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Please Help Me Interpret my LP?

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Multiple Sclerosis
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Posted 9/8/2011 6:24 PM (GMT 0)
So, I posted previously and received some helpful advice, but I physically received all of my results today so I can take them to the specialist Monday; the neurologist (who didn't seem to know very much about MS) did not think I had it upon meeting and examining me, due to my lack of symptoms-my mother accompanied me and the doctor pulled me aside and said "look at your mom and look at you. I don't think you have MS." So now, until I see the specialist, I'm looking the results over trying to interpret them on my own (of course...) She did say it was positive and now she does believe I have MS.

I already know I have little if any symptoms (a lesion turned up when getting an unrelated cervical spine MRI and because my mother has MS more MRI's were done, showing 2 brain lesions, one thoracic spine lesion, all inactive.) I want to get a definitive diagnosis while I'm still basically healthy to start on preventative meds. This is really getting into my head now, I am developing symptoms which may or may not really exist. Its affecting my daily life, I was running 8 miles now I have trouble running 3...very frustrating because I don't know whether its really the disease or purely mental.

Wondering if anyone would mind helping me understand the specifics of my LP results:

Glucose CSF: 54
Total Protein CSF: 33
CSF WBC's: *6
CSF RBC's: 3
CSF POLYS: 1
CSF LYMPHS: 93
CSF CELLS MISC:
6 MONOS

Oligoclonal band, csf

Bands noted Reference Range: No bands

The patients CSF contains >5 well defined gamma restriction bands that are not present in the patient's corresponding serum sample. These bands indicate abnormal synthesis of gammaglobulins in the central nervous system. This finding is supportive evidence of multiple sclerosis, but should be interpreted in conjunction with all clinical and laboratory data pertaining to this patient.

The clinical significance of a numerical band count, determined by Isoelectric Focusing, has not been definitely defined. The data should be interpreted in conjunction with all pertinent clinical and laboratory data for this patient.

Thanks. =(

Post Edited (Nay91400) : 9/8/2011 12:53:02 PM (GMT-6)

Posted 9/9/2011 8:09 PM (GMT 0)
Ok, so....your results are totally a foreign language to me, but I did want to tell you that I was diagnosed just by my neuro looking at my MRI results. 2 active lesions. He said if I didn't have it now, I would have a 85% chance of having it in 5 years. He started treatment right away. He lives and breathes MS.....It's his true love. I trust him. So, I'm not trying to scare you, but I was always told to start earlier than later. Of course, I had him test me for sister and diseases that can mimic MS before I started treatment.....Maybe not the right way to do it, but it saved me a spinal tap and we had ruled everything else out.

Personally, if my Nuero said "look at your mom and look at you. I don't think you have MS." I would have to fire them! I look "normal" and have MS. The only way you would know, is if I told you.

When I was first diagnosed I had crazy symptoms.....alllll the time and all over the place...However, it was all in my head. Your body is stressed and can do weird things because of it. Stress eats up a lot of your energy and maybe that's why you are running less.

I'm glad you are seeing a specialist! I hoped this helped a little!! :)

~Sparnix
Posted 9/9/2011 8:28 PM (GMT 0)
That is very possible...and speaking of stress I am now an official mess in case you didn't see my most recent post.
Posted 9/9/2011 8:29 PM (GMT 0)
And thank you for the response, I'm very convinced that I do have it and hope to get on something right after seeing the specialist. Any med recommendations?
Posted 9/11/2011 12:06 AM (GMT 0)
I just read your last post. How awful! I'm so sorry! Heartbreaking really. I have only been on Betaseron. I don't enjoy giving myself a shot every other day but it seems to be working and I have been lucky with having no side effects. Also....Vitamin D! When you talk to the specialist ask about every medication. There are not to many of them and they should take the time to explain how to use them and what the possible side effects are. My Nuero let me choose what medication I was going on. You have every say and if you dont agree with something the doctor has to say, speak out.
Posted 9/12/2011 7:18 PM (GMT 0)
So the specialist was pretty helpful. We talked about it and decided on Copaxone because I wouldn't have to worry about getting pregnant eventually (he said it won't harm the fetus so I would go off it but wouldn't have to worry until getting pregnant.) Plus its less side effects than the others...but an injection ever day. And I'm worried about what happens if I don't have prescription insurance at some point.

And he said as far as the OCD some studies have suggested OCD like issues linked with MS, but not necessarily OCD.
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