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TOTAL COLECTOMY PART 32

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Posted 3/16/2010 4:46 PM (GMT 0)
I hope everything is okay lizzie. My prayers are with you!

Amanda
Posted 3/16/2010 6:19 PM (GMT 0)
Hello everyone,  I have some questions it is day 25 after the total colectomy.  I am having a problem and I dont want to bother the doc with all my silly questions so I am coming to you.

I am having a great deal of nausia especially if I sit up for longer than 10 min and I went for a very short walk yesterday just to the mail box and I got the unbelieveable nausea that would not go away and I was taking the expensive nausea meds...Zofran, is this normal.??  But when I get nauseated like this at the top part of my incision I get a little hump and its hard I think the nurse in the hospital told me the hump thing was fasha, but I am not sure.  But I do notice it when I am extremely nauseated.

Also wondering if I should ask for more pain meds as I am almost out,  I was wondering how long most of you took pain meds???

I am trying to get my energy up by trying to walk but that is not working too well, am I pushing myself too much or should I still be a couch potato which I am most of the time?

Hope you are all doing better today

Leslie

Posted 3/16/2010 6:39 PM (GMT 0)
Lizzie-hope they can figure out what is going on with you. Is this ever going to stop for you? I am so sorry you have to go through all this pain.

Leslie, I cant believe that man would have the nerve to say that to you. I would think he would at least be apologetic. He did not have the right to take your sons life. And your ex taking him off life support without even talking to you. That would have been so hard!! How did you not just want to take a bat to him?? Even if he was brain dead you should have been in on the decision. It must be so difficult for you to share your story, but it has helped me to know that I am not the only one who is going through such turmoil over a loved one being taken at someone elses mistake. I have to put all my trust in God, that he will take care of it. But, as you know, that is very hard when you see the people who did these terrible things living their lives like nothing happened. I hope I never see Tim around, cuz I dont know how I would react.

I am doing better, but these panic attacks come on without warning and I just have to take it day by day. Its just the anticipation of the 25th. I hope it will get better once Tim is out of prison, but I dont know. All I can do is hope.

Love you all
Posted 3/16/2010 6:44 PM (GMT 0)
Hey Leslie, I think we were posting at the same time. I am nauseated 24/7. I take phenergan three times a day and I usually take two. And I still take Vicodin daily. about two a day. So, yes that is normal. My doctor said I will probably always have the nausea. I would definetly ask for more pain meds. My doctor has no problem with it. You are not long post op either so it is not unreasonable for you to need more. At 25 days I was still just barely getting around my house, going for very small walks, and still eating very little. Its going to take you awhile to get your strength back and I would definetly not push it.
Posted 3/16/2010 7:02 PM (GMT 0)
Marissa,   Yes a bat would have been appropriate for my x...LOL  It made me feel like I was not important enough in my own sons life to be apart of the decision.  But his mother was very controlling so I know it was all her doing.  I rarely speak to my x because I have still to much anger over this.

What I have to do with all the important dates concerning my sons death and his killer is on those days, like the day he died, his birthday, day the guy got out of prison.... is I replace all the bad with good thoughts of all the fun and funny times with my son and that helps me get through it, maybe that will help.

But this is new and very fresh for you but try not to let that monster ruin or control your life or he wins..  all my love you to.

Lizzie, are you out of the hospital and what did they say, ya we were posting at the same time.

Posted 3/16/2010 11:27 PM (GMT 0)
Leslie, I wonder if you may still be having issues with ileus??? Maybe some of the intestines are still sleepy. Have you ever been dx with gastroperis? Were your small intestines tested before the surgery? How is your pooping? Do you think you are going enough? What are you eating? If I was you, I would eat only liquids for a few days and see if this helps. If it does not get better, go see your doctor because maybe you need a different medication to add to the zofran. Are you actually throwing up, or is it just the paralyzing nausea. I HATE being nauseas. I had several weeks of nausea after my hysterectomy...it was terrible!
Posted 3/17/2010 1:10 AM (GMT 0)
answers4me2
Hi, actually called and the doc is seeing me in the after noon tomorrow as he is leaving on vacation...ya I am sure I have illisus again, pooping is outstanding, nausea beyond belief, throwing up some, no they never tested my sm intestines ..the nurse told me to back off my pain meds as I should not be having much pain....Is she kidding me I still am hurting pretty good, but she said that the pain meds are probably making me sick, so to take extra xanax...

so I was eating pretty good but I think I was eating probably too many different things so I have backed off, plus cant keep anything down.  so I am going to try and see if I can keep some broth down now.. thanks for the information and I will ask him about tht test or is it too late for that info.

Just pooped out literally and figuratively...Leslie

Posted 3/17/2010 5:15 AM (GMT 0)

Gosh this forum is busy.  I have not been on in weeks and have been trying to catch up with everyone. 

Leslie I think it was you that was asking about nausea.  I had my total colectomy on October 26, 2009.  I had emergency open surgery on November 17, 2009 for infection.  I get nauseated daily and it comes on without warning.  I will be perfectly fine one minute and the next I am about to puke.  I take zofran and phenegran.  I am usually better within about 30 minutes of taking the meds.  I am basically learning to live with it. 

I am doing very well and go back to work Monday.  I have really made a lot of progress in the last 3 weeks.  I have gained 11 pounds and feel so much better despite the bouts of nausea.  My life is way better now without a colon even with all the complications.  I went to the GI doc today and he was so happy with the way I looked he just hugged me and said he couldn't believe how much better I was doing.  For those contemplating surgery it is scary but has really made things better.  For those of you who have recently had surgery and feel like you will never get better you just need to keep the faith.  Just 6 weeks ago I thought that I would never get better and was thinking I might have made a mistake. Then things just started to click, I got more energy, I quit throwing up, and just felt better.  I can deal with the little bouts with nausea as long as zofran keeps working.

I know many have posted that they still have constipation issues.  I also have to take one dose of Miralax a day sometimes every other day.  I have had two small bowel follow throughs which showed that my small intestine is now also affected with slow motility. Things are still way better than before surgery.  I can eat without blowing up like a toad and dont have to take handfuls of stimulant laxatives.  Surgery is a huge thing but if all tests point to colonic inertia I truly believe surgery is the best answer.

Lizzie I am worried about you.  I hope you have gotten some answers by now.

Hodaya I am so sorry you are having so many problems.  I am sure you are frustrated with the doctors.  I hope they can figure something out for you soon.

To everyone else even though I haven't been on here in awhile I still think about you gals daily and you are all in my prayers.  I am going to try to get on here more often just been busy now that I am feeling better.  Little League baseball and softball has started and my crazy husband is coaching my daughters softball team and my sons baseball team.  This means we will be living at the ballpark which makes computer time more difficult.

Thinking of you all.  Someone asked where I lived in NC can't remember who and am afraid to try to look it up while typing a post.  It is so easy to lose a post here.  Anyway I live in Mocksville, NC.  It is about 30 minutes west of Winston-Salem.

Jen

Posted 3/17/2010 9:25 AM (GMT 0)
LOne Story short....worsy day of my life and 2 er visits.

Have to see a rheumatologist for joints....not sure whats going on. gave me pain meds and sent home. I fell aslepp for 8 hrs and never emtied my pouch...needless to say by 7 pm I could not get my cath in. I tried everything I tried before when this happened, called CC on call surgeon and took his advice...he wanted me to come there, but told me since i was in so much pain and puking to go to local er. Got there and 10 mg dilaudid, 5 mg valium anf finally te colorecctal on call resident came in and after tryinf fivr different tubes he was able to get through my vavle and into pouch. This just happened. I was thre from 10 pm to 5am.....i have the tube in place right noe becuase of all the swelling and icing my belly as we speak. It was the scariest thing ever as they were not 100% i did not have a slipped valve and was ready to drive to CC tomorrow. It had been over 13 hrs since last emptied when thry got it working....i will never fall asleep again without my alarm clock while this pouch is  healing....plus i was trying so hard I made it so swollen. I honestly feel sick from all the pain meds. I have had 12 of dilaudid today iv and 10 valiium, my normal fentanyl, etc and had thrown up twice from pouch being full. Just took ibuprofen and icing belly. tube in place for now until swelling better......WORST DAY OF MY LIFE!!!!! Still can barely move joints, but least of my concerns for now.....

Lizzie

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