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How do you read the spinal tap results?
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Multiple Sclerosis
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abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/10/2014 5:27 PM (GMT 0)
says cfs rbc 0
cfs glucose 61 cfs total proyein 44
Does anyone know where I can View normal reading/sm readings?
Kelly
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/10/2014 5:46 PM (GMT 0)
I found healing well when my brother was diagnosed with liver failure, chronic hep, chronic cirrosis. Now I am seeing a neurologist had mri of brain that showed white spots, mri of neck/spine and a spinal tap. I have had trouble walking off and on for the last 15 years or so. I am 46 yr old. I asked for my records but have no clue what they mean :). I have terrible pain in my shoulders and upper arms. Off balance ( sometimes "looks like I am drunk" ) memory problems, trouble bathing and dressing myself (takes alot longer) alot of other symptoms I have read on here. Any insight is appreciated.
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/10/2014 11:15 PM (GMT 0)
Those numbers are all very within the normal range. Is that all that was reported?
What did your neurologist say about
the spots?
I am glad you and your bother found healingwell. It's a great place. Ask any questions you may have. And again, welcome!!!
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/11/2014 2:55 AM (GMT 0)
Hi! Thanks for the response. The report in the lumbar puncture states possible ms. mri of brain increased T2 and dininished T1 signal. increased signal on right mastroid air cells which may be inflammatory. mri of spine C4/C5 and C5/C6 C6/C7 minimal diffuse disc bulge. mild diffuse cord thinning.
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/11/2014 4:01 AM (GMT 0)
Also, in the car today my right foot was turned in and it was difficult to move my legs.
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/11/2014 5:40 PM (GMT 0)
brain mri report
There is a small focus of increased T2 signal and diminished T1 signalmeasuring 8 mm focally in the inferior posterior subcortical white matter of the right frontal lobe. There is no diffusion restriction here or elsewhere. 2 small foci of T2 hyperintensity are also visualized in the right centrum semi ovale. Small foci are likewise noted in the lower pons and right middle cerebellar peduncle. No correlate is confidently visualized on the prior CT. Mild volume loss is noted. The major intranial flow voids are intact. The visualized paranasal sinuses demonstrate no abnormality. Insreased signal is noted in thr right mastoid air cells which may be inflammatory.
Impression:
There are several focal areas of T2 hyperintensity within the white matter. These findings are nonspecific but are suspicious for a demyelinating process. Question if there is any clinical suspicion of multiple sclerosos. Absent this clinical suspicion the findings may reflect mild ischemia on a chronic basis. This should be followed. A neoplastic process is not favored. Righy mastoid air cell signal signal maybe inflammatory.
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/12/2014 12:23 AM (GMT 0)
You indeed have lots of signs pointing to MS. What is your neurologist saying?
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/12/2014 12:27 AM (GMT 0)
she did not say anything. She ordered a second mri of spine for a month from now
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/12/2014 12:47 AM (GMT 0)
Wow! Please ask your doctor directly, "What would be causing my symptoms? What would be causing these spots?"
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/12/2014 1:10 AM (GMT 0)
I did and she said further testing is needed
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/12/2014 2:30 AM (GMT 0)
She is a woman of few words! Did she say anything about
your neurological tests of reflexes and responses? I hope you don't have to wait too long! Please ask any questions you may have. Also, please keep us posted. Perhaps you can ask to be contacted if there is a cancellation at the MRI lab. A month is a long time to wait!
I truly hope you get some answers soon.
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/12/2014 3:29 AM (GMT 0)
I believe the wait was intentional because it is with contrast. I have heard of people having kidney failure after receiving too much in a short period of time.
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/12/2014 7:41 PM (GMT 0)
Ah that is correct! The dye is hard on your kidneys.
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/13/2014 2:06 AM (GMT 0)
Ok so I have not got the final diagnosis but the writing is on the wall.I have begun taking folic acid, B -100 Complex, along with typical meds I have been taking for a few months (neurotin, zolof, vistoril) I have looked up free classes at the gym for people with a disability. I gathered my nail stuff, went tanning(vitamin D), got stuff to show my autistic daughter how to make homemade meatballs, etc. Moving on. I need to get back to some activities that I once did. On bad days, I take it easy. What activities/ has anyone done that has helped the symptoms of this MF MS?
Bad Mojo
Regular Member
Joined : Aug 2010
Posts : 70
Posted 4/13/2014 3:55 AM (GMT 0)
Eat healthy (limit processed foods), reduce stress, and get lots of sleep. Exercise is good too. I swim because I get overheated doing most other things...and just being in the water seems to help me too.
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/13/2014 4:23 AM (GMT 0)
Good advice, Bad Mojo. I've got to work on my diet. I eat all the good things but I eat the bad stuff too!
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/15/2014 10:59 PM (GMT 0)
My neurologist called me yesterday with some test results. Lupus negative same with thyroid tests. I have band, more than 5. I asked how many and her only response was more then 5. She is ordering a chest x ray and I have a second mri of spine scheduled on May 7th.
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/16/2014 2:25 AM (GMT 0)
I wonder what she is looking for with the chest X-ray. She seems thorough! I'll give her that!
Is she referring to oligoclonal bands? It does appear that the writing is on the wall. Keep researching supplements and alternative treatments. There's a lot you can do. Not everyone takes the prescript
ion meds.
Keep us posted.
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/16/2014 2:37 AM (GMT 0)
yes oligocional bands. I looked up reasons for the chest x ray and it is used to diagnosis lupus as part of ruling things out.
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/16/2014 2:48 AM (GMT 0)
This is the snapshot of what I found why she might have ordered tha chest x ray
http://mail.aol.com/38507-115/aol-6/en-us/mail/get-attachment.aspx?uid=423480&folder=Inbox&partId=1
Post Edited (abbydoo32) : 4/15/2014 9:41:46 PM (GMT-6)
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/19/2014 4:36 PM (GMT 0)
now I am beginning to be fearful.My neuro really does not say it is looking like this or anything. Just more testing is needed which leaves me combing the internet for words I don't understand which can get my mind going. Now she ordered a CT chest without contrast. Abnormal brain mri with increased serum ACE. RADPort Free Text. Abnormal labs. Other abnormal previous examinations. Other known diagnoses. ***? She does not indicate any sort of diagnosis. I have pain but she will not give me anything. Maybe that would interfer with testing? What known diagnoses????
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/19/2014 7:46 PM (GMT 0)
I'm sure you are very scared! Being in limbo is not a fun place at all! Try to just breathe. Maybe take some time off from the Internet self diagnosis searches. Give yourself a break.
I don't know what all your test results mean. I don't think I had most of those tests. I was diagnosed with just bloodwork, an MRI and a neurological exam. The second opinion neurologist did evoked potentials and another MRI. That was all!
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/22/2014 1:50 PM (GMT 0)
my Doctor finally gave me a "it may be MS" answer. Chest CT today and mri of spine on the 7th. It makes me feel better that she gave a it might be raather then nothing. Going to celebrate Earth Day with my daughter with lunch at TGIFridays and the new Disney movie Bears.
Gretchen1
Forum Moderator
Joined : Jan 2007
Posts : 3595
Posted 4/22/2014 6:21 PM (GMT 0)
That sounds fun!! I loved the movie on chimpanzees!
abbydoo32
Regular Member
Joined : Jan 2012
Posts : 110
Posted 4/23/2014 12:51 AM (GMT 0)
Bears was very good!
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