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Posted 7/19/2010 11:31 PM (GMT 0)
Any one had the ms hug before it's killing me it feels like a boa wrapped round me sqeeZing me to death I hAve had it now since may 2009 just can't conrol the pAin it's so hard to cope with
Posted 7/22/2010 1:53 PM (GMT 0)
I'm sorry to hear this.  The MS hug is an awful feeling.  What does your neuro say?  Have you tried baclofen?  Or one of the other anti-spasmodics? 
Posted 7/22/2010 8:00 PM (GMT 0)
I have tried a number of tAblets think I'm on my forth lot but none of them TAke awY the pain I have tried diclofenic
Also think the next step is a pain clinic I'm hoping they can give me botox in my intercostAl muscles x with my luck my lips might swell up
Posted 7/29/2010 11:26 PM (GMT 0)
Yes, I have had two episodes of MS "hugs" and they were horrific. Although mine each lasted approximately 15 minutes or less, I did go to the ER as I felt I was suffocating and the pain was extremely severe. Both times it passed on its own without any medical intervention. (Of note, I was on IV Rocephin at the time and also taking Mepron for Lyme/Bartonella.)

With the thinking that CCSVI and narrowing of veins is associated with MS, I read that someone had almost immediate complete relief with a Nitroglycerin tablet under the tongue. I plan to ask for this if it ever happens to me again, but not sure they would administer it, as there are no scientific studies currently supporting this. Good luck.
Posted 7/31/2010 3:09 PM (GMT 0)
I suggest you start adding turmeric to your food.   I came  across someone in Thailand who recovered from MS (due to a local healer).

A friend of mine started using Turmeric on my suggestion about 9 months ago( he bought a large bag for about 4 euros) . The MS has GONE. Various lesions have also disappeared.

In India and Thailand MS is virtually unheard of, believed to be related to eating curries containing Turmeric.  Can usually be bought at Indian or some Chinese shops.

 

Posted 8/6/2010 3:37 PM (GMT 0)
my ms hug - strangle has been the worst part of my ms. it started about 3 years before i was diagnosed with ms.  I thought i was having a heart attack.  my right side of my rib cage has been numb ever since and the hug has never stopped  sometiimes its not as noticible but its always there.  i cantwear anything that is snug on my chest and belly.  sometimes it doubles me over feeling like im turning inside out.  my nerologist said it sounded like my galblader after seeing a doctor and an ultra sound  it wasnt my galbladder ive since found out about the ms strangle. it is the worst feeling ive ever experienced and it doesnt go away /  is there any one else with my symptoms if so what do you do to help.  I quit taking my beta seron abvout a year ago because the way it made me feel. and i quit seeing my neuro quack  trying it on my own without a doc . 
Posted 8/9/2010 9:30 AM (GMT 0)
here are some things I have found that help me.
Step 1. Time to get rid of your bra... I have lived with MS hug most of my life . I have found a chinese oil that gives relief externally.
When my breathing got so bad and I presented with heart attack symtoms I was given a ' Pink lady' (Mylanta- antacid & oral Lignocaine ) by Paramedic & Ed staff I had osphageal spasms . My Dr. has since prescribed this for me to make myself. It relieves from the inside.
How nice it is to take a full breath.
Step 2. Change your diet.... this really helps.
Sleeping in a half raised position seems to help also.
Tissue salts- magnesum Phos for cramps
You can't overdose on these your body produces these natually if you take too many you just pee out the excess.
They have been my life saver for more than 30 years now.
I have had MS since I was 16 I will be 46 this year. I was dx 2007 and mis dx for all my life.
If it wasn't for Tissue salts all these years I beleive I would probably be hooked on painkillers.....
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