I just had my MRI done on Wednesday. It has been unbelievably hard to get anyone to take me serious. I have been battling with these doctors since August and still do not have a diagnosis. They said I should have the results of the MRI in 24 hours but on Thursday no one called.. on Friday I called my neuro and he was out of town for the rest of this coming week and didn't have the results from the radiologist yet. So I called the Imaging Center and they said I could come pick up a copy of the report with a picture ID but when I got there they refused to release it to me stating the doc hadn't signed off on it yet and wanted to review it more. My neuro thinks I am nuts and wont take me serious. I am not an anxious person at all. But my symptoms have been a constant burning in my left ear, slight tremors in my hands.. especially after I workout they get severe. I stay tired, as a matter of fact.. I slept all day today. I am a runner so this fatigue is not normal for me. I get muscle spasms out of the blue, in my back and especially my feet. There are other symptoms too like the sharp pains that are random. MY arm is now hurting from the contrast they used and I can't straighten it.. it seems a little puffy. What were some of ya'lls symptoms before DX? I will post what my results are for the MRI as soon as the doctors "allow" me to have them. My doctor told me before the MRI that most likely it will come out fine, that I am fine.. and that we can treat the ear as simple isolated nerve damage with Topamax. I insisted on the MRI.
I have had episodes of almost passing out, I cannot tolerate being on boats at all now because I get extremely ill due to vertigo or some such. My eye twitches a lot, I have restless legs and sleep with stacks of pillows between my knees. My hands and arms go numb sometimes, had to have new glasses because vision is failing. Due to nerve damage in left ear I have lost 5 percent hearing, right ear I had surgery on because my ear drum deteriorated due to infections so I have a 40 percent loss in that ear.. Most due to nerve damage as I now have a new eardrum and recovered some hearing so loss is down to 25 percent now. I am only 35. I have four children and I have noticed some of these symptoms since a young age.. others are just developing.. but they come and go.. They will last about
two or three months and make life miserable and then just fade away and I feel fine for a while. I had flu like symptoms in January twice very severe and entire body pain where I was crying.. went to the doc and he treated me with steroids even though it was NOT the flu according to him. I had strep throat twice in February, the first was diagnosed the second time came back negative but still treated as such. They were actually baffled. My immune system is weak. I get sick way too much and yet.. as much money as I have given to the docs.. still nothing. Blood work is fine, vitamin D deficiency so I corrected that. B12 is good. I eat healthy and I work out regular. I am just confused. I suppose I just need to learn to live with it until something happens. Like I said, not anxious at all. Just want an answer. To the original poster of this forum.. keep going to the doctor until they take you serious. It may take you a while.. and you have to be your own advocate. Keep us updated.
Post Edited (Meg444) : 6/30/2012 5:12:33 PM (GMT-6)