Posted 7/4/2011 6:37 PM (GMT 0)
Hi everyone. I have posted in this message board before only briefly but now have decided to get back into the swing of things here, I could use the support.
I was diagnosed with MS in 2008, 3 months after my wedding. What started out with two separate episodes of severe nerve pain in my arms and after spinal tap, I was diagnosed with MS, which I thing has been the cause of several problems over the last few years. The most frustrating thing about this disease for me is my lack of a TRUE, MRI supported diagnosis. about ten years ago, after having bladder infections for 15 years (almost constantly), I was implanted with an Interstim neurostimulator to help me empty my bladder. Because of that, I cannot have an MRI so at this point my neurologist is going on my symptoms to determine when/if I'm having a relapse.
Ever since I was diagnosed, I feel that my legs are just getting worse. Today I took a walk (it was a little humid out) and my legs cramped up mid-walk. Since then I have had some trouble walking and have "shuffled" around a lot. I have tried to take Ampyra in the past, but it didn't seem to work too well, and the side effects were bothersome.
It's weird to me that my MS has progressed to the point where it doesn't really bother my arms or hands too much, but my legs are the worst part. Even my bladder still has issues keeping up with me somedays. Does anyone else have the same leg issues, especially during humid days? What do you do to relieve the pain and feel like you can go out and live a normal life? Summertime is the worst for me, I think.
-Amanda