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Pain in the lower back

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Posted 4/16/2007 11:51 PM (GMT 0)

 I do not yet no what is wrong with me but because of a lot of your post I am going to a Neurologist.  My legs are very heavy and sometimes my arms.  I am cold almost all the time except when I am having hot flashes which are caused from having a hystorectomy. My feet are sometimes colder than the rest of my body. I feel dizzy and lightheaded off and on,  I get nauseated and have headaches most often.  When I am seated or lying down and stand up I often feel as if my legs will not carry me.  I must stand still for a minute before I move and when I do move I am in severe pain for a little bit till my legs say OK.  My right leg and foot often fall asleep on me when I am seated.  I feel very tired almost all the time.  I also have severe lower back pain that has brought me to tears.  I have had a MRI done which shows a little bulging above the Lumbar but the doctor says this would not cause all these troubles.  I have no desire to have any sexual time with my husband in which I love with all my heart.  My right leg seems worst than my left.  Because of the pain I am often depressed and take Welbutrin for this. I have had episodes all my life of diareha and have been tested and they say I have IB just because they can not find anything wrong with me.  You don't just make your self do this people.  I am very scared now because it seems to be getting worst fast now.  I have 4 beautiful boys in which I want to watch grow up.  I need to know what is wrong with me cause I know it is not all in my head.  I hurt BAD.  It is not normal for your legs not to want to go.  Does others have this same thing and does your lower back hurt with MS.                                         Thank You So Much 

Posted 4/17/2007 12:08 AM (GMT 0)
I get lower back aches, but not specifically due to MS. Sometimes it's a sign of a bladder or kidney infection, sometimes just a back ache. It's not a symptom specific to MS, unfortunately. If you have problems walking, you could be twisting your back and causing pain there, too. You do need to keep after your doctor until he figures out what is going on with you.

It appears that the MRI did not indicate any lesions in your brain, which would be a sign of MS. Have you had any blood tests to rule in..or rule out..other problems, like thyroid problems? Have you asked about hormone related problems, since you had a hysterectomy? They can cause a lot of the problems you describe.
Posted 4/17/2007 12:20 AM (GMT 0)
The MRI was only of my lower back. No blood test have yet been taken. I will ask about Hormone problems too. Thank You very much....
Posted 4/17/2007 12:43 AM (GMT 0)
Hi Mommy!

:o) That sounds so funny for me a 39 yr old saying that to a perfect stranger! Welcome to the board. There are a TON of great people here that will be along soon to say hi.

You do have alot of the sensory issues/symptoms that many of us have here in limboland (not dx'd as of yet), however I think the key to your's being possibly something else is the excruciating pain you have in your lower back. MS comes with nerve pains, but from what your description is it sounds alot like muscle pain OR possibly a pinched nerve. Yes, I am not a Dr, but like Uppity said above, I think you need to keep at your doctor and possibly get an EMG on the most troublesome spots and at least a full scan either CT or MRI on your complete spine, not just the lower back. Another thing to check is your thyroid, that can make a ton of wacky symptoms that mimic MS.

The only reason why I know of this stuff is from all the blood work that I had have to rule out everything else. I had to have my hormones checked since the neuro wanted to rule that craziness out (had a hysto in 2004), that came back normal.  I know my neuro thought for sure that my issues were coming from a thyroid problem (runs in the family) tremors, numbness, spasicity, however all my blood tests came back fine, then we did the MRI of the brain and found all my friends up there, that's when everything shifted to possible MS. 

 
I hope you can get some more tests run to help ease your stress as well as keep you strong for those boys! Good Luck!

Posted 4/17/2007 1:06 AM (GMT 0)
Thank You so much Denda. I am looking forward to staying strong with you guys. Right at this moment I hurt so bad I am crying. I just wish there was something to ease the pain right now. I feel hopeless and like there is no end to this at all. I just keep telling myself that I am crazy I am not hurting but it is still there. They say stress is going to make things worst but not knowing and the pain is whats going to cause the stress and this too does not make any since. Oh my goodness, oh my goodness.....
Posted 4/17/2007 2:54 AM (GMT 0)
Hi there,

sounds like you're really having a rough time! Try to stay strong...and get onto your doctor!!!!!

People here have advised me to keep a diary of the symptoms I am getting....easy to forget it all when you're actually seeing the dr. Keeping the diary also helps to potentially find the triggers of your symptoms etc.

Hang in there,

let us know how you get on!

KAS
Posted 4/17/2007 3:26 AM (GMT 0)

Hey mom,

wow, that is an impressive list.  Welcome aboard.  I am so sorry you are having such a bad time.  Hang in there.  You have gotten some good advice and I have nothing else to offer but support.  Hang in there and get to the doctor.  We are here for you.  Post and ask questions as much as you want or just vent and we will listen.  Love on those boys.  I have two myself. 

Love and prayers,

Posted 4/17/2007 11:57 AM (GMT 0)
Hey Mom

Awwww...i'm so sorry!!! I'm really glad u'r here with us and hope u'll gain strength from us. We are here to support u as much as we can. The others have done an excellent job in explaining things and advising. They're right, it does seem odd to have all those symptoms and added to that...lower back pain. I agree with Denda....go have u'r entire spine looked at (MRI). The first thing i thought when i read u'r original post was pinched nerve. However, it just may be a few things rather than one thing going on. The thyroid can certainly cause these probs, but also take a peek at the adrenal glands. As i'm remembering, i believe that's a hidden culprit that many times the docs fail to investigate. Take a look at this site to see what u think. Kas made an excellent point...write things down. It'll be so valuable in time to come to have a written account of what's been going on. Take good care of u'rself and u'r boys and please let us know what the docs do and how u are. Welcome to the board...and please make u'rself at home with us.

http://www.umm.edu/endocrin/adrengl.htm
Posted 4/17/2007 12:33 PM (GMT 0)
An MRI of the lower back will show problems in that area -- but is not the kind of MRI used as a diagnostic tool for MS. You'd need to have an MRI of your brain, and your upper back and neck area, to see if there are lesions there.

But the way you describe the pain, it really sounds more like something wrong with the structure of the back, and muscles and nerves there. Have you seen an orthopedist for your back problems? Back pain can be very debilitating.
Posted 4/18/2007 2:11 AM (GMT 0)
Hi Mommy,

 

    Welcome to the forum. I hope you make yourself at home here!   That's a lot to go through at once and I'm sorry you are in so much pain.  Some good advice from everyone on avenues to follow.  When is your appointment with the neurologist?  A symptom list is a good idea if you don't already have one written down.  You can even copy and paste what you wrote here since it's so detailed if it that makes things easier for you.  Let us know how things turn out for you.  The neurologist might want to run further MRI's and other tests to see whats going on.  There's a lot to rule out in the beginning, hopefully it won't take too long to figure out the problem, try to hang in there!

 

 

Kimber

 

   

Posted 4/18/2007 10:39 PM (GMT 0)
Oh please don't be so scared and stressed! You will see your boys grow up!! You need to try and not stress, stress makes everything worse. You do have a pretty impressive list. But really it could be anything! And MS is scary but not deadly so no matter what you will make it! I think that my biggest fear when facing MS dx was my daughter. They thought I had a brain tumor at first so I was actually happy with the MS dx!! You need to take care of yourself and try to relax. Ask them for some pain meds if it is that bad or for something to help relax you (like I have lorazepam which calms me down for when I have to have MRI's). Take care and let us know what the doc says!!!
Posted 4/18/2007 11:27 PM (GMT 0)
I have an appointment for Tuesday of next week. I have actually had an alright day today. I have hurt but have not had any dizzy feelings. Thank you for all your help.
Posted 4/18/2007 11:32 PM (GMT 0)
Oh good!!  Good luck on Tuesday, we all look forward to hearing from you about your appointment.  Glad you are feeling better today.

 

 

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