Please, pray for my friend in Berlin who suffers from intestinal dysmotility as well as severe malnutrition. She has gone through the same crap I experienced. Unfortunately, her family is not supportive and does believe the docs who say that she has anorexia. and that happens although she has a statement of a recognized motility doc she went to some years ago. It confirms their dysmotility but they just say that her motility problems are secondary to her eating disorder, and that they would resolve after weight gain and oral intake.
She has had many complications since she has been in the hospital; she was admitted as emergency case and basically this was the fault of the docs as she went severely malnourished many years and the docs did not treat her adequately despite constant weight loss and malabsorbtion . Finally, she was unable to gain any weigh at all, even with parenteral feedings as they could not increase it due to progressing liver problems. It was not sure at all that the liver problems were caused by the malnutrition or actually by the feedings. In fact, the doc who cared about
her parenteral nutrition, brought her into the emergency situation since he decreased more and more the calories; he said that her liver would not handle it although there was also the theory of malnutrition causing liver problems. In fact, a liver biopsy had not shown a fatty liver which would be the consequence of parenteral nutrition, but that there is too little fat in the liver.
Anway, the doc decided to reduce the calories more and more although she said that she feels her body starving to death and nourishing itself from organ tissue.
Well, she was admitted into the ER with a blood sugar of 20.
And since that day shortly before X-mas she has been in the hopsital where everybody believes she has an eating disorder. She is very sick as they had to restart tube feedings and in much pain. I just received her mail that she had nother complication: she had an internal bleeding after suction of asictes. I don't get how this could go undetected until the next morning though she was in tremendous pain during the entire night. Especially as she had already had a bleeding after liver biopsy. When your liver does not work properly this is a very common complication.
I just don't know what to do for her. She is too weak and to instable to have a transport in another clinic and her family won't agree anway. I accuse them of denied assitence, too since they still think that she has an ED and did not allow a colectomy to alleviate her symptoms and treat her colonic inertia when she had actually found a doc who would have been willing to operate her.
Yet, I an even my Mum tried to speak with them several times, mostly with her brother and I think I got him to the point that he would be willing to get her fully retested in a specialized clinic to rule out a organic cause. However, he also thinks that her problem is mostly of psychic nature. Anyway, at least he was willing to give her chance to get the right tests. But she cannot have them in her current condition and she cannot be transported.
I feel so helpless and I can relate so much. She has no chance at all in this clinic and she really deserves a chance suffering for the same period as me. I feel so blessed to have my mum who always stood on my side though she may have been doubting if the diagnosis of the docs (anorexia) was right and that I had indeed an ED. She still continues to be on my side during my constant battle.
Post Edited (pelztier86) : 2/8/2011 7:12:34 PM (GMT-7)