I am married and a mother of 4 boys. I was diagnosed with MS in 1997. I have taken Avonex, Betaseron and Copaxone. Copaxone seemed to be the best...BY FAR...but the injection site reactions were too much. I actually ran out of spots to inject because of the lumps. (and I was a NURSE!) TEVA, the maker of Copaxone, was not even able to help. I tried to make it work for 7 years.
My neurologist and TOUCH neurogist decided that I needed to start Tysabri. I started Tysabri because I needed something to STOP my disease.
I haven't stopped my MS. Right now I am experiencing another flare with optic neuritis, extreme fatigue, pain in my legs and dizziness, etc.
I keep reading bad news from Biogen about long-term Tysabri use.
I am curious how anyone has gotten off of Tysabri. I would like to hear the success stories and any problems experienced after stopping this powerful drug.
Thank you for your answers!
Michelle