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my hiar is falling out...im so sick of all of this......

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Posted 4/13/2009 1:03 AM (GMT 0)
Since my 26 day hospital stay and emergency colostomy my hair has been slowly comeing out......this morning was the worst yet.....if it keeps this up another month i will be bald.....i think it my be because of all the medication from the paritinitus and just stress.....Im taking lexapro....and was starting to feel better.....my urrigation bag wont stay on anymore......EVERYTHING is starting to go wrong....I lost so much with getting this colostomy and only being married ,only ,5 months....now, my new husband is getting to see me loss my hair...he already has saw me during urrigationa and when i got sick in the bathroom and it went all over us both......i dont mean to complain....im very lucky to be ok.....this is just so hard beyond what i had imagined......im really stressed and not dealing well at all.......kim
Posted 4/13/2009 1:17 AM (GMT 0)
Kim,

I'm so sorry for what you're going through.  I know it must be overwhelming now, especially since you just got married, but just remember this won't last forever, and you will be better one day soon.  I'm sure you husband loves you just the way you are!  Try to stay positive.

Hugs, Janie

Posted 4/13/2009 1:42 AM (GMT 0)
Kim hang in there...your body is recovering from everything it has gone through! I think most of us have had to deal with hair loss, too. I dealt with it by cutting my hair shorter (not short short) but above my shoulders so it wasn't as noticeable...you could also try a shampoo for hair loss and I think there is a vitamin or mineral that helps but I cannot think of the name right now...it might be E or Niacinamide...

If you are still having problems with your pouch, give your ET nurse a call for some input...you'll be okay, things do get better!!!
Posted 4/13/2009 1:58 PM (GMT 0)
the hair loss is actually normal after a big surgery or serious illness. It will stop and the hair will grow back. Although i know that isnt much comfort right now. I had that happen to me after each flare and after my son was born and after surgery. The thing that worked best for me was that Brilliant Brunette shampoo by John Freida. Weird, its not fro thinning hair or anything, just kept mine from falling out.

I hope you get stuff straightened out soon, i am sorry you are having to go through so much!
Feel better!!!
Posted 4/13/2009 3:25 PM (GMT 0)
Hi Kim

Sorry to hear about your pain. In so far as hair loss is concerned, it is quite normal after any major surgery as your body becomes deficient of proteins, vitamins and other necessary minerals. I used to have very heavy hair before my 1st stage surgery. However, after 40 days of my stay in hospital, I had lost lots of hair and finally at the end of 2 months, I was almost bald. This hair loss got controlled once I started taking proper diet and medication.
Posted 4/14/2009 1:40 AM (GMT 0)
It just feels like one thing piles on top of the other at the beginning.

I was losing so much hair in the shower, I looked like a radiation case. Handfuls came out .. my part became about two inches across. ARRRGH. I went to my dermatologist freaking out. He soothed me by reminding me of his wife (another doctor) and her beautiful red hair. Yeah, so, I asked. He said she had lost her hair under a few big stresses ... studying for med boards, a miscarriage and the pregnancy with their son. And it grew back each time. He said to be calm and wait ... and it did come back. I did cut it really short for the ah .. 'thin' hair period. Looked a lot better.

The surgery just put your body through a huge change and it's shocked. The hair loss a month later is effectively delayed stress syndrome.

Good luck and hang in there!
Posted 4/14/2009 3:33 AM (GMT 0)
Thanks so much for all your support....I worry somuch about trying to look good for my new husband...Im 42 now and hes 44 and i should just be proud we found each other and that im bad home and not in the hospital...My reversal is in August adn I go to my surgeon in Nashville tomorrow,,,Hes not the one who did the emergency surgery...they told me the reversal wont be easy because of the paritinitus from my colon being knicked.....Its the stress...Im back at work and trying to catch up from a ten week leave......My hair is baby soft anyway....Its just crazy...Im stressing more about my hair than i did my colostomy.....guess cause its unseen but not unheard.....Thanks again.......u have made me feel better...KIm/maggie

Posted 4/14/2009 3:56 AM (GMT 0)
not to give you something else to worry about, but if you start seeing freaky things happenign with your fingernails that's normal too. They might start to break easier or get ridges. But that will clear up too!
Posted 4/16/2009 5:34 AM (GMT 0)

summerstorm said...
the hair loss is actually normal after a big surgery or serious illness. It will stop and the hair will grow back.

Summerstorm is exactly right! When I first had my surgery 20 years ago the same thing happened to me.  I thought maybe it was the medication at the time...... but it did grow back.  Now, however, it's falling out again......thanks to genetics!

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