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TOTAL COLECTOMY PART 24

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Posted 8/9/2009 1:07 AM (GMT 0)
Marisa and Judy,
You two should come and visit me in sunny Florida; today was 88 and this was actually a cool day!
Judy,
My son (I have one son and 3 stepsons) dated a Brazilian exchange student in the 11th grade. They only went out for about 6 months and then she had to go back to Brazil. My son was heartbroken. Well, he survived and then went to college and met and dated a girl for almost 5 years. We fell in love with her; her family and ours went on cruises, vacations and celebrated holidays together. After 5 years she wanted to get married and he didn't, so they broke up. I was completely devastated. I couldn't believe Kristy wasn't going to be part of our family. She was almost like a daughter to me. My son knew how hard I took it and he said "mom, I promise I won't marry someone you don't love too". Well, fast forward a year after he and Kristy broke up....the Brazilian exchange student comes back to Florida to visit relatives (8 years later), calls my son and long story short, they have been married 3 years now. I absolutely love her to death, have a new 8 month old grandbaby and Kristy went on to marry someone else last year. Everyone is happy. I'm not sure why I told you this other than you said how much you love the boy your daughter is dating...hope you have a happy ending too!!
Posted 8/9/2009 5:14 PM (GMT 0)
Judy, I live in Pocatello, Idaho. Today is a bit nicer with a high near 77. We will probably take the dirtbikes out and a simple trail so I do not hurt myself. This summer has been unusual. Usually by this time it is in the high 90s. But, I do not mind because of how much I have been down this summer.

Watched the fights last night and they were pretty bad. No one really fought that well. But, they did show Georges St. Pierre sitting in the crowd so that was worth it!! LOL.

Marisa
Posted 8/9/2009 8:28 PM (GMT 0)

thanks so much everyone for your advice and prayers :o)

i don't have an ipod, Judy, nor do i have a laptop, but i hope i find what to do..mmmm.. maybe i should get an ipod.

Jenise, i hope you manage to have some fun and forget about eveything. when you get back, make sure you call the dr yourself. i know what it's like, and it's sad but unless you're dying, you have to chase them yourself to get answers.

Judy, i'm so glad the vicodin is giving you some relief, i hope it's over soon and you don't need any pain meds  yeah

Janie, puppies are just SO adorable, you gotta love'm!! enjoy!! give her a kiss from me, i don't mind the licking lol tongue

Marisa, you sound like such a sports girl.. i LOVE the outdours, but have forgotten for SO long how it's like. i truly hope this surgery really sets me free!!!!!! i SOOOOOOOOO need it   cry !!!!!!!!

well i sure am getting nervous, i hope i don't FREAK OUT in the last minute and just split. but having you guys is the best thing that could have happen to me and there's NO WAY  i could have managed w/o this board.. i do mean no way! everything i've learned here is priceless and NO dr could have ever tell me all this information, only the ppl who are going though this can. and the understanding, encouragement and support can only come from the ones who really know what i'm going through. i couldn't have made it w/o you all and i can't thank you enough!

Posted 8/9/2009 11:27 PM (GMT 0)
Marisa - I know about the crappy summer; it doesn't really matter as I haven't been able to do much of anything either.  But hopefully after Tuesday all that will change and we plan to go to Myrtle Beach to see our other daughter.  Our older daughter is taking 10 days off from her job before she goes back to college so all three of us will be going together :) Can't wait for my girls to be together, they have grown sooooo very close since my younger  daughter has moved away.  I only have brothers so I never had the close bond of sisters.  But I was a complete tomboy and very athletic until my knee became messed up, now I can't do too, not even walk a mile but after all that's happened over the past couple of summers, I've decided on NO more surgeries for a loooooong time so I won't be getting my knee fixed probably until I retire which is 8 more yrs..  Wow, I'll be 55 in eight more yrs; man am I getting up there, I do hope that I am very healthy for those retirement years, that's what I'm looking forward to.

Janie - Loved hearing about your family and the wonderful turnout that has transpired; it gives me a lot of hope.  I know that we all experience things for a reason and that my children will hopefully choose a partner that we love; but what is the most important is that their partner is good to them and that they love them.

Have to go now there is a big thunderstorm, will talk with you all later.

Love to all,

Judy

 

Posted 8/9/2009 11:41 PM (GMT 0)
Hi to everyone! I am back home now (long trip to see the doctor). I am doing much better, still very tired. I had a small accident on the way home. We were in the car and traffic was thick. The urge hit me that I needed to go and we got stuck at a red light. Well, I was horrified! But thankfully, my husband had packed extra clothes for me and just walked behind me to the restroom. I hope this never happens to me again. I am going to put extra clothes in the trunk of my car just in case.

Hodaya - I turned 36 in July while I was in the hospital. I have a 17 yr. son, 15 yr. son and 11 yr. daughter. I thought it was cool that we are the same age and going through this at this time in our lives!

Judy - I am constantly praying for my childrens' future mates! I want them to feel like my kids and to fit into the family like a piece of a puzzle that is missing. Since I can't handpick them (though I'd like to!), I do the only thing I can - pray!!

I got a great report, don't even have to go back unless I have a problem with the small rectocele or pel. floor dys. She prescribed me Zofran and Reglan and I feel much better. Thanks to all of you that advised me about Zofran!! Love it! I have lost 12 lbs. total, not as bad as most of you. I am at 126 and happy with that. I have no muscle tone and I will start exercising tomorrow. YEAH!!!

Love all of you,
Christy
Posted 8/9/2009 11:56 PM (GMT 0)
Hi everyone...

Hope you are well. Well, after four days of phone tag my surgeon and I finally connected. He had all of my reports from cleveland and said things looked very good in terms of a reversal. He said that after I am almost done with biofeedback ( most like nomore than a month) I am to make an appt to see him in the office and make an schedule a date for the reversal. So its looking like end of September beginning of October. I am so happy, yet so nervous. I hear they can go back through your stoma hole and reconnect you this way and without complication it is a much easier surgery, but infection and ileus are two of my trademarks and it will just be what it is. Some people are out in 5-6 days and some a few weeks. I have adhesions from my last surgery and kinda want him to just open me back up and get rid of everything....we will see when we meet in a month.

Christy- yeah for the good check-up. I am so happy for you.....sorry about the accident, but your hubby sounds great. I jeep extra clothes and bags in my car at all times. Glad the Zofran is working for you....its been all that works for me.

Hodaya- You will not freak out honey, you are ready for this and deserve your life back and to sense the beauty in life again. Life is too short to live how so many of us have for years....you will be great love.

Janie, Judy, Jenise, Maris and everyone. Hope you are all well and enjoying thr weekend. Love to all.

Lizzie

Posted 8/10/2009 3:59 PM (GMT 0)

Hi Girls,

Lizzie - So excited for you Girl, only about 6 weeks to go and you will get your reversal, YAY!!!!!!!!!!!!!!  SO happy that things are finally turning around for you and there's light at the end of the tunnel; can't wait for you to have great days EVERY DAY!!!!!!

Christy - so to hear about your "accident," isn't it great to have the BEST husbands EVER!!!!!  When I was so sick with the c diff (before they diagnosed it) I had so many accidents between my nephroscopy tube leaking and the severe D that my poor husband was doing at least 10 loads of just my laundry a day.  I'm so glad the zofran is working for you; I have used it for years before my surgery when I had pancreatitis and now I just use it periodically but it works just great.  Don't overdue it working out though, it will take a long time for you to regain your muscle-tone, just do a little bit at a time.

Hodaya - I never had an ipod before my surgery but the woman (kinesiologist) that I see talked me into getting one and it was the best investment that I made.  I'm totally addicted to it as I love music plus you can download books, movies and tv shows.  I can't believe that you are finally going to be on the other side like the rest of us:)  just a few more days...try not to worry...look at it as a whole new beginning to your life :-) .

Tomorrow is my big day, hopefully I will finally get this stent out and be able to enjoy the rest of the summer.

Talk with you all later, hugs and love,

Judy

Posted 8/10/2009 7:42 PM (GMT 0)
hey all,

well i saw the surgeon again today and we agreed on leaving only 20 cm instead of 25 cm as he initially suggested, so if the rectum is about 16 cm, so only about 4 is left above the rectum, which i think is o.k..... well at least i hope so.

we talked some more about everything. i honestly can't say i feel totally calm about this whole thing, but looks like i never will, so i should just go for it and that's that.

Christy, so sorry about your accident, it's amazing how all of you guy's hubbies are so supportive and helping you all through all of this. they all sound like bunch of great guys! if i get the chance to get married, i should have a hubby like that. so great to hear your follow up went well and that you're feeling better now.

i don't know why, but i was under the impression you were a lot younger than me. guess i was wrong.. anyway, sounds like you got married really young, like at 18? i think it's great you're a young mother, i always say that being a young parent is best both to the parent and the child, they both benefit from it.

thank you Judy and Lizzie, i'm really trying not to worry, but it overwhelms me the thought of loosing a whole organ, you have to agree that this isn't so simple. you know, my mom just bought me depands this morning to take with me to the hosp.... YIKES!!!!!!!! so she was like asking me to take a look at it and see if they were o.k and i was like...... Eeeewwwwwww, i just couldn't stand the thought of me wearing something like that..... oh man, i cant imagine this. i'm having a hard time here.

look, i know i'm being so problematic again, but that's what i'm working on and i truly promise i'll get over it! (hopefully with G-D's will of course).
Posted 8/11/2009 2:43 AM (GMT 0)

Hodaya,

Honey, I know EXACTLY how you're feeling right now.  As calm as I tried to stay, I was still scared to death of losing my colon...it really just doesn't seem natural, does it?  But you WILL be better afterwards.  I honestly believe if you go in knowing it won't be a quick fix, but will be a slow recovery ending with great results, you won't be disappointed.  Even though things aren't perfect for me, I can't tell you how much I enjoy pooping regularly now.  It's amazing...for the first time in over 30 years I can actually poop!  It will all be worth it, honest!!  When you're home and feeling so much better than you do now, you'll wonder why you waited so long! 

When you were talking about the Depends, it reminded me of what happened in the hospital.  I didn't take any with me, and on day 5 when I was finally given broth to eat, I started going....and going...and going.  All the time.  Liquid just flew out of me and I had absolutely no control at all.  I was so depressed and I wondered how in the world I would live that way....I was sure I was just going to always be like that.  I couldn't even walk the halls of the hospital because I couldn't stop going to the bathroom.  My husband went to the store and bought me some Depends, and immediately I felt so much better.  Those Depends gave me my freedom back and when I put them on, I can't tell you how my mood changed!  The next day I had much better control, but I still wore them after I came home from the hospital for a couple weeks.  It was more of a security blanket for me when I went out, and I was so happy I had them.  So maybe you won't feel the same way if you need them and realize they are a good thing!  And most importantly, a temporary thing!!

Enjoy this week, and just remember when you're feeling horrible because you can't go to the bathroom, soon you'll be feeling so much better!  We're all here for you, and you'll be fine.  It's normal to be scared, but it will be over soon and you'll be back here telling us how it was all worth it!

Hugs, Janie

Posted 8/11/2009 8:36 AM (GMT 0)
i LOVE you Janie! thank you so much, you're the best!! your words of comfort are really helpful and encouraging. yes it does seem so aggressively unatural to go in to a body and take an organ out, and i know it sure isn't a quick fix, thanks to this forum i'm prepared for all that can happen and the things i may have to deal with post op.  i'm adjusting over here and i think i'll be o.k. i know it's only temporary (with G-D's will). i hope to be back and be at that stage of being able to say how wonderful it is to poop !! the support of all of you means a great deal to me and i honestly don't know what i would have done w/o it. love you so much!!
Posted 8/11/2009 5:45 PM (GMT 0)
Hi everyone. Hodaya are you getting excited? Nervous I am sure. Trust me though you will feel so much better after about six weeks of healing. I think the four inches will be great. Well, I have to be quick because I am at work. Just wanted to check in with ya all. You guys are my new bestest friends.

Marisa
Posted 8/11/2009 7:12 PM (GMT 0)
Marisa, it's 4 cm not inches, one inch is 2.54 cm, so it's less than 2 inches, i hope that was a good decision. mmm... about my feelings, well i think i'm trying to not feel at the moment. i hope you have a great day at work and feel good!!
Posted 8/12/2009 3:41 AM (GMT 0)
Hodaya- Its completely normal to feel the way you are and to have ups and downs in your emotions.......You going to do wonderful, be wonderful, and feel wonderful. Your going to experience life you have not even noticed how much you miss. Find peace sweetie. The decision was long over do.....it took so much work, now, just let it happen :)

I start biofeedback tomorrow afternoon.....I am nervous and not excited. I hate my you know what being played with for 90 min....ughhhh. At the same time, I am excited because I may have this life I have dreamed of for so long back in reach. Its all so surreal....I had an obstruction all night last night. It was horrible and this am I work up to stool in my bed and skin breakdown again. I miss you all so much. I hope that even though things may be looking up for me you can "hold" me through this waiting period. I am soooo scared. So scared of the future and what it may present. Scared of a third surgery in less than 2 years!!! and complications. I need you ladies!!!

I played softball tonight ( my first real workout...I used to be good back in the day). I am playing with work people. It was fun and humiliating, but a little painful. I feel such pull on my abdomen. I think I have adhesions :(

Anyways....I am sorry to vent. I just need you guys. I am so scared.

Lizzie

Posted 8/12/2009 5:38 PM (GMT 0)
thank you so much my dear Lizzie! i don't know, everyone tells me i should be happy and excited, but i don't know why i just feel sad :o( i guess it's just too scary, it's too big of a surgery, i can't be calm about it and can't help thinking that maybe from now on my whole life is over. i'm trying my best to be positive, but it's not easy. i feel like i want to sleep all the time, i can't handle this tiredness. i'm in G-D's and the surgeon's hands and hoping for the best. i'm not envying you or Janie.... i hated the biofeedback, it was EXTREMELY uncofortable! it's funny you're both starting it the same day. i wish best of luck to both of you and that it's over soon. i know that after all you've been through it's hard for you to believe things will ever work out, i SO understand how you feel, i'm feeling the same way about myself too, that after 16 yrs where nothing helped so far, it's so hard to believe i'll ever have my life back, it just seems impossible that it can actually happen....., doesn't it? but maybe we're both wrong and soon we will be surprised to discover suddenly that things are working great and that we actually feel great, that we're normal again and can live our lives like normal ppl.. oh won't that be great? we have to believe! i'm praying we finally win our lives back, i'm really hoping that it's not surreal, but REAL! keep your faith, Lizzie! we all have to!
Posted 8/12/2009 5:50 PM (GMT 0)
Judy, did you finally have your stent out? did it work out o.k? a little worried you havn't checked in to tell us, hope everything's o.k. thinking of you.
Posted 8/13/2009 1:53 AM (GMT 0)
Hi all,

A lot has been going on with everyone.  I have been on vacation and now am busy with work and family and just haven't had the time to get on much.

Lizzie, I hope all goes well with the biofeedback.  Hopefully you will get your reversal soon.  I will keep you in my prayers.

Judy, just wondering how the stent procedure went.  Hope everything is ok.

Hodaya, I am following your upcoming surgery closely because I think I am next in line.  They are supposed to call me this week with a date.  I am thinking the beginning of October to give me time to take care of things here and with work.  I too am extremely nervous and still can't believe I have decided to do it.  I have had several bad days in a row which makes me feel better about my decision.  I took 16 pericolace stimulant laxatives yesterday afternoon and got very little relief.  I am sick of this life.  I think my surgeon plans on taking all of my colon out what is the reasoning for leaving a couple of inches.  Should I be asking for that???  I am getting really worried about forgetting to ask the surgeon an important question.  It's just too much to think about.  I will be praying that all goes well with you and please keep us posted on how you do.  Try to stay calm but I know that will be hard.

To everyone else you are in my thoughts.  Just stay strong and keep the faith!

Jen

Posted 8/13/2009 8:01 PM (GMT 0)
thanks so much for your prayers, Jen! welcome back, hope you had a good time on your vacation! well, some surgeons believe that leaving ANY inch of colon is not a good idea and it's best to take it all out but the rectum, yet some surgeons think that maybe leaving a small part like 2 inches, like many of the ladies here had, is better to prevent too much diarrhea, and there are some who leave a lot more than 2 inches. my surgeon and i agreed on leaving about 4 cm obove the rectum, which is even less than 2'', i think it'll be best for me with my pelvic floor dysfunction (PFD). anyway, whether you have a PFD or not, with CI it's best not to leave much of the colon, 2'' tops, any more than that will just cause probs with constipation again and ALL of those who had some left had to go back in and have it removed as well. lol i know what you mean about forgeting to ask the dr questions, when i see him i always keep thinking... "there MUST be something i should REALLY ask, and i just can't remember at this moment... what is that thing..???"   lol i keep telling my dr "i'll probably have more questions" and he always says "no prob, talk me whenever you have one." he's really great! how is everyone else? i went for my pre-op today. i'm gonna have to be given antibiotics b/c i have COPD (Chronic Obstractive Pulmonary Disease). i was really happy to find out that i'm gonna have my own personal computer right next to my bed, it's hung from the wall next to every bed.... is that cool or what!! i never thought i would have anything like that. well it's a special private hosp that with extra med care i can afford it, i have to add about 1000$ and it's o.k. i'm calming down, i'm just trying to block any feelings, to just not think too much and not feel too much! i'm too tired to feel! am i making any sense...? LOL!
Posted 8/13/2009 8:07 PM (GMT 0)
Hi everyone! I am home from my cruise and missed my conversation and support here! I had a really good time and didn't think of my colon issues much - only when I had to go to the bathroom! LOL. Only thing I hate about vacations - is that everything stops working and I get very backed up'ed. I did bring my Miralax and fleet glycerin - so I did "okay".

Once I got home this afternoon, I called the doctor's office and let them know I returned (since I never heard from him before I left) and the doctor just called me back! He said he reviewed the reports and feels that he will do a partial colectomy, removing the sigmoid colon section... and leave the rest. He said if more markers (from sitz test) were left on the right side, he would be more likely want to remove it all, but feels that the sigmoidocele is what is stopping the flow and causing the back-up (like a blockage). I sure hope he is right - as I don't want to face another colon surgery!

He may also do a revised rectopexy (pulling up my prolapsed rectum). This was just done - but it is still moderately prolapsed. I am happy and scared! I know SOMETTHING has to be done - as getting the poo out is soooo hard, and then.. when it is out, it is so weird looking - often pencil thin and flat !! (Sorry TMI!!!) I have a pre-op appointment in 2 weeks!!!! I have another cruise vacation I am taking with my parents in October.. so I will schedule my surgery just afterwards.

Hodaya!!!! (HUGS) you're time is almost near! I can totally understand how scared you are.Even though I KNEW I would have surgery - hearing the surgeon confirm it and making a pre-op appointment - just brings it so much closer to a reality!

Jen, you'll be just ahead of me.. so I will be watching your posts!

Everyone else - you're all in my thoughts!! I will have to spend some time here catching up on things (and I need to unpack!)
Posted 8/14/2009 12:25 AM (GMT 0)

Jenise I am glad you had a good time on your cruise.  Most of my markers were on the right side and that is why my surgeon says my entire colon needs to go.  I was sort of hoping they would leave some of it.  For some reason that sounds better to me that taking the WHOLE thing out shocked .  I guess our surgeons know what is best for each of our different situations I just hope they are right.  It is just scary to put that much trust in someone.  I will pray that things will go well for you.  You are lucky to get to go on another cruise.  I've always thought about it but am scared I will get sea sick.  I have HORRIBLE motion sickness rolleyes !  We just stick to the beach.  We live 4 1/2 hours from Topsail Island, NC and we keep a 5th wheel RV set up year around on the island so that is our getaway.(DRY LAND)lol tongue

My surgeons nurse called today to check in with me.  She had been on vacation and just wanted to talk and make sure she was caught up with everything. She said the scheduler for surgeries should be calling me within the next few days.  I should be getting a date around the first of October yeah  .  That leaves me a month and a half to take care of things.  I'm sure the time will fly by. 

Hodaya I am thinking of you each day.  I am sure your mind is running a mile a minute.  Mine would be!

Jen

Posted 8/14/2009 2:18 PM (GMT 0)
Hi everyone.

Jen, I agree - for some reason it does sound better to take part of the colon rather then the whole thing. I am not sure that I would be ready to remove the whole at this point of my life. I pulled my sitz marker study to look at it again, and my colon is no doubt slow... but again, he feels that the obstruction is causing it all to get stuff and backlogged. On day 4 I did only have 3 markers left on the right and on day 5 - no markers were in the right colon, 7 were in the transverse and 13 in the rectosigmoid (were everything apparently gets stuck). Looking up the partial vs the whole - it seems as recovery is pretty much the same, same risks and all - but I would imagine that the diarrhea afterwords must last longer, and be more frequent..? Most of the information I find is clumped together - subtotal & total colectomy.

Hodaya, really thinking about you! I know you must be getting everything ready for your recovery time. It's great you'll have a computer near your bedside! I was in one hospital (day surgery) that had this. It was just a small town hospital - so I was so surprised! My hysterectomy/prolapse surgery was in a large hospital - and no such thing there!
Posted 8/15/2009 5:17 PM (GMT 0)

Hi Girls,

I can't believe how much I've missed in the four days I've been gone!!!!  I finally got my stent out on Tuesday and couldn't believe that it was almost 12 inches long and had a ring on each end that was the size of a nickel, no wonder it spasmed all the time.  Whenmy dr pulled it out he showed me and said now do you no why it hurt so much; I wanted to say and when are you going to have one put in?  But I'll discuss that with him later...Anyway, he wanted us to stay up there for the night in case there any problems, he gave me his cell number too.  Well, I started getting back pain two hours later and I called his office because he was still there.  They said that was normal for a few hours and to take pain meds.  I continued with the pain throughtout the night; my husband wanted me to call him but I just can't do that to a dr, they work way tooooo hard so I suffered through it.  So I called his office in the morning & he ordered a ct scan.  The ct dr told him I had a blockage and he wanted me to have surgery on Thursday to put in another stent.  I was NOT happy; I was going to do just about ANYTHING to pay him off to not have that stent put back in...send him on vacation, find him a wife if he didn't have one-he's quite young, ANYTHING  - LOL.  So he couldn't fit me in until like really late in the day and when I gave him the ct scan to look at, he said he didn't see a blockage - YAY - but still wanted to do the cystoscopy and see what was going on with the tube.  He found a narrowing in a different area but siad it was working very well and kept me overnight and did a renal scan on Friday.  I came home late last night, still have some back pain but not as bad so they think it is all due to the stent removal.  I just wonder if possibly it had formed some scar tissue around it and when he pulled it out itbroke away causing the pain, because it felt like he was pulling my insides out when he took it out!!!!OUCH! 

Anyway, I was so worried I wouldn't get home before You went into the hospital Hodaya and I was having a fit as to how I was going to talk to you.  I finally figured out that I'd have my daughter sign in for me to get a message to you but now I can just talk to you myself. First, I want to say that I Love you and that everything is going to be okay.  Second, you have a great dr that you have bonded with and whom you trust deeply and that makes a HUGE difference in how things go for you.  Third, you know soooooooo much information about this surgery and that is good and bad because you know what can go right and what can go wrong.  Also you have talked with so many of us that you know what can and can't go wrong. PLEASE, PLEASE, PLEASE try to think of the GOOD things you have read and heard not the negative.  Try to think of my surgery and how SUCCESSFUL it has been.  I know there are many things that can happen but I didn't have ANY of them happen and pray that you won't either. Next, I wanted to discuss the Depends thing with you, I NEVER had an accident until I had c diff.  Yes, I did wear a pantyliner for the first 9 months just in case but that was more for piece of mind.  But I did and still ALWAYS use prep. H wipes and never use TP and for months always used A & D ointment not the creme following each BM, it will help with the butt burn and hopefully the hemmies which I never had until this surgery. Next, WALK, WALK, and WALK some more, this will help you to heal better than anything!!!!!!!  But DON'T and I repeat DON'T do ANYTHING when you get home. Hire a housecleaner, have meals or takeout brought in and have someone do your laundry; you DON'T want any adhesions or a hernia!!!!!!!!  Lastly, I really can't believe it has been over a year that we have been talking to each other and that you are finally going to be getting WELL.  You have been the ROCK for ALL of us so MANY times and we are here for you.  I have prayed so hard and so much for God to surround you with his Angels and to be with your dr as he is making you well as you have not been in so long.  My heart is with you and I will continue to pray for you.  I look forward to hearing from you soon with great news that your surgery has gone well and that you are feeling well.  Always remember that we are here for you and that we love you!

I will talk with the rest of you in a little bit my Mom has just come over.

Hugs and love,

Judy

Posted 8/15/2009 7:19 PM (GMT 0)
Judy,

Bless your heart! You are always so positive for everyone here while you're going through so much yourself. That stent sounds horrible! Are you feeling better now? I hope you don't have to have it put back in; I know you were so ready to have it removed. Are you feeling better now?

Hodaya,

I can't really add much to what Judy said other than I hope you know we're all praying for you. I really think that you'll be so happy you did this; it is a fairly slow recovery, but you'll feel so much better afterwards. Did your Dr. say how long you'd be in the hospital? We're all be anxiously waiting for your report!

Get a good night's sleep tonight and try to relax, which is probably next to impossible. I know I was a bundle of nerves myself! Still, do what Judy said and think POSITIVELY and you'll be fine....better than ever!
Love you, sweetie. Good luck.
Hugs, Janie
Posted 8/16/2009 3:00 AM (GMT 0)

Jen & Jenise - It looks like you two will be joining the rest of us soon; I know it sounds scary but you will feel so much better and your life will be forever changed.  I am so glad that the two of you will be doing this around the same time so that you can help each other and always know that we are here for you and will support you EVERY step of the way.

Janie - You are so sweet!!!!  I thankfully don't have to have the stent again and am looking forward to being healthy.  Hopefully we are going to go se our daughter in Myrtle Beach next week so that will be a nice end to help put this long ordeal behind us.  I had a great appt with my GI just before I had the stent taken out and things are all good there; no more c diff, I don't have to have anymore bloodwork for anemia for 3 mos., and I can even try to eat some fresh fruit and veggies like watermelon, but only very, very small amounts and one at a time just absolutely no stringy veggies, fruits, salads, nuts, seeds.  And I don't need to go back for 6 mos My GI dr is sooooo sweet, he gave me a kiss on the cheek and a big hug and said he was so glad to help me again.  I am truly blessed to have this man for my dr:)

I hope and pray your biofeedback works for you and that you will soon begin to feel better.  This is a great surgery and can truly make your body feel wonderful and I so want that for you.  Hang in there and in time everything will truly work out; always believe that it will!!!!

Lizzie - Hope you are doing well girl!! Praying that you are able to have your surgery soon and will feel better too.  You too always need to believe as I know you do :) Love you!!!

HODAYA-Praying for you girlfriend!!!!!!!  LOVE YOU!!!!!!

Judy

Posted 8/16/2009 4:44 AM (GMT 0)
tinker, welcome back! glad you had a good time on your cruise :) it's a good thing you called the surgeon, cuz waiting for him to call would have been a loooong waiting. so it's good, now things are moving forward and you know what's the plan. i hope that removing the sigmoid only is enough and solves all your probs, that would be awesome if you can keep the rest! thank you so much for thinking of me, i'm sure you're getting excited too. i wish you all the best, you're in my thoughts and paryers! Jen, i know what you mean, i'm scared too of losing my whole colon.. but we both asked for more than one dr's opinion, so i guess that after hearing several opinions we should trust that this is the right thing to do. as scary as it is, i'm more scared of staying like this, cuz this condition causes more damage to the pelvic floor during the yrs. i had my rectum fixed just 2 yrs ago and i already feel there's additional damage to it b/c of the CI, that's why i don't want to wait any more. it's really good your rectum is still o.k, thanks to that, you have great chances for a successful result! it'll be pointless for you to wait and risck having probs with your pelvic in the future, so yes this is the right thing to do and the time is most right for you. i wish you the very best, you're in my thoughts and prayers, my dear! Judy.... ((((((HUGS)))))) i was so worried about you! OUHC!! sounds like you had a real painful time at the dr, i'm so sorry honey for everything you're going through, and still you're able to think and worry about me, about all of us!! and still able to keep such a good spirit, you are just SO funny!! you're truly one incredible lady!! i'm SO glad you're feeling better and your GI confirmed that the c-diff is gone! you deserve a relief! having a good caring dr is so important and i'm happy you have such a good relationship with yours. i pray you continue to feel better and that it all continues to resolve on it's own! i LOVE you so much too, Judy!! your warm words brought me to tears! i CAN'T thank you enough for your CARE, PRICELESS ADVICE AND PRAYERS!!!! they're all so helpful and mean SO much to me. i'm trying to keep an endless positivity :o) i live with my mom, and she is the BEST help there is in the world, she'll just do ANYTHING for me, so i won't have to worry about anything. thank you SO much again for your prayers!! the hosp is providing each patient with his own computer and with internets... isn't it cool? i found out about it only last thursday. so hopefully, if all goes well, i'll be able to check in while in the hosp. Janie, thank you so much for your constant support and prayers! i honestly don't know WHAT i would have done w/o you ladies!! having you all here is TRULY the best support i could ever ask for. my surgeon said it's a 7-10 days stay in the hosp, but as i mentioned, i'll have my own computer in the hosp, so hopefully i'll have no prob to update you all soon after surgery. Judy, have a GREAT time with your daughter, enjoy!! well... i have to be in the hosp in just a few hrs..... better get ready now.. love you all lots!!!!!
Posted 8/16/2009 5:47 AM (GMT 0)
Hodaya,

Thinking of you, praying, and wishing you the best!
Jen
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