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MALE with colonic inertia (only 2% of people diagnosed with colonic inertia are males)
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Ostomies
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KenJess1
New Member
Joined : Nov 2010
Posts : 2
Posted 11/10/2010 7:33 PM (GMT 0)
I am 65 yr. old, retired from the medical field, and living in a large city (350,000 residents) n the South.
I was informed of my very rare disease(very rare since I am a man) in early September 2010.My diagnosis is colonic inertia. I have seen two internists, two gastroenterological specialists, and two colorectal surgeons
( locally) during the past 3 months. I have had every procedure (gastrographen enema, Sitz marker, barium enemas, ad nauseum) and have taken every prescript
ion medication ordered by physicians, during that time frame. As of this date ( November 10, 2010 ) nothing has worked.
I know that the Mayo Clinic and Johns Hopkins (Baltimore, Maryland) are the BEST hospitals in the US. I have chosen to go to Johns Hopkins for my colectomy, because I have several close friends who live in Baltimore, and they will be a great support system for me, pre- and post-op.
I am waiting for an appointment date from Johns Hopkins. My question is this: Are there any males on this website who have had a total colectomy, or has the husband ( or male friend ) of any of the ladies who post on here, had the procedure?
Thank you in advance for any information that you may provide me.
Equestrian Mom
Veteran Member
Joined : Mar 2008
Posts : 3115
Posted 11/11/2010 2:29 PM (GMT 0)
Welcome to the forum...a few months ago I did meet a man in his 30's who had been diagnosed. Sorry I don't have any more information than that. I think he did have an ileo, too.
Please keep us posted on your surgery and I hope you'll stick around ... you have first hand knowledge of the man's point of view!
spasman
Regular Member
Joined : Jul 2006
Posts : 361
Posted 11/15/2010 5:27 AM (GMT 0)
Remember,if you remove the lower sigmoid near your male sex,you could loose tonus or nerve sensation.
That's what i ve been told.I think most surgeons dosen't mention these things much.
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