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TOTAL COLECTOMY PART 23

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Posted 7/7/2009 4:48 PM (GMT 0)
Lizzie - Still praying for you. I am not sure what obstructing means. But I am sure it was painful for you. I hope that very soon some sort of normalcy (not our kind!) will be granted to you!!!! We all deserve to have a big plate of whatever we want to eat and not have to worry about what happens after we eat it!!!!

Inquiz - Let me know when you get a date for surgery. I will keep you updated.

Hodaya - still waiting? Let me know as soon as possible when you find a date!

I will be having surgery tomorrow morning. I am going for liver tests in just a few min. Will post as soon as I get a chance.

Thanks to everyone for all your concern and prayers. You have been very encouraging to me.

Christy
Posted 7/7/2009 7:21 PM (GMT 0)

hey all,

yeah, i'm still waiting....... spoke with the psych yest and he told me to call him back on this coming sunday. he said he's waiting for another consultation with another specialist..... he wouldn't tell me what this consultation is all about. oh well, he already said he agrees with the surgery.. i guess i'm just scared he may change his mind or something, i'm not sure what to think, cause he isn't saying much to me, so mostly i'm kinda feel like in the dark. my main concern is that i want to be able to have the surgery this summer, hopefuly on August, and from the way thing are going now, i'm not sure i'll make it. i'm sick of waiting!!!! i'll let you all know what happens as soon as i know myself.

anyways, Christy, i'm so excited for you and i'll be praying for you as well for a successful surgery and easy and quick recovery!

Janie, i hope you manage to figure this out and that it helps you to feel better.

Lizzie, i'm glad you had a good time, but hate it that you're in so much pain b/c of eating. i guess most of us will always have to watch what we eat in order to feel good. oh well it's part of our lives.

Inquiz, i can't wait to hear all about your dr's appt. hopefully i'll also be able to know something on sunday.

love y'all SO SO MUCH!

Posted 7/7/2009 10:03 PM (GMT 0)
Hi everyone,

I have been reading and reading this forum a lot... and thought it was time to jump in. My first post about the Sitz Marker test .. tells my story in a nutshell. Tomorrow I will be going for a Defecogram... I had one a few months back before I had my rectocele repair. It's so embarrassing. I am using a different facility and they are having me do a bowel prep! My last one I only had to use a fleet enema. So here I am starving and waiting for the prep to work. I feel sorry for myself since this is my THIRD bowel prep in 3-1/2 months!

My urogyn feels I need a colon resection.. he referred me to a colorectal surgeon. My GI wants to see all the test results before committing.. Now I wait to complete this test and I'll be seeing the surgeon the end of this month.

I honestly don't know what I'll end up doing. I have struggled for so many years with constipation, and now since my surgery - it seems a little harder to get my stool out.. but honestly, I am confused since I have used enema's and suppositories for many years. I try hard NOT to use them, and I am now using MiraLax.. and I am able to have a BM most days. **confused look on my face** The sitz marker test definitely showed a slow colon, not sure what the other tests will reveal. I guess in the end the decision will most likely be mine, and that scares me!

Well, thanks for letting me jump in and ramble! I can tell your all a great bunch, and it is so comforting knowing I am not alone in these issues!
Posted 7/8/2009 7:00 PM (GMT 0)
hi tinkerbell, glad you jumped in! how did your defogram go? did they meantime give you some rough idea of what's going on till the offecial results are ready? i hope it went well for you.

i know what you mean about making the decision... i was just thinking about it that b/c it's OUR decision and OUR'S only, and NO ONE can make it for us, cause after all, it's not a life threatening condition, so it makes it a lot more difficult, cause it's much easier when THEY tell you you must have surgery, than having to make the decision all by yourself, is that the way you feel too?

well, i've struggled with the decision and felt so unsure for so long, but eventually i realize that there's no way things will get better on their own and everything i've tried failed to help me... so i feel i'm ready for it now.

i wish you luck with what ever you decide to do!
Posted 7/8/2009 8:21 PM (GMT 0)
Hi Hodaya,

I am so glad it's over.. it was demoralizing. I didn't feel comfortable even talking with the tech.. wasn't sure he was even the radiologist and to make it worse, the second guy was brand new.. first day there watching me. No screen at all.. they stood inches away while I went. It was awful. I posted a question (new topic) about it.. please take a look and let me know what you think. I will go Friday to pick up the report and CD ..

I really hope they actually say - look , here is the problem and we can do this to fix things.. that would be the best case senior for me, as I would just do it. I am afraid they will say, we're not sure.. have more tests, and then - no real answer.
Posted 7/9/2009 12:41 AM (GMT 0)
I was also out in the open for my defecogram and it was so embarassing. I was instructed to relax, push, pull up, like trying to hold the barium in, then to push really hard. But, I just assumed I was told to push really hard because I couldn't get the paste out. I pushed for 5 minutes and could not get the barium out. about 10% of the barium came out and that was it. I had to drive home with a rectum full of that stuff and it was awful. It took hours to get the barium out and I had to use a half bottle of suppositories and enemas because the stuff was getting hard. So, you could get the barium out? All of it? If so, that is awesome....that should mean that a total colectomy would work for you. Right Hodaya? I could be presumptious, but from what my doctor told me, if you can expel the barium paste, then you don't have anismus???? But, I don't understand why you have to use suppositories and enemas like me? I wonder if anismus comes in degrees of severity? Do you think the stool has a hard time reaching the rectum? Because I have to use suppositories, enemas, to get the stool to even come down into the rectum, then I disimpact myself. It is alot of steps to have a little bitty bm.
Posted 7/9/2009 12:54 AM (GMT 0)
Tracy

I passed my defogram without problems, but even after my total colectomy 4 months ago, I still have problems going.  I feel like my small intestine is moving stuff through pretty well (which never happened without a laxative when I had a colon), but it gets stuck in my rear.  I have a small rectocele and pelvic floor dysfunction.  I guess I don't understand how I could poop out the barium without a problem, but can't poop out the poop!!  I have been using suppositories again, and occasionally an enema.  Sometimes I'm just miserable when it's stuck in my rear and I can't get it out!

Last night I drank warm prune juice and that worked well, but when I do that every night I'm stuck in the bathroom for about 4 hours.  It really just stinks.  I had an appt with my surgeon for the end of July but called today and changed the appt. to next week.  I'm wondering if I should try biofeedback again, now that I've had the colon removed.  It was sort of pointless before, because even if I trained myself how to poop, the poop never made it to the rectum to come out!!!

 

Posted 7/9/2009 1:31 AM (GMT 0)
I totally understand what you are saying. It seems my poop can't even get to the rectum on its own. I drink miralax to get it to move through the colon, and still, it seems unable to get to my rectum. What in the world is wrong with us? And I have to be careful because if I drink too much miralax, and it gets too liquid, all that will come out is a liquid poop, and hard poo will stay inside the colon. What is up with that? I can sometimes get a little poop out the rectum while pushing, but only with the use of supposiories 1st. And even then, the poop is very skinny and only a little will come out, then I am back to pulling the rest of the crap out. it is awful and depressing. I have been so depressed because my life revolves around when I can take a poop, and then hours I spend trying to get it out. I am sooooooooo sick of living like this. I am getting a botox injection on July 17th at 8:30...have you tried this before? My doctor said I have a 25% chance of it helping.

But it seems us women with colonic inertia also have issues with our rectums. Have you had a previous surgery before? Because I have had my spincter muscle clipped, twice, due to anal fissures....2 pelvic prolapse surgeries, a hysterectomy, and a bladder sling that eventually eroded through the urethra and had to have another surgery to have it removed. Only my hysterectomy was done open, the rest were lap. So, I don't think adhesions are a part of my problem. I really think I have nerve damage to the rectum and that is why it doesn't work anymore.

My doctor described anismus as the rectum not taking orders from the brain anymore...and this does not sound good to me at all. If the botox does not help me, then I will keep my colon, but will have a temporary illestomy, to see if this will relax the muscle enough that it starts working again. My doctor said he will have to bypass the large intestine due to the colonic inertia and hook my stoma up to the small intestine...I believe he said the end of the small intestine, so, it will be an end illestomy.

I am also nervous about having the colon removed due to reading that the total colectomy patient has a 5% to 50% chance of having a small intestine blockage within the 1st 2 years. Did you hear this also? I have not asked my doctor about this though. I asked the poor man so many questions he probably felt that he was on trivia pursuit. HEEHEE

Do you think I am crazy for even considering an illestomy? Because I do and I feel differently everyday. Some days I am like, I can't take this one more day and I would rather have a bag...then the very next day I am like, well, maybe I can do this for the rest of my life. UGH and I hate that about myself. Most of you women seem to make your decision and move on. But, not me. I am constantly considering what I should do. Should I have the total colectomy even though I have anismus and just see what happens? Should I keep the colon and have a temporary illestomy, should I have the colon removed and still have an illestomy???

I am so undecided because when I had my pelvic prolapse, I thought there could not be anything worse than your rectum, bladder, and uterus hanging down in my vagina. But, after that surgery is when my bowel problems totally got out of control. I mean, I did have colonic inertia, but I only had to disimpact myself once in a great while. Taking laxatives was just a normal part of my life and I could live with that. But, after that surgery, my rectum never worked right again. I have had no "push" since that surgery. So, I need to think long and hard about what would be the best thing to do. And it doesn't help me when my doctors don't even agree on what to do. GRRRRRRRRRR
Posted 7/9/2009 2:28 AM (GMT 0)

TDR,

Just wanted you to know that adhesions can build up from sny kind of abdominal surgery, it doesn't matter if it's open or lap.  So you could have many adhesions due to all of your abdominal surgeries.  I know this because I was full of scar tissue and adhesions from my previous surgeries and had to have a 3 hour surgery to remove most of them.  If you look at my signature you will see all of the surgeries that caused the adhesions.

I know this isn't something you wanted to hear but thought you might want to know.

Please know that you are in my prayers and I pray that you will somehow get some relief.

Judy

Posted 7/9/2009 2:32 AM (GMT 0)
Judy, can adhesions cause the inability to have a normal bm?? How do you know if you have adhesions?

Also, has anyone read a book called, "WHY CAN"T I GO?" It is by a doctor named Dr. Christopher Lahr? it is a great book. I wanted to go see him for a 3rd opinion, but he is no longer at his practice? Has anyone heard of him or seen him for medical treatment?
Posted 7/9/2009 12:09 PM (GMT 0)
Thanks for the replies ladies! It kinda har to explain what goes on with me... First, without the MiraLax, my BM's would be far and few between, and the stool would be hard. Only a laxative/suppository/enema would help at that point.. and sometimes only giving little relief.

3-1/2 months ago I underwent a sacral colpopexy + hysterectomy + bladder sling to repair my prolapsed uterus, vagina, bladder and very large rectocele. Before my surgery - part of my rectum would protrude through my anus when having a BM. This is what freaked me out to finally seek medical attention! Honestly - at this point, I rarely had a BM on my own.. I always used Fleet liquid glycerin.. as I found that really worked good for me. I could not empty my rectum though without manually pushing up in my perineum area and around. Often I never felt all the way empty (even now - I can feel this same way!)

Fast forward to today, 3-1/2 months post op from the above surgery. I was instructed NOT to strain while having a BM. I can feel a lot of pressure when I have to have a BM.. but it seems "stuck" like it won't move into my lower part (rectum). I hardly could go post op, and when I did - I could only go straining - and straining hard sometimes. My stools were never hard - they were soft because I was on stool softners and laxitives.. yet I have to strain, and my poop is "flat" in shape. My Uro gyn then sent me for a colonoscopy, he felt I had "strictures". The GI doctor did the colonoscopy, and said I had a "tortuous, twisted sigmoid colon" - but just instructed me to remain on MiraLax.. no other treatment.

I went back to my Uro-gyn for a post op visit and to discuss the colonoscopy. He immediately said that he felt I needed a colon resection to get rid of the bad part in the sigmoid colon. He is the one (not the GI doctor) who sent me for the Sitzmark study and the defecography.

I failed the Sitzmark study, and when I went to the GI doctor post op the colonoscopy - I filled him in on what my uro-gyn said and gave him the sitzmark report. I could tell he was not keen on me having a colon resection.. said I was too young (48), but was surprised to read the sitzmark report and said it "wasn't good, not good at all". (20 of the 24 markers remained) I left that appointment with him in agreement that I needed the defecography test, and that I should see the colonrectal surgeon, and that he would like for me to come in again after I complete the test and see the specialist - as he would like to call the surgeon and discuss things.

Now.. as far as the defecograhy test yesterday.. I was pushing (not straining) and relaxing (they never had me squeeze). The paste was coming out.. but he commented to the other tech and me that some people can get it out with just 3 pushes, and others take longer.. I was pushing for maybe 6 times and then at the end I did push harder to expel the stuff. I could have pushed harder in the beginning and it wouldn't have taken me 7 times.. but he commented I got "the majority" out.. as I used the bathroom after and got more out, but when all said and done - I do feel like it was out. I pick up the report tomorrow - I am curious as to what it says.

adhesion's ... I must have some... I have had 2 c-sections and a tummy tuck 20 years ago. My last surgery was done via laparoscopically.

I certainly do NOT want a colon resection if I don't need it, and I sure was thinking my bowel issues would be over after my last surgery. I am afraid that the MiraLax will eventually not be effective and that I will forever be trying things to have a BM. I trust my uro-gyn and I'll trust the surgeon too, as they are both highly trained and located in a large teaching hospital. They will be reviewing my tests together... and I will follow their advise - one way or another. I really like my GI doctor, but he is a small town doctor (and didn't know how many rings were in a sitzmark capsule).
Posted 7/9/2009 2:26 PM (GMT 0)

Hello Everyone, I thought I better check in since it's been too long since it's been about a month. I've been reading trying to catch up on what you all are going through. Lots of new members I see! Welcome! At the same time, I am sorry you have to be here. I had my total colectomy on April 20th so I am just over 2 mos post op. Even with all of the complications I had in the hospital, I am still so very happy I had the surgery done. For those of you who are trying to make a decision, it is worth the pain. My last complication was an infection on or in the incision. I don't think the dr. took it very seriously (wasn't my regular surgeon) so it wasn't treated very aggressivly. But when mine saw it he cut it out while I was in the office. OUCH! I never did kick him, although it was tempting. I left with a bandage over it and just told to cover it if it's draining. I had to call again a few days later because there was a lot of infection still in. I was then told I was supposed to be packing it and that would pull the infection out. That did help and now it is closed. As far as pooping, I was going probably 5-6 a day pretty loose/liquid. I was on a low residue diet then and doing pretty much the same when I slowly added new foods. But now I am getting worried as the last 2 days I've slowed way down. It's been hard to get it out too. Doesn't seem like the same amt as when it was looser. It's probably hard to tell but I do feel full and have a sore area on my lower left abdomen. It's not the incision. I'm thinking I should call and ask about it. Maybe back to a low residue diet? Has anyone had scares like this a few mos after surgery? I think I read someone did, but I read so much I can't remember who. What a wonderful feeling to go 5+ times a day...I don't want to lose that!

I would say I hope life is good for you all, but with these problems, fighting for surgery, the indecision of what to do, it doesn't feel good. So I will say I hope you are able to find the help you can and support from others on here. I am horrible at checking this forum, I need reminders to do so. If anyone has questions feel free to email me at [email protected]

Posted 7/9/2009 6:12 PM (GMT 0)

TDR,

Adhesions can cause abdominal pain, they can also interfere with bowel movements.  My colon was adhered to my pelvic floor and I had constant abdominal pain and constipation. When my surgeon released the colon it eased the pain and helped with the constipation but the constipation returned due to colonic ineria throughout the rest of my colon.

I hope this helps you,

Judy

Posted 7/9/2009 11:01 PM (GMT 0)
Judy, I don't have any pain since my 2nd pelvic prolapse surgery, a sacralcolopopexy. That is when the doctor attatched my pelvic floor to my tailbone with mesh. He also took out my bladder sling which had eroded through my urethra. It was very painful. I just read my surgery notes and he also removed some adhesions. That surgery took care of all my pain, but it took about 12 months for me to become pain free. My pain now is mostly swelling and gas pains from being so constipated. I very rarely pass gas because of the anismus. That is so awful. My husband told me to tell the doctor to place a valve in my stomach so that I can release the gas. HEEHEE My stomach swells very big with the trapped gas. I do walk alot to try to get it to move, but I usually end up going to sleep and that is when my stomach will go down. Never because I passed gas. I tried to eat the fiber plus bars, but that only made the gas 100% worse, but I could fart a little. LOL
Posted 7/10/2009 12:28 AM (GMT 0)
Tracy,
I read about Dr. Lahr on the internet several years ago. He had a great website and I found so much information. He had a practice in South Carolina. I live in Florida, so when I decided to actually try to have the surgery, I couldn't find him. I was playing around on the computer one night on another website and read that he moved to Alabama, and that his wife had passed away. Not sure which happened first, but I couldn't find any practice in Alabama.

I'm still not going very well; if I take prune or grape juice I can go, but I'm stuck close to the bathroom for a few hours and it's all liquid. I'm just not sure what's going on, but I'm seeing the surgeon next Thursday. The worst thing is the pain and pressure on my rear end. It's just not very pleasant at all.

Judy, are you feeling well now??
Posted 7/10/2009 12:31 AM (GMT 0)
HI guys.....just trying to read up on the newbies posts and everyone else.

Tinkerbell....I do have some comments on the defecography. I have had two myself. One before the TC and one in January, three months before my obstruction/emeergent ileo. I think it is a great tests to see if the TC is going to be successful along with the anal manometry. In my first test I was able to get a little out but the report simply stated "failure to empty rectal vault" but my anal manometry was normal and I and the surgeon thought it would be a success. It was not and in turn I was thought and by some still am to have anismus. Now, when I did my defecogray in January I was unable to eliminate even a drop of that barium paste and I was sick for 3-4 days after being so blocked up. I think with a good defecography and a failed sitz marker test yuou would be a good candiate for the TC....its better just to remove it all. I hope that you can find peace in your decisions and I will pray for you.

TDR- I do not know where to begin with you, I feel so bad for you. You sound just as I did before my TC. I must say I thought for a few months there my TC did work even with some type of an issue in my rectum. I had 8-20 BM's for a few months and then they just tapered off and stopped. It was then I did the biofeedback and botox, got the diagnosis of anismus, 3 opinions later was on the way to do home biofeedback and WHAM.....bowel obstruction. I PRAY!!! that you can get help and some relief soon. The backed up stool and constant use of laxatives made me so sick. I wish I could show you pictures from the Winter. I look a world of differnt now with my ileostomy. Am I happy I have it? NO! I cannot lie to you, but it has made me feel better than I have in a long time. I wish you peace as well in making your decision....its a hard one and one I continue to question even where I am today. Is my brain working again??? I hope to think so. I have had 5 loose BM's since the fourth of July and I can feel my muscles moving, but am I going to get excited??? Not yet. I also got on an antidepressant to help with the ileo surgery and this has relaxed me in a huge way which they say can have a lot to do with the brain/bowel relationship.Anyways....I am praying for you.

Linda-

I hope things start moving again for you. Have you tried some natural fiber or prune or grape juice. I know the feeljng of tapered bowel movements, buty I hope this turns out just to be a moment. Try and not think about it too much.....our brains have a crazy affect on our bodies. Your still going and that is good...you could also try a dose of stool softener or mild laxative (I know it brings back nightmares, but its ok). Anyways, hope your well sweetie.

Judy- Hope your feeling well.....praying for you always. Kepp us updated on how you are :)

Hodaya- Whats the word e???? Thinking of you. Any more news from Amanda or her hubby???

Lots of Love.

Lizzie

Posted 7/10/2009 1:52 AM (GMT 0)
Lizzie, can you have the defecogram while you still have the illestomy? I was under the impression that if I got a temporary illestomy that my doctor would have me do another dreaded defecogram to see if the muscle had relaxed enough for me to be able to have normal bm's before he hooked me back up. I could be wrong though.

I am more upset about the anismus. My rectum won't let anything out on its own and that is my biggest issue. Did the botox help you at all, even a little? Luckily, I am getting put to sleep for my botox injection on july 17....one week from tomorrow, and I am so hoping and praying that it helps me. I just need some relief from this....

Too bad you couldn't find Dr. Lahr because Alabama is right around the corner from me. I am in Atlanta, GA.

My husband thinks I am addicted to this forum and I think he may be right. It is just so nice to be able to talk to you guys and be totally honest and not be judged. Not to forget that I have never met another living soul in the flesh that has or even heard of colonic inertia or anismus.
Posted 7/10/2009 1:57 AM (GMT 0)
I just googled Dr. Christopher Lahr and he has a website...it is not completed, but I think he is in Mississippi. That is far from me I think. WAH It is http://chrislahrmd.com/
Posted 7/10/2009 2:08 AM (GMT 0)
TDR-

No, the botox did not help me at all....He did a total of six injections during the vidit ( I was awake) and I had no results, not even a little and I am so sorry to tell you that, but it does not mean it will be the same for you.

They can do a defecography when your hooked up. I was supposed to have the anal manometry, defecography, and small bowel follow througyh for the third time done before I go to Cleveland next Thursday and my insurance would not allow the testing to be done in Cleveland. Now, I am seeing this pelvic floor specialist/colorectal surgeon and she is going to consult on my case and recommend testing from there. I have also been in contact with Florida nwho thinks I have a chance to have some type of reversal. If this Dr. Zutshi in Cleveland thinks I should have testing I will have it done here in Michigan and then bring them the results and talk options.

I do not know what to think...I want it to be true.....I want it to be true for me and for those who have issues in the future like you and I.

Blessings,

Lizzie

Posted 7/10/2009 3:10 AM (GMT 0)

Janie and Lizzie,

I'm feeling a little better but continue to have constant spasms.  My dr said I will have them until the stent is removed, am counting the weeks - 4 1/2 left. I won't be doing much until it's removed because even taking a shower causes the spasms to intensify therefore I am hanging low until it's taken out.

I only have 6 more days of c diff meds to take so please say a prayer that it doesn't return when I finish with it; I'm finally having formed bms again so hopefully that's a sign that it's gone.

Have been enjoying having my daughter home from Mrytle Beach for the week yeah .  It's so great to have both of my girls together even if they spend most of their nights going out but then again they are 22 & 20 so I kind of forget that that is what they should be doing.

Has anyone heard anymore from Amanda's husband on how she is doing?

As always you all are in my prayers and have become such a blessing to me,

Judy

Posted 7/10/2009 1:52 PM (GMT 0)

sorry guys, but i havn't heard anything new from Amanda or her husband. i hope she'll be better to get on the computer herself soon.

i spoke to the psych on last monday and he told me to call him back on sunday, so i'm hoping that on sunday i'll have an answer. i can't figure out what's taking so long, cause i thought that he only needs to write a letter, so..... is this letter that long?? ha ha. anyway, i'll let you all know.

Posted 7/10/2009 2:48 PM (GMT 0)
Judy, my friend had a stint while pregnant because she had huge kidney stones and they had to bust them up and the ureter was so swollen it would not let urine through. She was so miserable with the stint. I remember her counting down the days until she had to have it removed...I hope you feel better soon. Are you still feeling ok since you had your colectomy?

Lizzie, what is a small bowel follow through? I never had that done. I am hoping and praying that the rest has reset your anal muscle. That would make my decision much easier for me to make, a temporary illestomy, if this botox does not help me. Crossing my fingers for you!!!!!

Hodaya, they are really making this a long ordeal, huh? I know how it feels to be kept waiting. It has taken me a year to have all the tests and 7 weeks to be approved for the botox injection. UGH, I am tired of waiting and waiting.

I met a very nice lady from ostomyland and she actually called me on the phone and talked to me forever. She has a permanent illestomy because of a botched surgery when she had a hysterectomy and pelvic prolapse repairs...she told me to have all tests repeated...so, if I have to wait until next summer to have anything done, like a temporary illestomy, then I may ask the doctor to redo all tests. It seems like most of you had the tests done 2 to 3 times. Is that right?
Posted 7/10/2009 5:36 PM (GMT 0)
.

TEST RESULTS!

I just picked up my report from the defecogram, and feel hopeful that there is something they will do to fix things. I wish I strained, as I am afraid they could be missing something. I pushed a bit more at the end, and this s where the report noted the findings.

The anorectal angle is normal at rest. With initiation of push/strain, there is a small anterior rectocele (I mentioned before - I thought I still had a rectocele! Guess my last surgery didn't fix it all) eyes There is a moderate amount of prolapse. They did not identify intrarectal intussusception although there is a large sigmoidocele. This is resulting in at least a moderate obstruction to the evacuation process. No other significant findings are seen.

So, I am relieve to know that there really is a physical reason I can't poop - but I know that this is what my uro-gyn thought it could be - and treatment is resection... of course I now have the added issue of my slow colon transit time too. I can't wait to see the colon rectal surgeon in 2 more weeks.. I am anixios to know what the plan of treatment will be.

I hope that I can start posting some personals.. I am trying to read back posts to get to know everyone!
Posted 7/10/2009 9:22 PM (GMT 0)
Hi everyone!! Well I am finally feeling better. I found out that my pain was either caused by a virus or a ruptered ovarian cyst. I only have the one ovary left so I do not want it removed. Plus thats all I need is another surgery right now. If that terrible pain comes back though, I may not have a choice. I am going poo about four times a day now. So things seem to be going well there. I still do have pain especially when I get up in the morning. I imagine it will take a while for everything to heal in there though. I worked two half days this week and boy did it take a lot out of me. I was definetly ready to go home by the time four hours was over. I am to go back my regular hours next week but I do not know if I can handle it. So long on my feet and my butt starts to hurt so bad. I am still taking about four pain pills a day. Is that normal. Its been six weeks since my surgery. I am building up quite the resistance to them by now.

Its great so keep up on everyone and hear from all the new people. Did you ever think that so many people suffer through this terrible condition. I sure did not. Great support group though. You will not find any other place where someone actually knows what your going through. Even the docs dont have a clue.

Marisa
Posted 7/10/2009 9:32 PM (GMT 0)
Wow, that sounds like that is what your problem is, the large sigmoidocele. Doesn't that mean your small intestines are coming down into your colon? How do they fix that anyway? I wonder why the doctor didn't see that when you had your sacralcolopopexy? Maybe it can only be seen on the defecogram? Sounds like you will definately need more surgery....and with the colon being loopy, maybe a resection and fixing the sigmoidcele will fix you right up. But, then you still have colonic inertia too. UGH! Would you get a colectomy to eliminate the colon since you have the colonic inertia? I wish they would of seen something that can be fixed on my defecogram. Anismus has no cure and the botox and biofeedback aren't that successful, is what my doctor told me. You sound like you can be "cured" and that is a very good thing. Let me know what you think, Tracy
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