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Feeling lousy - neverending cycle of sickness

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Posted 10/12/2011 2:43 PM (GMT 0)
Excuse my negativity but I need to get this out ...

I had UC .. had my colon removed, had a temp ileo, had the reversal.
Suffered from chronic pouchitis and decided to go back to an end ileo.
Been feeling sick and had a scope and guess what ... I have "diversion pouchitis"!! 5/12

What the hell man. I have pouchitis when I'm connected, I get disconnected I have pouchitis again.
Now they're talking about short chain fatty acid enemas ... which I can't get until later this week. I feel like crap right now.
Tired, lethargic, nauseous ... it's all crumbling down around me.

:(
Posted 10/12/2011 4:18 PM (GMT 0)
I'm sorry, I'm sorry.. you are totally right to feel like crap. sad Can't the disconnected pouch be removed? Like more surgery is what you want...
Posted 10/12/2011 4:42 PM (GMT 0)
more surgery ... great !! :(
Might look at Humira to control and then reverse ... but gosh .. what a pain in the butt! (pun intended)
Posted 10/12/2011 6:43 PM (GMT 0)
oh my....how frustrating!! I'm so sorry you are dealing with this and hope it ends soon
Posted 10/14/2011 6:51 PM (GMT 0)
UC,

Are the short chain fatty acid enemas something given in the hospital or something you do at home. I have had diversion colitis that cleared on it's own, but I have an ileo with intact colon and rectum. My ileo needed due to colon and rectal injury not disease, but I have wondered about these short chain fatty acid enemas.
Rosemary
Posted 10/14/2011 7:19 PM (GMT 0)
The SCFA enemas are made at a compounding pharmacy. They ordered the ingredients and mixed the enemas for me.
I am going to be starting them today, will keep you guys and gals posted on how they work or not.
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