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For those who still have their bums...how often do u "go"?

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Ostomies
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Posted 6/29/2010 3:01 AM (GMT 0)
Ok so i know that some of us who have temp ileo's and still have our rectums kinda feel the urge to go and have some output. but how often does this happen for u? lately iv actually been having gas and "going" quite often, and was wondering if this is normal?
Posted 6/29/2010 3:11 AM (GMT 0)
When I had the ostomy, that started happening at the end. It would be a few times a day, but I found out I had pouchitis then, too. At the very end, the last few days before takedown, I had HUGE leaks at night.
Posted 6/29/2010 7:59 PM (GMT 0)
I do have stuff coming out, but it is not a lot. I don't have gas, but I was assured that this was all normal. do you feel pain when going? How often is often for you? I Think the most I had to evacuate was like twice for the day. I do have a temp ileo. Most of it is still mucus, no blood.
Posted 6/29/2010 8:45 PM (GMT 0)
When I had my temp ileo (~8 years) I went about once a week...and in the months before my proctocolectomy the amount slowly increased sad
Posted 7/2/2010 4:16 AM (GMT 0)
It happened for me every time I went to the bathroom until takedown.
Posted 7/3/2010 2:21 AM (GMT 0)
I've had my temp ileo for three years. I go about once every three weeks. Sometimes more. It depends on the time of the month. I notice it more around my period. Weird!
Posted 7/3/2010 2:26 AM (GMT 0)
Pretty much every time I go to the bathroom. Although, some days I won't have anything at all.
Posted 7/4/2010 6:23 PM (GMT 0)
Hi there,

When I had my temp ileostomy I passed nothing for about six months after surgery, before starting to experience the urge to "go." Thereafter, I would pass mucous at least once a week, and sometimes every day. The rate of discharge seemed to bear no relationship to the output from the stoma, i.e. at times I was passing a lot of mucous, I would have solid output. Often I would pass mucous after drinking a cup of coffee, etc. Occasionally I would pass a little blood with the mucous. It didn't have any effect on the surgeon's decision to perform a reversal, as I feared it might.

Searcher

Ulcerative Colitis diagnosed 1996

Medication tried- Salazopyrin, Prednisilone, Immuran, Prednisilone, Pentasa, Prednisilone, 6MP, (Does anyone want to have the steroid conversation?), Infliximab, Humira.

2008- Subtotal Colectomy with end ileostomy formation

April 2010- Proctocolectomy with ileorectal anastomosis.

One or two Immodium a week now and 3/4 very manageable b/ms a day.

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