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Posted 8/28/2010 7:39 AM (GMT 0)
hi iv had crohns disease since 15 now 36 but allready had 3 op all sml b have been suffering with stricture 4 2yrs every month 4 3 days iam being sick and in pain seemsto be every full moon that sounds silly but it seems that way coming of pred on imuran 50m anyway totally had enoughf to the point were dont want to get of lounge iam a single mum and my son resents the fact that i am always sick because he never gets to go anywere seeing my surgen on monday morn i am thinking of asking him for an iliostomy just to end all this hassel has anyone chosen this and was it the best thing they did please help me desperate
Posted 8/28/2010 11:57 AM (GMT 0)
Becellea, I'm so sorry you're going through this, especially as a single mom. sad

Some of us chose to have surgery, and some of us had it done in an emergency, but the bottom line is, having an ileostomy is so much better than being sick. I had active Crohn's for 7 years, and that was enough for me, so I chose to have surgery. That was 4 years ago, and I love my new, healthy life. I do not take any medicine and have lots of energy.

The other thing to consider is that the longer you keep the diseased intestine, the higher the risk is for developing cancer. Removing it removes that risk.

Good luck with your appointment on Monday, and please ask us any questions you may have. We're here to help! :-)

Cecilia
Posted 8/28/2010 1:57 PM (GMT 0)
i chose an ileo and i love it so much better than being sick
Posted 8/28/2010 2:19 PM (GMT 0)
I chose ileo 25 yrs ago and have no regrets. I am no longer tied to doctors or bathrooms, and have been free to do anything I want to do. If you asked my limitations since surgery, I had a blockage from potato skins that made me nervous while it worked itself out. I no longer eat skins from baked potatoes. If my teeth were better I'd probably do that too.
Posted 8/29/2010 2:23 AM (GMT 0)
thanku dose it take long to recover is it easier recovering with bag than surgary
Posted 8/29/2010 5:53 PM (GMT 0)
im not sure what you mean
Posted 8/29/2010 6:08 PM (GMT 0)
Recovery isn't any different than another surgery. There is surgical pain but you will have meds for that! There is a learning curve to changing your appliance but you become a pro pretty fast! Hospital stay may be 5-7 days (depends on each patient) and 6 weeks or so after you are released to work.

I am very happy with my ileostomy:) My first one was emergency but the other two were my choice...one was temporary and the second when I had it changed to a permanent one.
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