Hi Ladies,
Lizzie had to be taken by ambulance back to the ER. A CT scan showed an obstruction, and her pain had been increasing. She has been admitted back to the hospital under colorectal, which is great- they all know her and know how to take great care of her. They put an NG tube down, and it has been draining a lot, so hopefully that will give her substantial relief. Pray that they would figure out what is going on with her heart rate. It is very high- whether it is from the extra fluid from TPN, pain, a combination of those, or from something else, pray for great diagnosticians to get that solved quickly!
Sarah - That is so encouraging! I hope and pray this doctor will have the curiosity and the experience to accurately diagnose and properly treat you. I know October seems so far away right now, but that just gives us all lots of time to pray for a great appointment :) And I am so glad you are going to stop the immune therapy- you do not need that additional pain!
I am ok...managing. I really can't wait until biofeedback is over. It has caused near-constant spasms, and it honestly feels like it's harder to have a BM now than before therapy started. I have an appointment in the morning, and I'm going to have a serious talk with her about how much longer she sees this going on for (started June 21), and what her expectations are.
Val - Wow, that was quick! Take it slow, and listen to your body. If anything feels "off," don't hesitate to get yourself to the hospital. Praying that you recover quickly and heal flawlessly, and that this surgery marks the end of bowel problems for you! A quick word about Reglan if you're still on it...there is a side effect called tardive dyskinesia. If you experience any involuntary movements of your face, lips, tongue, have trouble articulating, etc, take Benadryl and get to the ER. I was on Reglan for two days when I was 19 to help increase motility. I ended up with tardive dyskinesia. It is a miracle it wasn't permanent- scared the living daylights out of the doctor I had at the time. Many people who have this side effect become permanently disabled by it. You can YouTube search it to see what happens. It really is tragic.
Jenise - Welcome home! Aren't thunderstorms the best? ;)
Happy Monday! Much love and many prayers to you all!!
Allie