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Decrease in medication or another flare?

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Multiple Sclerosis
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Posted Yesterday 2:56 PM (GMT 0)
Sunday I was running low on my baclofen, so I cut my dosage back from 30 mg to 25 mg a day until I could get a refill.  Tuesday night I started having muscle spasms and spasticity mainly in my right leg which I thought was from lowering my baclofen dosage.  I had picked up my prescription Tuesday, so I resumed my normal dose Tuesday night. 

Yesterday and today I've been having fatigue, more muscle spasms and spasticity, weakness in my legs (especially my right leg), numbness in my face and head, blurred vision in my right eye, and buzzing. The constant vibration/tremor that I've had since June also has been worse.

From what I've been able to figure out over the last few months, the buzzing has been a warning sign to me that I'm going into another flare of WETHTI (WhatEver The Heck This Is) syndrome.  (My last flare was the week of October 17, when I had my LP.)

Do you think this is another flare or just the after-effects of temporarily lowering my baclofen dosage?  Would decreasing the dose just 5 mg for two days cause all this?  And if it is another flare, should I call my neuro?  (Last time I called with the numbness in my face and the numbness and squeezing around my ribs, she told me to call my PCP to get it checked out by him.  Yeah - like he knows anything! He's already admitted that he's perplexed with my symptoms. ::) )

Posted Yesterday 3:27 PM (GMT 0)
Sounds like a flare in the making. I'd probably call the neuro..and then the PCP...if nothing else, to get it documented in your records that you're experiencing this. There isn't that can be done about it, I don't think, unless it gets SO severe that you can no longer "perform Activities of Daily Living"....but at least it needs to be noted.
Posted Yesterday 11:17 PM (GMT 0)

Hi Lisa,

 

      It does sound like it could be a flare, mainly because you have worsening of symptoms other than the spasticity.  I'd call the doctor, at least to report what's going on so it can be documented.   It might seem trivial since your doc doesn't seem to know what's wrong yet, but the documentation of symptoms might eventually help with your diagnosis.  I hope you start to feel better soon, keep us updated.

 

Kimber

Posted Today 12:35 AM (GMT 0)
I had an appointment (for something else) with my PCP this afternoon. I told him that I'm still having the same problems that I had during the summer and that the symptoms will ease up for a period of time, then reoccur and become even worse. I also told him that in between, I'm being left with residual problems.

He said he's still clueless as to what is going on. He did say that he has another patient who has symptoms identical to mine. She's been to two neurologists and a rheumatologist. The rheumy told her that he wasn't sure what was going on either, but it was definitely something systemic. He said if they couldn't figure it out, they would send her to Mayo. My doctor told me that if we can't figure out what is going on with me, an option would be to send me to one of the large clinics. Tell you what, I'm ready to go if they can just figure out what is wrong and help me feel better!

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