How many of you feel weak and fatigued years after your subtotal colectomy or ileostomy?

do you feel weak after subtotal or ileostomy (2 yr post surgery)

yes, it really interferes with what I can do - 40.0% - 2 votes

a little weaker but basically I can keep up with friends - 0.0% - 0 votes

no, I have my energy back same as pre-surgery - 60.0% - 3 votes

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Gilda

Regular Member

Joined : May 2009

Posts : 194

Posted 11/4/2010 8:46 PM (GMT 0)

I am still trying to figure out why I have so little energy all of the time. I had a subtotal colectomy in april 2009. For a long time I had diarrhea 10-20 times a day; lately it has slowed down quite a bit (some days just 6 times). My doctors have done many blood tests and just can't figure out why I always feel so weak. I used to be a very athletic person and loved to be "on the move" most of the time. Now, even though I plan out my day and am excited about events, I only last about 2 or 3 hours before feeling that I need to lie down! Can anyone comment on this? I ask about people with ileostomies also because that may be in my near future!

Gilda

Liza D

Regular Member

Joined : Apr 2009

Posts : 166

Posted 11/4/2010 9:08 PM (GMT 0)

I had my reversal a year ago and I just started working full time about two months ago... Oi! I am exhausted everyday. It is so hard for me to be like my other coworkers even though I am the youngest by far. It seems like I hit a wall around 2pm. No matter how much I sleep, I am tired.

I am going to a nutritionist at the end of the month to see if we can make changes. I hope we can figure this out!:)

Chasblah

Veteran Member

Joined : Feb 2007

Posts : 788

Posted 11/5/2010 12:13 AM (GMT 0)

I have more energy than I did pre-surgery.

Gilda

Regular Member

Joined : May 2009

Posts : 194

Posted 11/5/2010 4:13 PM (GMT 0)

Thanks for your responses, Chassity and Lisa. Everyones body must be so different (or I guess the surgery done). Lisa, can you please explain what they are "reversing" after a J-Pouch. Does that mean you went from having a J-Pouch to an Ileostomy? I hope your doctors can find ways for you to "get" more energy. Chassity, glad you are doing so well. Congratulations on your pregnancy!

Gilda

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