11/11/2009 5:35 PM (GMT 0)

Hi there, it is very difficult and not fair to suggest at this time that you do have MS - MS mimics so many other disorders - that is part of the reason why a MS dx takes so long to do, as it is essential to eliminate all other disorders first.

It is a good thing that you are going for a MRI on Friday, that will help to confirm one way or another as to whether you have MS or not. Keep in mind that lesions may not show up on the first MRI, as it has become known that MS will start to cause damage even before it lesions show up on an MRI......

Keep track of all of your symptoms, when they happen, what you were doing when the symptom surface (ie....like taking a hot shower) so that you have a collective history of what happens when and under what circumstances....

Let us know how your MRI goes, it will take a few days to get your results, so sit tight, be strong, and good luck

Gary

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